I have only had 2 SCT, first in 2007 and the second in 2013. Each of those with prior treatments gave me about 4 ½ years full remission. I am not sure if you get offered a 3rd SCT. My last relapse was in 2017 which I was treated with carfilzomib and dex and my treatment and course of maintenance treatment finished in Dec 2019. I am…[Read more]

I was 48 when diagnosed and just turned 60 last week. Work – long story – Before diagnosis had planned to retire early but loved job. Then diagnosis was unsure of prognosis, also it had damaged my spine. worked in hospital and lifting involved in job so weighed everything up and decided to retire. Company and management were…[Read more]

I am being treated with carfilzomib and am in the middle of my 3rd cycle. I believe it is a targeted medication instead of a general one. This is my second relapse with my first 2 treatments being CDT followed by a SCT. I was first diagnosed in 2006. They give it to me along with dexamethasone. I also have a monthly infusion of…[Read more]

I have had 2 SCT now and would certainly agree with Greg. 6 weeks is certainly quite early especially when you think of what your body and mind has been through. Not only the SCT but also the treatment before it, On both occasions it was around about 3 months before I felt I was over it but then again a little while longer before I…[Read more]

I was first diagnosed in 2006. I have had 2 courses of CTD and 2 sct. On both occasions I was asked if I wanted to have the SCT and each time asked the advice of my consultant who each time thought it was the way to go. All I can say is that both courses of treatment and the sct gave me about 4 1/2 years of full remission. Regarding the…[Read more]

Have not had these combinations of drugs as a course of treatment but did have high dose melphalan for my SCT’s. All I would say is that I had the same treatment both times which was CDT followed by a SC. Both gave me a full remission for about 4 1/2 years but each time I was affected differently with reference to the side effects.…[Read more]

I have had two SCT and from my recollection I had a dose of chemo (melphalin I think) on both occasions about a week before the harvest followed by injections to encourage new stem cell growth. This was done as an out patient. On admission to hospital I was given another dose of chemo before having the harvested cells implanted/ As…[Read more]

I didn’t do anything specific. I have never been interested in the details of MM. The only thing I would ask my consultant was how it is going. During my treatment I have always been confident that it would work and that also applies to the treatment my consultant decides I should have now it is returning. Initially it did some damage…[Read more]

I was first diagnosed back in 2006. It returned again 1n 2012 and as of now has just started to come back again. On both previous occasions I had a course of CTD followed by a SCT. In both cases from stating the treatment to leaving hospital after the SCT was about 8 to 9 months. I don’t know weather this would apply to VTD. It…[Read more]

I was diagnosed in 2006. In that time I have had 2 courses of CDT and 2 SCT. They gave me about 4 1/2 years remission each time. (Just found out last week it has started to return). As has been said there are no set rules and everyone is different. Even my two treatments varied. One CDT ok and one not so good. One SCT ok and one not so…[Read more]

You will find a lot of useful information and advice on here as myeloma seems to be a very individual disease. You will find many experiences covered and can find answers to your questions via the myeloma uk nurses or contributors to the forum. My brief history is – diagnosed 10 years ago at 48. Has returned once since then. Both…[Read more]

Don’t know whether this will help as I have never been interested in the details of my myeloma. I tend to treat it as an unwelcome intrusion in my life. First diagnosed in November 2006. Had CTD followed by SCT. Had full remission for about 5 years. When seeing my consultant for my check ups all I ask is how are my bloods. When…[Read more]

I have had 2 SCT now the first in 2007 which like Chris was at Kings in London as I am also from the Medway area and the second at Kings & London Bridge in 2013. Like you both were preceded with CDT. I was 49 when I had my first one. Everyone seems to have different experiences and all I could add to this is that each of my SCT was…[Read more]

Sorry the last sentence should have said ‘Each course of CTD and SCT gave me full remission.’

Best Wishes
Kevin

Best wishes for your upcoming SCT. I would echo what Rebecca has said. I have had two SCT now one in 2007 and the second in 2012. As has been said everyone is different and all I could add to that is to say that both my SCTs were different experiences. I had excellent treatment and care by all the staff on both occasions but the…[Read more]

Had CDT followed by SCT back in 2006-7. All went well and achieved full remision untiL Nov 11. PP's went to 4 then to 9 in Mar 12 and 17 in Jun 12. Saw my Consultant and decided we shoul start to treat. Since November Vecade had been suggested as the next step. Unlike the first time I was treated I knew what to roughly expect (good…[Read more]

I had my SCT in 2007. My last check up was in November 11. I was told then that after 4 years of remission that my count had slightly risen. Was it a blip, will it drop on its own or would it continue to rise. There was no definate answer. I asked what next and was told they would keep an eye on it and when it got to a certain…[Read more]

Similar story. Diagnosed at 48 (5 years ago) after not being able to shrug off a back problem. As you say the bone marrow biopsies are 'interesting'. I had CDT treatment followed by a bone marrow transplant. Have been in remission since then. Was told at my last consultation a level of something was slightly elevated but no…[Read more]