Phil's last two doses of Velcade were reduced and his feet have not gotten any worse so hopefully the PN will fade over time. As Phil is on the PADIMAC trial he did receive it subcut but I am not sure how high the dosage was. Saturday was his last day of his induction treatment so he now has ten days off and then it is back to the clinic to…[Read more]

Hi Andy

Thanks for your advise and experience which I appreciate, thinking I might bomb it and let my husband do the injections for me as he has done it for himself when he had a dvt

Went to the hospital today thinking I was just signing the concent forms prior to treatment only to find a bmb sprung on me, well did not see that one coming,…[Read more]

hi sarah ,
I am very sorry to hear your news ,altho your back pain in retrospect was unfortunately significant after all.It confirms to me that a MRI of the spine at least should be part of the workup of smm and also performed on annual basis as part of the surveillance programme .Hope tx goes well .Are you having radiotherapy to the spinal…[Read more]

Hi Ali as you say its the fear of the unknown that's scary but hopefully like your mum I will get through it..

Eve I shall not rub the site after the injection and thankyou for the tip

Tom I shall take your advise and take one day at a time.

Once again I would like to thank you all for the advise given today I feel a little more…[Read more]

Hi Mary and Charlie

Am sure the Drug free will come to you two also mine was over two and a half years before I stopped taking them :-/ but well worth the journey 😀

Good luck for tomorrow 😎

Love Tom "Onwards and Upwards" xxxx and the odd glass of Vodka xxx;-)

Hi Vicky

Your More than welcome and I hope you are all going through this as well as you can yes I still think about you all after your Loss.
Take Care and be strong.

Love Tom xxx

Hi Polly

Sorry you had to start treatment 🙁 but my advice would be "Take one Day at a time,rest when your body tells you, and more important use this site to ask complain and have that moan that I know you will have from time to time" but its well worth it.

Keep well and stay strong

Love Tom "Onwards and Upwards" xxx

Way to go Keith, Keep well and stay strong 😎

Tom "Onwards and Upwards"

Hi Mary
This thread is getting so long,it will be a record soon,IF you sign in and go to the section you want example General or Carers.Scroll right down to the bottom and you can start another discussion.

Mary Slim had a good few infections you will get use to it,first sign of low blood pressure or temp or just not very well,ring the…[Read more]

Hi Ali

Tell your mum not to rub the site after injection,this is what causes the bruising,try not to touch it,hold the tummy firm,and make sure ,to use alternative sides.

Slim has very little flesh,but never had bruising only the flesh getting a bit hard.

Polly I know it,s hard,I make a better carer than patient,I know all the theory but…[Read more]

Hi Eve and Jean

Thankyou so much for your kind welcome and advise I feel a bit more easy by the need to have the injections given the side affects of clots which sound nasty.

Eve I am so sorry to hear of your husbands experiance with the clots but please be assured your advise has been a big help to me.

Jean I so look forward to that…[Read more]

Hi Sarah Jane

So sorry to hear your news. I will be thinking of you and your family and wish you all the very best with your treatment. I am sure there will be lots of support, help and advice here for you. I am still under 'watch and wait' and am attending the Cardiff info day with my husband and son soon.

Take care

Andrea
xx

Welcome to the site Polly. My husband is on his 6th cycle of CDT. He injects Clexane every morning. At first it was a bit of a hassle for him but now it's 'old hat'. I hope things go good for you. Do keep in touch to Let us know how you are getting on

Jean

Hi Polly
Well my advice is to go on the trials,you will be randomised for CDT or CDR first one is standed treatment second one is a new version,both available as first treatments.It is the Velcade which is second line treatment that is important,Velcade at the moment is second line treatment that is still under trials,so could be with drawn,but…[Read more]

Hi Chris

Just want to wish you all the luck in the world for tomorrow, will be thinking of you. You will need the rest after the rest after the weekend you've had!! Good luck and the best of wishes

Love Jean x

Hi Helen
It's the dam Dex that is causing the most problems. He is ok when he takes it but when he stops he's not on the same planet as the rest of us. His Protein is still at 2 and this is supposed to be the last cycle. He said if its necessary he will continue with it. That really surprised me. Am phoning the myeloma nurse on Wednesday. She…[Read more]

Hi Vikki

Have you got a new date for the SCT. hope you are both bearing up. Love the photo

Helen glad to hear the whooping cough is getting quieter. I remember one of my boys had it and it was frightening listening to it. Keep getting better
Love Jean xx

Hi Kevin
Just come on to say good luck with your SCT,it is hard going but like most things you will feel better just takes some time.Eve

Hi jean

PP levels definitely don't need to be zero…they were going to do mine when mine were at 28 still!! And they had only halved from 50! I am pleased that I got down to 8 when I had my transplant, but 0 definitely shouldn't be a requirement. They probably just want to check he has plateau'd before they make the decision…but I would…[Read more]