Hi Ozzy,

Phil and I have discovered throughout his first line treatment, stem cell harvest and now the transplant that things are very different depending on the hospital. Phil's first line treatment was on the PADIMAC trial and even this seems to be different depending on which participating hospital you are treated at. The general idea is…[Read more]

Hi Helen,

Glad to hear you had a proper Christmas, Phil is losing the weight but I seem to be piling it on. The last time he was in hospital for the leg operations I was such a nervous wreck I didn't eat anything but this time we knew it was coming and knew what to expect and I find when I get home I can't be bothered to cook a proper meal for…[Read more]

Dear Gill

My heart goes out to you at this sad time and with that I am sending the biggest and tightest Cyber Hug I have ever sent (HUG;;;;;;;;;;;;HUG)

I Hope that has helped you a little bit, I honestley cant say I know how you feel because I dont and if I am unfortunate to find out then I hope I also have the great folk on here to give me…[Read more]

Hi Vicki,

It is quite funny, I was soooo desperate to get Phil into a single room and away from all the germs and now he is all by himself I worry because unless someone comes and opens the door nobody can see him!!! I keep saying to Phil when I leave to ring the bell if he needs anything. It is funny how I veer from one extreme to the other…[Read more]

[u]Day Nine (Day Five)[/u] Christmas

A bit tough for both Phil and I today as there is no public transport on Christmas day so I was not able to visit. Note to myself, I must get over my fear of driving in this country!!!

Phil is doing okay but he has now developed a rash that they think might be a side effect of the other drugs he is on,…[Read more]

Thanks all for replies. I went out and bought loads of bananas, didn't know about apricots. He started the tablets this afternoon. I will keep a close eye on him.

Wishing you all a great Chtistmas
Love jean x

Hi jean

Symptoms are palpertations,but have to be very low,drugs are awful to take,so stuff him with bananas plus apricots,make sure he eats at least two a day,that a potassium aby way.if he starts to feel unwell it's a bit like starting a heart attack,it is important that it is corrected,why not go and collect physcription.

Have a good…[Read more]

[u]Day Eight (Day Four)[/u] Isolation Begins

Phil is now not allowed to leave his room but luckily I was able to tell him the truth and say he was not missing anything outside, cold, raining, miserable and grey. I have to wear a plastic apron and gloves now when I go into the room which is a lovely fashion ensemble.

Phil is starting to…[Read more]

And I Dai

Have a great day I know you wont/cant have what you want today and thats A Tea with the Family due to Fections 🙁 but you will have next year and do what I do get two birth dates (good enough for her Maj good enough for me 😎 )

Hope you have a good time

Love from us two Lappins xxxx

Hi Jean and Frank,

Phil has never been told anything about phosphate levels but I do know they checked his potassium levels after the harvest as a side effect of the harvest can be a drop in potassium. Sorry I can't be more help but I hope the medicine will fix the levels and maybe improve the tiredness?

Megan

Hello everyone,

Have a very happy Xmas and a happy new year!

Love liz&kev xxxx

Hello Dai,

Glad to hear you got home for Christmas hope its a good one for you and Janet.
Hope you and your family have a happy Christmas and healthy new year!

Happy birthday Dai love liz & kev xx

Hi Dai

So glad you got home for your birthday and Christmas. Do take care and all best wishes for the start of the treatment.

Love to you and Janet.

Mavis x

Hi!

So pleased for you Val. Keep well for very long time.

Love Mavis x

Hi David

Glad there was good news. Happy Christmas and Happy Birthday!! Thosw PP numbers are still very low. Some folk get upto 40/50 b43fore treatment. My Consultant said it depends how quickly figures are raising and whether there are any other health complications.

Love

Mavis x

That is brilliant David! 😀

Megan

Thanks Tom, Vicki and Colin,

It is amazing how stressful it all is considering everything is going fine. I think things get blown out of proportion in my mind as I sit at the hospital and worry and then I come home and worry even more as I am not there to keep an eye on things!

Thank you for your support, hopefully Phil start to sleep more…[Read more]

Hi Keith
Sorry to hear bout your counts :-|, I hope they and you get well for Santa as am sure you know he is on his way ready or not he he.

Dai shame your Birthday tea is put on hold ( another on its way next year ) have a great birthday Dai, am sure that guitar will get a good airing,enjoy.

Tom " onwards and upwards "