I am really sorry to hear of your diagnosis but please don't lose faith. My name is Kerry, it's my partner Melv that has Myeloma. He is 39 years old.

Myeloma seems so complicated doesn't it? So hard to get your head around but there is so many treatment options as I'm sure that you have found today.

How did your appointment…[Read more]

I hope this finds you all well – lots of love and best wishes.

Take care Love Kerry xxx

You are right, it is the damage that MM causes that is the really problem! I always say that if Melv just had Cancer to accept without the disabilities that it has caused, he approach it with determination and fight with everything he had. However, as he is slowly losing 'who he is' due to no longer…[Read more]

It sounds like you have both have it tough too. I'm sorry.

I understand what you are saying about the beg of the MM journey and we are so happy and positive regarding the PP levels, it's fantastic and a step in the right direction regarding the Myeloma. However, the damage that the Myeloma has caused…[Read more]

Unfortunately Melvin has been in hospital again. We were so happy after finding out his IgG levels had come down a little last Tuesday..from pp 55 to 37! Then on Sunday night he became in excruciating pain again with his lower back and the left side of his lower body (it was the right before)…so 999 again and in he went. I tried…[Read more]

Unfortunately Melvin has been in hospital again. We were so happy after finding out his IgG levels had come down a little last Tuesday..from pp 55 to 37! Then on Sunday night he became in excruciating pain again with his lower back and the left side of his lower body (it was the right before)…so 999 again and in he went. I tried…[Read more]

I often wonder *how* you do cope and accept that news??!! If I can be honest, I don't have any advise to give – other than love each other and make this time more special than you have any other.

I am so very sorry Sue…

Thinking…[Read more]

I hope this finds you well – take care xxx

Thank you for getting back to me with that. I have read lots of literature and have sort of worked it out myself ( i think). I understand the process of MM and what it all entails – I'm a bit of a researcher and send myself crazy looking up this and that! I also ask for copies of the information and always take my note book and pen and…[Read more]

I was just sitting here reading some posts and I just thought I would reach out and ask about staging. We haven't been told what stage Melvin is with the Myeloma. When I asked at the last consultation, I was told that due to Myeloma being an incurable type of Cancer, they don't stage it. basically, if you have Myeloma, you have Myeloma…[Read more]

You explained just how Melvin is. He said if it wasn't for the inability to work or resume normal activities due to the spinal cord compression, he would be able to live quite a 'normal' life while on the Dex. However – he suffers such a come down when he stops…like you, he feels so tired, almost lifeless. Only waking to eat most…[Read more]

I'm sorry that you are going through a tough time at the moment. It's my partner who is 39 who has Myeloma, and is also on the MXI trial, RCD. He is at the end of the 2nd cycle at the moment. I noticed that you go to the QE hospital in Birmingham. We live in Birmingham and Melvin will be having his SCT at the QE. What a fantastic…[Read more]

I have another person helping me with it all so I'm not totally on my own. Although I complain for being stressed at the moment, I feel like I need to inject all of my frustrations and emotions into something productive…if you understand what I'm saying. I may regret it, it may exhaust me but I feel I need something to focus on other…[Read more]

It is my partner Melvin who has MM. He is 39 years old and like you had SMM and then one day went to the hospital to find PP levels had increased and he started Myeloma XI and also is on RCD.

Melvin is at the end of cycle 2 and I think he has coped quite well so far. Unfortunately he isn't working due to his L3/L4 vertebrae…[Read more]

Has anyone else had any…[Read more]

I hope you are well – take care and thank you again. xxx

I hope that Colin is OK at the moment – how are you doing?

Take care xxx

My partner Melvin was diagnosed with a Solitary Plasmacytoma on 15th December 2010, so our journey started nearly two years ago. Reflecting back to those days, I felt scared and unsure of what it all meant, I remember that. It was almost like I went through some kind of grieving stage??! Things have really progressed for Melvin now…[Read more]

We have been referred to Counselling, although the last two appointments were cancelled due to the Counselor being…[Read more]

I'm sorry that we meet this way. You do seem to have a lot to deal with at the moment and i appreciate what a very anxious time this is for you.

You say that you have had the bone marrow biopsy – have you had the results now? As far as I am aware, this does give an accurate diagnosis of Myeloma. It is my 39 year old partner…[Read more]

I have found myself reading so many of your posts on here for weeks, maybe months and it's lovely how much support you all give to each other. I now feel that I could do with some of your shared support – I'm finding things really tough! Here is our story…..

My name is Kerry and am 37 years old tomorrow – it's my 39…[Read more]

I have found myself reading so many of your posts on here for weeks, maybe months and it's lovely how much support you all give to each other. I now feel that I could do with some of your shared support – I'm finding things really tough! Here is our story…..

My name is Kerry and am 37 years old tomorrow – it's my 39…[Read more]

Thank you…I will ask for one of those x x

It's tough isn't it?! Melvin, my partner is only 38, so young! How is Dan? He sounds like he is having a tough time of it.

Melvin was diagnosed with a solitary plasmacytoma of the spine in December 2011 and had radiotherapy that helped. He is currently in hospital with multiple fractures..now on the ribs…and is being hit full…[Read more]

I hope this finds you all well. Please keep in touch x x x

I hope you are feeling well. Yes, Melvin had radiotherapy for the plasmacytoma on the spine and is having infusions every 4 weeks….however, we are not sure what the next plan is now that he has multiple fractures. He is in hospital at the moment on Iv morphine and antibiotics and the Dr's are having a MDT meeting later…[Read more]

Thank you for your message. I hope you are feeling well.
Melvin is also having bone strengthening infusions every 4 weeks…but he still has these new fractures. His levels seem to have spiked a little but not out of control. He is still in hospital on IV antibiotics and morphine but is having more movement…[Read more]

My name is Kerry and I'm 36 years old. My partner of 16 years, Melvin was diagnosed with Multiple Myeloma in December 2012. In December 2010 he had a plasmacytoma of the l4 vertabrae. He is currently in hospital with pathological fractures to the ribs and a blood clot on the lung and is in terrible pain. We are waiting to hear what…[Read more]