Not heard anything yet and I know he did the walk and done it in a great fashion 😀
If I hear anything from our dai I will let you all know.

Tom "Onwards and upwards" xxx

Hi Gill and Dave

A warm welcome to the forum, sorry you had to.

Well If I remember correctly those first weeks/months were a whirlwind, plzd ur getting down and on with it as its the only way am afraid.

I was on CTD then had SCT all in December 2009 and doing well now so its worth it 😀
Heavy feet? well Gill ate Daves feet/ankles…[Read more]

Hi Nettie I was asking Tom the same thing. Hope all is ok with him

Love Jean x

You aint done it too easy have you? well its started now its just a sit and wait. Good Luck with it all

Onwards and upwards Tom xxx

All crossed for you all its gonna be spot on, keep well you both and keep us posted 🙂

Love and Hugs Tom "Onwards and Upwards" xxxx

Hi Mary
Your more than welcome 😀 , its a hard place to be this MM malarky and all its treatments :-S but it will be worth it in the end am near 3 years post SCT and drug free 😎 it was an uphill struggle some times but the end result is Tom back to (near) Normal, but after us all going through MM we forget what normal is am afraid.

Stay…[Read more]

Hi Mary

Frank takes the chemo every Monday. He feels off all day Monday but by late Tuesday he is feeling better. It is the Dex that he suffers from. The dose was cut in half but it still takes it out of him. When he's on the Dex he doesn't leave the house for about a week – the chemo – about 36 hours. As you know everyone rects differently.…[Read more]

Vicki I was just thinking about you and Colin this morning. Hope all goes well. Best to Colin. Keep us informed when you can. Hope Frank will be having his soon – 😉 everything crossed
Love Jean xx

Welcome Lisa, sorry you had to join us. My husband I'd just finishing 6 cycle of. CDT with the hope of getting a stem cell transplant. As Peter said the steroids react differently in people and he is right – don't troll the net, I did when Frank was first diagnosed and it scared the life out of me. This is the place to be to ask questions and…[Read more]

Thanks for that Jill. When I saw his legs I nearly had a fit. An elephant had nothing on him!! I remembered reading some time ago on the forum that someone had had swollen feet and legs during treatment. I hope your mum is doing well
Love Jea x

Hi Lisa

Welcome to the site. Hope all goes well with your Dad's treatment.

Best wishes.

Mavis

Hi Polly

You came into this MM battle in a similar way to me although I managed about 17 months before I had to start treatment. I had six rounds of CDT which knocked the PP right back, although I haven't been really cracking since the treatment finished about three months ago. I coped very well during the CDT – hope you do as well. I gave…[Read more]

Hi Emma

Fantastic well done. How is you dad. Hope things are going well for him

Jean

Hi jean,

I forgot to mention that the consultant did prescribe dad with some water tables when they were at their worst, maybe that will help frank? They did go down but he only had a short course. His feet also look quite dry and cracked even though we keep slapping on the cream, saying that towards the end of his treatment his toes were too…[Read more]

hi Peggy

Well all I can say is when we went up to Kings and went through the procedure with a doctor,nothing went as he said,different appointments came through some were done before stem cells taken some after!!!! Must admit i felt as confused as you,we had a similar conversation,after what we were told and what did actually take…[Read more]

Hi Nicola

Thanks for that and I will have a look. I have been massaging his feet with cocoa butter. He is in good enough form today but feet and legs are badly swollen. Frank finishes his 6 cycles of CDT in three weeks and if they suggest more treatment – don't know what he will say.

Hope your dad improvement increases every day.
Best…[Read more]

Hi Polly

Well I had my first BMB with no notice and to be honest it was a lot better than the weeks worry if I had to come back later Lol.
As for keeping the clots at bay I took an asprin every day (worked for me)
You will be fine Polly I worked up till my fourth cycle and had to go on sick for a year, that year took me through My SCT so its…[Read more]

Hi Lisa

Sorry to welcome you here but as you are a warm welcome.

Pain with it?? I have to say I had None except when I was having Bone marrow Biopsy :-/
Was on CTD then onto a SCT and that was 2009 now am drug free and doing well 😀
Its normal to be scared and worried but now your dad has got MM its a road he has to travel am afraid :-(…[Read more]

Hi David
I cant add to it either am afraid, Just wanted to wish you better soon.
Take Care my Friend.

Tom "Onwards and Upwards" x

Hi Jean,

Dad has been off CTD 3 weeks this Tuesday and was terrible the last couple of months tbh. His feet were really swollen and he felt terrible, unable to walk as he was so weak. We put it down to the steroids but ive just registered on here for the Myeloma Matters quarterly newsletter and theres a section in there on peripheral…[Read more]