jmsmyth replied to the topic Latest Results in the forum General 13 years, 6 months ago
Val brilliant news. Don't have to tell you to have a great Christmas but I will anyway. Have a great Christmas and and long may your good news continue. 😀
BADGER replied to the topic hi from another newbie!!! in the forum General 13 years, 6 months ago
Hi Stevo
CDT is cyclophospomide Dexamethasone and Thalidomide my creatinine
was 500 on collapse i was at about 350 when it was considered but there would have been grave danger of the aggressive chemo fully destoying my kidneys i didnt want to risk it but i am a lot older than you your body
may take it you may need a long discussion with your…[Read more]
BADGER replied to the topic Happy Christmas! in the forum General 13 years, 6 months ago
Christmas blessings to you mavis
I hope all keeps well for you for a long time to come
Love Jo x
BADGER replied to the topic Appointment results in the forum General 13 years, 6 months ago
great news David
A drug free christmas and it looks like quite a bit beyond this what we want good news
seasons greetings yo you and yours
Love Jo x
mhnevill started the topic Happy Christmas!. in the forum General 13 years, 6 months ago
Dear everyone!
May I wish you all the blessings of Christmas whatever stage your treatment is at. May you all know the closeness of friends and family at this special time.
My thoughts and prayers will be especially with those of yo who are struggling with emerging to health after SCT; after gruelling drug therepies; and especially those…[Read more]
mhnevill replied to the topic Starting to feel a bit better in the forum General 13 years, 6 months ago
Hi Tina
So glad to hear you feel you have turned the corner after such a rough ride. I do hope, and indeed expect, that you will improve steadily. It is just rough it takes so long to get the appitite back.
Keep pressing ahead! May 2013 be a really good year.
Lots of love.
Mavis xx
eve replied to the topic Happy Christmas and a HEALTHY New Year to you all in the forum Off topic 13 years, 6 months ago
Wishing you all a happy Christmas ,and for those who are going through a bad time,I hope things improve,my thoughts are also with the people who have lost loved ones,and people who are near the end of there journey .
New Year. Will for me a journey going back home,leaving NZ at 23.59pm so we will pass many countries welcoming in the new year…[Read more]
Debs replied to the topic Zometa 'flu' in the forum Side-effects 13 years, 6 months ago
Hi there.
I thought I'd add my experience and say thanks to you all for your replies as they've helped me too!
I've been on zometa since November 2010 (with a break for transplant) and other than the 1st time hadn't experienced the cold/flu/ muscle aches.
However the last two times I've had it, I've been really achey and have had chronic muscle…[Read more]
Debs replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers 13 years, 6 months ago
Dear Anne & Pete
Thanks for that….I'd sort of not clicked that I'd be seeing our faces on the front cover! A bit of a shock to say the least! Anyway, I hope it helps someone out there a little bit…
Hope you are well
Debs x
meganjane replied to the topic Starting to feel a bit better in the forum General 13 years, 6 months ago
Hello Tina,
I am so glad to hear you are feeling better, best wishes for a great Christmas.
Megan
meganjane replied to the topic Phil's SCT Journey in the forum Treatment 13 years, 6 months ago
[u]Day Four (Day Zero)[/u] The day Phil's stem cells were returned.
Phil is still feeling fine but a little bit queasy and quite tired. The tiredness is probably a side effect from all the drugs but it is not helped by the man in the corner of his room who talks loudly to himself day and night!
3:45pm Pre meds were given to Phil through his…[Read more]
BADGER replied to the topic hi from another newbie!!! in the forum General 13 years, 6 months ago
hi Steve
I was diagnosed jan 2009 MM renal failure and pnuemonia i had CDT which gave me 3yrs 6months remission I chose not to have an SCT as would have put in dialysis kidneys still hanging on I have just started sub Q velcade on second cycly with reduced doses of some of the drugs to protect the kidneys so chin up i am sure you will be ok i…[Read more]
jmsmyth replied to the topic Starting to feel a bit better in the forum General 13 years, 6 months ago
Hi Tina so glad that you have turned "the corner" 😀 I am sure each day you will feel a little better. Hope you will be able to enjoy Christmas lunch. Have a good Christmas and a fantastic new year
Love Jean x
tom replied to the topic Starting to feel a bit better in the forum General 13 years, 6 months ago
Hi Tina and a well done you 😀 its great when you feel that tad better each day, Think I was still on Sick Tabs still after mine you are doing good.
Keep well and keep warm
Love Tom "Onwards and Upwards" xxx
jmsmyth replied to the topic Pete's SCT – so it begins!!!!! in the forum Treatment 13 years, 6 months ago
Dear Vivki and Colin
So sorry to hear that Colins dada has passed away. My sincere condolences. Best wishes to u both
Love Jean x
eve replied to the topic At a low point in the forum Carers 13 years, 6 months ago
Hi Sue
Well I think this is worst it can get the only way is up now,surgery done,see how his mobility goes,do not be afraid to use a wheel chair until he feels a lot better, then start on the chemo again,he is not the first and will not be the last.
As for him feeling low,it is understandable,try to do something every day,even if its just…[Read more]
jmsmyth replied to the topic Franks stem cell harvest in the forum Treatment 13 years, 6 months ago
Hi Helen
Thanks. Still don't believe it!! But consultant said that if got good harvest they would freeze but she said that because of his age (he looks young)!!!) 😉 but she didn't think that there would be another. Anyway hope this one goes well with as little infections and he has a long remission
Cough behaving itself??
Love Jean
ange replied to the topic Been a bit quiet but just started Cycle 3 RCD Myeloma XI Trial in the forum General 13 years, 6 months ago
Hi Sarah Jane
Great news, all sounds good. I hope you continue through your treatment as best as can be expected. Wishing you all the very best, Ange xx
jmsmyth replied to the topic Franks stem cell harvest in the forum Treatment 13 years, 6 months ago
Thank you all for your good wishes. I keep asking Frank if he's sure they said 7.2, he said 7.2 or 7.5 can't remember!!! So just to makes sure I'm phoning them tomorrow 😉
I wish you all a wonderful Christmas and healthy happy new year
Love Jean xx
tom replied to the topic Second anniversary visit to haematology in the forum General 13 years, 6 months ago
Helen you my dear are in the (ish) group and that (ish) means those well and I mean WE'LL under 40 ;-)) xxx