tom replied to the topic Bad Breath in the forum Side-effects 13 years, 6 months ago
Your welcome Tina but am not a fan of the stuff myself but i do chew every now and then and it gives me wind, I burp a lot and the young bride (elaine) knows i have been chewing ha ha.
Good Luck and hope your soon sorted
Love tom "Onwards and upwards" xxx
tom replied to the topic Cat Napping in the forum Off topic 13 years, 6 months ago
I seen the new one Jo its worth a read 🙂 xx
tom replied to the topic By-Passng Nature – For Jo in the forum Off topic 13 years, 6 months ago
Dai am sure Jo will enjoy it as much as i just did Ta Mate 🙂
tom replied to the topic Stay positive!!!! in the forum End of Life and Grief 13 years, 6 months ago
Hi Michelle
Your Mothers strenth has been passed on to you it shows in your post only four weeks after the passing of your good Mum,I admire both your Mum and you for fighting what is a hell of an illness with strenth and dignity, I bet those five years were filled with laughter and joy.
Thank you for posting am sure it will give us all…[Read more]
BADGER replied to the topic chest infections – immuglobin transfusion – 3 days in hospital in the forum Treatment 13 years, 6 months ago
Hi Sarah and Henry
what a tale I really wonder what will happen to some of us in the NHS systems so much laxness and uncaring attitudes make me shudder poor Henry I wonder if he is doing a bit too much working all thosr hours perhaps thats why he has been so open to infection getting a bit run down I hope he feels much better soon
Love Jo x
tom replied to the topic SCT – here comes! in the forum Treatment 13 years, 6 months ago
Hi Peggy
I went in on the 1st December 2009 and was released on the 16th Dec and my xmas and new year was cancled till 2010 🙁 but it was well worth it 😀
How much nite cloths?? well am sure you will be told you can never have enough with you.
I am sure the recovery will go smooth for you
Love Tom "Onwards and upwrards" xx
tom replied to the topic Waiting in the forum End of Life and Grief 13 years, 6 months ago
Hi Sue and Michael
Am sorry Michael is having a lot of Pain am sure they must have stuff to stop or lessen it all?.
I know its Michael that is ill with the MM but you need to look after yourself also and the tears are ok you have no reason to feel that you have to apologise for it.
Can you get some help in to help even if its an ear to chat…[Read more]
mhnevill replied to the topic Waiting in the forum End of Life and Grief 13 years, 6 months ago
Hi Sue
Just posting to ask how things are with Michael. I do hope and pray that as you approach Christmas there is something to look forward to.
Much love.
Mavis x
mhnevill replied to the topic Stay positive!!!! in the forum End of Life and Grief 13 years, 6 months ago
Hi Shelly
Thank you for taking the trouble to post at what must be a very sad time for you. I'm so encouraged that your Mum coped so well with all the treatment. How long did she live post diagnosis?
I know your continued contributions to the site will be welcomed.
Very best wishes to you and all your family.
Mavis x
mhnevill replied to the topic Is it too much to ask? in the forum Side-effects 13 years, 6 months ago
Hi Dai
This C Diff seems to really have got you "on the run"! (Excuse the humour!!) So sorry it keeps coming back. It's this downside of antibiotics that they keep warning us about. We do need another breakthrough like when penecillin was discovered. I wonder if there is research into this?
Glad you are soon to be back driving. I…[Read more]
mhnevill replied to the topic Mums turned down SCT whats next? in the forum Treatment 13 years, 6 months ago
Hi Sarah
I had six rounds of CDT and this banished the PP completely so for the time being my only treatment is a four weekly infusion of Zometa for bone strengthening. Like your Mum, I have decided not to go down the SCT route and feel very comfortable about it.
You don't even have to get down to zero PP to be able to have a drug free…[Read more]
tom replied to the topic chest infections – immuglobin transfusion – 3 days in hospital in the forum Treatment 13 years, 6 months ago
Hi Sarah and Henry
Well you have both been going through the wars bless, and you do right with shouting, but i do think the NHS is an excellentt thing but leke everything it has to be run correctly at all levels.
And I also must say that Henry is working long hours am sure I cant do those hours and I had my SCT in 2009 :-0 as for me am…[Read more]
mhnevill replied to the topic Rain, Floods and the Professor in the forum Treatment 13 years, 6 months ago
Hi Andy
Like the others, I am gutted thst you can't find a donner match. However, I'm glad the drugs are working. The donner transplants don't sound like a walk in the park, so maybe, with your battered bone marrow, going other routes may not be such a bad thing, IF they can find a combination that whacks the blasted MM into touch.
Very…[Read more]
mhnevill replied to the topic chest infections – immuglobin transfusion – 3 days in hospital in the forum Treatment 13 years, 6 months ago
Hi Sarah
So sorry you and Henry are experiencing the down side of the NHS just at the time when you need it to be at its best. I know that feeling of frustration and feeling powerless to change things.
I really admire Henry for keeping on working. I do hope you don't have finacial pressures as well as everything else.
I do hope and pray…[Read more]
mhnevill replied to the topic Colin SCT starting, here goes!!! 🙂 in the forum Treatment 13 years, 6 months ago
Hi Vicki and Colin
Somehow I have missed all your batles witht he SCT thus far. Just wanted to sign on and say that I do hope things get steadily better for you and that a really long remission make it very worth while. I have just been reading of one of nine years.
Lots of love to you both.
Mavis x
mhnevill replied to the topic Oh – Oh it's back in the forum General 13 years, 6 months ago
Hi Jo
Good to hear news of you! Do hope this next round of treatment gives the old MM a run for its money!! They keep saying that MM is on the verge of becoming a chronic disease let's hope it is for us even if it is a real drag at times!
Much love.
Mavis x
mhnevill replied to the topic Oh – Oh it's back in the forum General 13 years, 6 months ago
Hi Carol
Just caught up with this post. So sorry to hear that you have relapsed. What we all dread. Never the less you sound as if you are coping well now you have got over the initial shock. Well done! I do hope the PAD works well for you. From all I've read, I wouldn't worry that you are putting off thughts of having another SCT after…[Read more]
BADGER replied to the topic Cat Napping in the forum Off topic 13 years, 6 months ago
Loved it dia more please
Love Jo xx
BADGER replied to the topic Postcard from New Zealand in the forum Off topic 13 years, 6 months ago
Sounds wonderful Eve
so glad you got there and all is well take it easy and enjoy all that comes along the sun and the sea will do you both good
Love Jo x
BADGER replied to the topic Is it too much to ask? in the forum Side-effects 13 years, 6 months ago
Well Dia
C diff lite what ever next seems a pig a of a bug to take this length of time to be rid of it I hope they see sense and keep you on the rev dex combo "sounds like a good group!" a friend in my support group has been on this regime for over four years the last 6 month has been rev alone she also has to take something for loose bowls…[Read more]