Dizzyliz started the topic Treatment update. in the forum Treatment 13 years, 7 months ago
Hi everybody.
It's been a long time since my last post, I have kept updated with you all but just not found the time and sometimes unable to find the words to express like so many of you do, firstly kevs not been having such a good time with his treatment (vel/dex) he finished his last cycle 8 a week ago which had been reduced by half because…[Read more]
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 13 years, 7 months ago
Hi Chris
Well a warm welcome home and long may it continue 😀
As for me I was a wee bit scared when I was at home at the start ie not having a proper nurse on call and if it will keep n keeping better it worked and still is so you my Friend enjoy that Cuddle its a good healer 😉
Love to you both
Tom "Onwards and upwards" xx
tom replied to the topic Coming to terms in the forum Newcomers 13 years, 7 months ago
Hi Karen
And a warm welcome to you, you have had some great advise from the group and I hope it has helped?
As you have read some peopls have placed the MM rthingie in box's shoved it in a cupoard under the stairs I have placed mine on my left shoulder in a imaginery brick box (with Lid 😉 ) and leave it alone(as best i can) for as long…[Read more]
tom replied to the topic Outdoors Paul in the forum End of Life and Grief 13 years, 7 months ago
Wendy Lovely Post very moving, I aslo am sad that we lose so many in a year and wonder why I am still here and in comparative good health.
Many Thanks for the Link, stray well and strong
Love Tom "Onwards and upwards" xxx
tom replied to the topic Good news in the forum Treatment 13 years, 7 months ago
Well Done Ali's Mum 😀 Thats great news Ali, and yes its a hard year or tow to getting back to near normal but as your Mum health and strenth improves thats when you will say "Well that was worth it" and I hope thats not too far away now 😎
The "Onwards and Upwards" is not mine to give 🙁 but its certanly yours and your Mums to take 8-)…[Read more]
ange replied to the topic Cardiff Information Day in the forum General 13 years, 7 months ago
Hi Paul and Gayle, sorry to hear about your back pain Paul but if you are able to make it I look forward to meeting you. Jenny, that's great, I will look out for you! Best wishes Andrea
meganjane replied to the topic REVVING UP FOR SCT! in the forum Treatment 13 years, 7 months ago
Hi Chris,
I am so glad to hear that you are doing so well, even drinking beer:-) I wanted to thank you for sharing your transplant journey as my husband Phil will be embarking on his own stem cell transplant in a month and it has helped us to prepare reading your posts. Phil may not be able to beat Tom's 16 days in hospital (he will try…[Read more]
meganjane replied to the topic Colin SCT starting, here goes!!! 🙂 in the forum Treatment 13 years, 7 months ago
Hi Vicki and Colin,
I am glad to hear that Colin is on the mend and that the pain is under control, fingers crossed for an end of the week release from hospital.
Phil, my husband, is due to go in for his stem cell transplant mid December so I have been following your progress and Chris' as well trying to pick up as many tips as I can. Thank…[Read more]
meganjane replied to the topic Good news in the forum Treatment 13 years, 7 months ago
Hi Ali,
That is wonderful news about your Mom, a great way to end what has been a long and tough year for you all. My husband Phil will be having his stem cell transplant just in time for Christmas but we are looking forward to a better year in 2013:-)
Megan
jmsmyth replied to the topic Outdoors Paul in the forum End of Life and Grief 13 years, 7 months ago
Wendy a very moving post.
Love Jean x
BADGER replied to the topic Confused newcomer in the forum General 13 years, 7 months ago
hi Colin
not sure what all that maens why dont you give Ellen a ring she is very good and may be able to explain it to you the doctors dont always do that I think they should
Regards Jo x
jmsmyth replied to the topic Good news in the forum Treatment 13 years, 7 months ago
Hi Ali
I have been following your mums journey and over the moon to read your news. Long my the remission continue and I hope your mum enjoys every minute. It's also been hard on you so hope you can relax a bit and take it easy.
Love Jean x
eve replied to the topic Rev/Dex Update As Promised in the forum Side-effects 13 years, 7 months ago
Hi Dai
Awake like you,had my tea and toast,Good night .Eve
Lorna replied to the topic Myeloma blogs in the forum Newcomers 13 years, 7 months ago
Hi Jet
I know Emma has already mentioned her blog in another post but I thought it was worthwhile adding it to your list.
http://ejbones.wordpress.com/ (A 28 year old woman from London diagnosed Aug 2012)
Lorna
ange replied to the topic Cardiff Information Day in the forum General 13 years, 7 months ago
Hi Jacquie, great to know that you found the Birmingham one helpful. David – Happy Anniversary for the 24th! I will make the most of the day and report back! Best wishes Andrea
eve replied to the topic STRESS in the forum Carers 13 years, 7 months ago
Hi Mari
I thought I had problems,by gum,you beat mine,one of my mantra,s is there is always some one worst off than you, I am feel better already(joke);-)
We know the body copes with what ever it has too,it,s when every thing has passed,Myeloma has been put in its box,I have put a padlock on the box and thrown away the key.another learning…[Read more]
eve replied to the topic STRESS in the forum Carers 13 years, 7 months ago
Hi Helen
I have seen this coming and should know better,the only way I can explain it,is every part of my body has for gotten how to relax.Any way a few more days tying loose ends up.We fly next Sunday evening,Slim as usual is taking it in his stride,
In past years when travelling in the Motor Home,all christmas shopping was done in the summer…[Read more]
tom replied to the topic Colin SCT starting, here goes!!! 🙂 in the forum Treatment 13 years, 7 months ago
Good Morning Vicki and Colin
Yes It Looks like you are on the HOMEWARD BOUND Colin 😎
Its Good to Blubb its a release and it works :-D, am sure the pains will soon be sorted.
Love Tom "Onwards and Upwards" xxx
Ps am on here at this time of the morning because the three grandkids we are looking after are Up and At em Lol.
eve replied to the topic REVVING UP FOR SCT! in the forum Treatment 13 years, 7 months ago
Hi Chris
Sounds if you are doing wonderful,a glass of beer!!!!!!!!!!:-P Slim cannot even look at beer,every now and then he has a sip of my wine,and pulls a face.I am saving thousands of pounds;-)
Please look after yourself this period is so easy to mess up,Love Eve
eve replied to the topic All so confusing in the forum Carers 13 years, 7 months ago
Hi Deirdre
I will not say I know why you are so confused,its either something that has gone drastically wrong or lack of knowledge about mm,and some were along the line you have extra complications.
Even if your husband had smouldering Myeloma,some one should have been keeping watch on his bloods,from your answer" only having Zometa"Well it…[Read more]