Hi Sarah,

It is amazing how different the same procedures can be. We find it even depends on which nurse or doctor you have on any given day so even within the same ward things are different!! Phil and I do stay positive and it is partly due to reading about people like Henry who are a bit further into the journey and are in remission. It is…[Read more]

Hi Jean,

It is definitely a roller coaster ride but 2013 has started off right with the neutrophils finally making an appearance!! Does Frank have a date yet for his transplant? I know every journey is different but hopefully Phil's experience will help others including you and Frank know what to expect, I know we learnt a lot from reading…[Read more]

[u]Day Sixteen (Day Twelve)[/u] – New Year, New Neutrophils

Phil had some aches and pains in his legs last night so he hoped it was a sign that the engraftment of the new cells was happening and the GCSF injections were finally helping the bone marrow produce new cells. Sure enough, the blood tests this morning showed that the neutrophils have…[Read more]

Well Dia

touching wood and fingers crossed this is the one, you are a surviver i am sure you will get through this you are an inspiration to us all

Big hugs Jo xx

Hi Megan and Phil

Am plased they are sorting out the infection once that has gone its a move closer to home.

Dont worry about the daily postings mit brings back things I forgot in 2009/10 ha ha, this post will help others comming up to or just starting the road to remission, if you can please keep it going.

Love and Hugs to you both, and…[Read more]

Hi Mary

Am sure it was/is tough for you at anytijme let alone this time of the year, Hugs sent to you ((HUGS))

My Link with MM is I was told in 2009 that I had it went through CTD them stemcell transplant in Dec 2009 and now am drug free, Thanks for asking.

I hope this year you find time to remember the God times and am sure you both had…[Read more]

Megan was really glad to read of Phil's progress and then sorry to read the Iv is up again. I really hope that 2013 (3 1/2 hours to go) shows a marked improvement in Phil and that you take care of yourself

Love and hugs Jean xx

[u]Day Fifteen (Day Eleven)[/u] – A better day today

Phil's fever broke around lunchtime today and he has started to feel better. The lab grew a culture of the bug he has and it is in his system, not in the PICC line, so that is good news. It is a bog (pardon the pun) standard gut bug that the doctor said Phil has probably had for years but…[Read more]

Hi Babs,

I hope the forum doesn't mind my daily updates (this thread is getting a bit long!) but Phil and I both have the worst memories and we thought this way we would be able to remember what happened when – we don't even remember what day Phil was diagnosed, we just know it was the last week in May!! We both also found reading other…[Read more]

Hi Tom
I have PM you my email address fora copy of the article

Thanks
Jean

Hi Tom

Thank you for posting this information, I would be very interested to read these articles and would be grateful if you could send me a copy. I will send you my email address.

With best wishes

Ange

[u]Day Fourteen (Day Ten)[/u] The IV Stand Returns

The upset stomach that Phil has had for six days went away today but that is the only good thing that happened.

Phil started the day feeling not quite right with a fuggy head, he had a similar thing yesterday but it went away after a couple of hours. Today it got worse and his…[Read more]

Hi Chris – Sorry to hear you had a Christmas day visit to the hospital, I'm sure that wasn't on your Christmas list! We do know what you mean about set backs, just getting to this stage has involved quite a few.

Tom – Phil is definitely not rushing, the IV stand made a return to his room today so it was only gone 24 hours:-(

Kay – you are…[Read more]

Hi Steve
Just nipped in to see how you are ? Hope you are copping well and not too many side effects.
Let us know how you are doing 🙂

Tom "Onwards and Upwards"

Hi Megan and Phil

My you have done well Phil I never let my stand leave my room Lol, I was still on anti sick tabs (was for a couple of months when got home to be fair)

I was out on my 16th day and even threw up on that day (but dint tell the nurse ((Nawty Tom)) as she might have kept me in )

Keep it going and it will work dont forget…[Read more]

[u]Day Thirteen (Day Nine)[/u] Freedom from the IV stand

When the nurse came to change Phil's IV fluid bag this morning she said she would check with the doctor if Phil needed another one. The answer was no so after days of being attached to the IV stand Phil has now regained his freedom and even better it was needed somewhere else so it has…[Read more]

Hello Helen,

You are so right, if we look at it like that this is not day thirteen it is actually day 217!!! We are definitely on the home straight! 🙂 🙂

Megan

Hi Kay,

Thanks for posting, it is nice to hear from some one else who was treated at Bart's, now we know the lack of blood result info is normal, it doesn't make it any easier not having a daily print off but at least Phil knows it is not just him! 🙂 The plan from day one was to move Phil to the Bodley Scott Ward which is the mythical…[Read more]

Hi Helen not to put a damper on your Rechargeable Battery's but my energy levels vary ?? some days I could dig holes for England others I would struggle to hold the shovel let alone use it :-S BUT I have learnt to do a little and often still rest when both my body or my young bride tells me 😀 as she knows me better than I think I know…[Read more]

Hi Keith I try M8 I try and Thanks. But am sure I will put up a good fight with the demon Drink dont you lol. Have a good un

Dai All the best for your start on Monday, fingers crossed it work well for you 🙂

Have a good you all

Tom "Onwards and Upwards" x