Thanks for yor best wishes .I am awaiting a mri : my alk phos has fallen being compatible with a recent silent micro fracture somewhere.
Dear Chrissie . The stats shows that 10% of high risk smoulderers patients Do NOT progress within ten years and are then regarded has having MGUS with a risk of 2% per year .
I have not found any details of…[Read more]

dear angelina,
Iv seen one criteria for smouldering in which one lytic lesion is “allowed” ;but 2 lesions=active mm
Within an mri there are 2 techniques( T1 and T2) that can be used such that the mri for ms shows the nervous tissue best but NOT the bones ;the alternative method is best in detecting myeloma of the spine (whole body mri is not…[Read more]

Hi Peter

Good luck with the VCD regime and hopefully your cold won’t delay treatment. I will have another paraprotein level taken soon along with another bone marrow biopsy and hopefully straight through to stem cell transplant in February. I have just had my hair shaved as I lost most of it after the Cyclophosphamide prime, feels a bit strange…[Read more]

Thank you Richard,that was kind,

I often think about Dai,and others and people who have stopped posting,like Jo .

Deb Bones lost her fight just after Christmas as well,it’s a sad year all round for many of us,but we do live in hope that away to control Myeloma is coming,plus we have the knowledge that all the people on the trials helped

I am…[Read more]

Hi

Welcome to the forum, you will find lots of support and information here! I am pretty much in the same situation as you. My paraprotein only got down to 11 after 9 cycles of CTD and it then went up to 16. I then had a Cyclo prime before my stem cell collection. I am going to have my transplant after our son’s wedding which is at the beginning…[Read more]

Hi Peter

I didn’t actually loose my voice when I was on CDT, but I certainly noticed a difference. My voice got scratcher and not as powerful. Something I really noticed because I use my voice in preaching and was worried it wouldn’t improve. However, the good news is, it gradually retuned to normal when I finished treatment.

Do hope you…[Read more]

Hi Skinner

So sorry to hear how things have progressed so quickly for your Dad. I just hope you can have some peaceful days this Christmas to leave you with some good memories.

Love and prayers.

Mavis

Hi Skinner

Sorry your Dad has been diagnosed with Myeloma. It would probably better if you start a new thread on “newcomers” so you get more responses.

Take a deep breathe. There is life after diagnosis. I am four years post diagnosis and counting.

Very best wishes to you and your Dad.

Mavis

Hi Maureen,

I looked into this for Phil (although he hasn’t done it yet) and I found a Multiple Sceloris group near us that has one. From what I remember it was not too expensive and anyone could use it. It might be worth checking if there is a MS group in your area.

Megan

Hi Chystal

Please don’t feel angry it’s just that this forum is for people who have multiple myeloma a cancer that at the moment is incurable and terminal therefore any fundraising by our family and friends goes towards research for this cruel disease in the hope of finding better treatments and a possible cure in the future, I truly hope you…[Read more]

Hi

Whilst I feel sad to hear what you have been through I have to agree with Tony this really isn’t the place to start a discussion on this subject and sincerely hope you find the right kind of forum of similar mindset to you to share your interest.

Hi

Whilst I feel sad to hear what you have been through I have to agree with Tony this really isn’t the place to start a discussion on this subject and sincerely hope you find the right kind of forum of similar mindset to share your interest.

Thanks for your reply Linda. I have had the chemo which went well although I was quite sick! Glad to be home now and taking it easy! I am managing the G-CSF injections myself so just waiting until the harvest on 18 Dec.

Best wishes to everyone

Andrea

Thank you very much; It should prevent repetition in giving inmformation to new smoulderers as all the relevant details will be on the one forum /thread
Mike

Hi Rosie

I’m so sorry to read of the passing of your husband Chris. I know your children and family will be of great comfort to you and to help you at this terrible time. Such a lovely picture of your husband – the Glens of Antrim, know it well

God bless you and your lovely family

Jean x

I found they gave my husband the anti sickness pill to near his meal!!!!
If it’s taken half an hour before a meal it settles the gut,so that might be worth trying,and yes some hospitals keep you in until you can hold down your food,Slim just lied!!!! But that was Slim.

Try a piece of pineapple to clear the pallit ,drink anything you can,it’s hard,fizzy drinks helps,it’s just a matter of perseverance .