[kenbParticipant]

Hi Marie,
I was diagnosed with MM & plasmacytoma in July 22 after an initial diagnosis of sarcoma in March 22.
Like you, I was fit, rarely drank and ate healthily.
After an Intermedullary nail in my femur & some radiotherapy, I started on Dara – DVT. 4 cycles, one after another that I finished last month. I suffered dex sleepless nights on the days I took it and fatigue was my biggest side effect. I worked throughout but did have to take the odd day off as I was so tired! As soon as the cycles ended, back to normal and if I’d known no better I’d think there’s nothing wrong with me.
I’ve had stem cell harvest and now waiting for high dose chemo/stem cell replacement.
Good luck with your treatment and hope you are lucky like me for a side effect perspective.

[kenbParticipant]

Great to read some of the comments on here – I am 51 and just diagnosed although likely had it a while. I was having physio for a groin strain for over a year before sarcoma was looked into in March – what with bank holidays and results turnaround, that was only discounted recently and here I am.

I’m fit and healthy and the biggest issue currently is where the main part sits – top of my femur) so is stopping me exercise as they do t want fracture to treat too.

Just want to get in with treatment as I cancelled 2 holidays (august and November) yesterday on advice of my consultant and want to rebook!!!

[Author]

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