Bryn. You must be really worried. I was diagnosed at 40 with very similar symptoms and family situation. At this point, it is very difficult to take anything in or be positive….but it will get better. The steroids will be a nightmare at first, but this and the Zometa will sort out your pain. All of the terms and options will not make any sense at the moment, but given time, you will understand. Don’t be down hearted if you don’t receive the trial drug, I didn’t, thalidomide is still very effective and worked for me and does in most case a as a first line treatment , but it can be individual (myeloma). You certainly have a lot in your favour, age wise. 2 years ago, I could not walk, was in constant agony and feared the worst. I am now back to work full time and doing normal every day thongs that I used to take for granted…but treasure so much more. I had an auto SCT and it was fine. The chemo was ore difficult to tolerate, but even that was something I got used to, again I was back to work full time 3 months into that, but you do have good days and bad.
Please don’t try to get too down about it, lots of support on here I am sure and lots to be positive about. I a sure at this moment in time it is like the end of your world, but persevere.
Best wishes, Kevin. Apologies for sown spelling mistakes, it will not allow me to correct without re-typing!
