Hi Ann

Last I heard he still had that pesky infection but was out of hospital. Tom has been in touch with Janet so he will be able to tell us more when he finishes work

Love Jean

What great news. 😀 You both had a terrible battle but YOU WON. Come on SCT!!!. My best wishes and good vibes to you both. Have a great weekend
Love Jean x

Hi Mary

Am pleased Charlie is home and am sure he will stay at home for some time 😎

Its a roller coaster ride getting treatment for MM it has its ups and downs am afraid 🙁 but its as we say Doable 😎
Give my Best to Charlie and wish him well, tell Charlie mine also had its ups and downs but after this lenth of time I (and he will be…[Read more]

Hi Mary well it is an Uphill struggle 🙁 but it will be worth it am sure, they will find out why and sort that out so as you also say Onwards and Upwards, Stay strong and stay focused.

Good Luck on the road to remission.
Love Tom "Onwards and Upwards" xxxx

Hi Peter and all

I lost all Hair cept my eye lashes but I gould feel those falling out as the time went, but me I was balder than a Coot (if a coot is bald??)
so no more nasty Nose hair nor ear hair that needed trimming lol

Nettie I trid the The L'Oreal oil and it was great folk could see the shine in the dark Lol.

so for all of us that…[Read more]

Hi Peter

Well I felt like I had Flu a few days after my Zometa aches and Pains you know Like flu, it soon passed then after a fair few month my veins fought the needle each month and used to play hard to get and when they did find one and blood was flowing it would Collapse and Nurse (bless) would have to have another dig in Lol.

Go ahead…[Read more]

Aww you two thats great news 😎 And just to let you know I had a few tears after reading your Bags are Full, am that happy for you both I cant smile wide enough, but i am gonna have a vodka for you two.

Love Tom "Onwards and upwards" xxxx8-)

Hi Louise

Hope its all sorted now and i wish your Dad Luck in the treatment that has been given, it will have its rough days but it will be well worth it

Tom "Onwards and Upwards" xxx

Hi Louise,

I created a spreadsheet for mum with each drug, then morning, lunchtime and evening- and how many to take. Mum just ticks it off when she gives them to him. This has also been helpful if he had any hospital visits so they knew exactly what he had and when. Its all very confusing to start with but is actually quite easy once you get…[Read more]

hi mary
Bortezomib .a relative new agent that is likely to become a first line therapy in combination with another drug ( ?lenalidomide ) and it is a back up therapy in the x1 trials (i think?) . Given by intravenous infusion but now can be given by subcutaneous injections , does not cause venous thrombosis unlike thalidomide or lenalidomide…[Read more]

Hi Mary,

The consultant said it could have been caused by the chemo as it wasn't there before but apparently it is quite common and the chances of it happening increases with age. Dad is 73 so I guess we'll never know. I think even if you are on the trials the health of the patient is always priority so if Charlie is unwell I'm sure they will…[Read more]

Hi Kerry

Welcome to the site,14 years is a long time,so your mum is doing very well.

What little I know about Zometa is Slim having a tooth out,was not a problem just had to be 2 weeks clear of having Zometa,told only 1%| of people get osteonecrosis very rare,so nurse or computer your best bet.I do know as time goes by Zometa does not work…[Read more]

Hi Helen

I was wondering were you were,good holiday shame about chest infection,i think there part and parcel of having a SCT,leaves your immune system so low,I think with winter coming on,I might just dose Slim with vitamins although he will moan about more tablets.

I enjoyed Venice when we went,but not to Slims taste hated the queues,went…[Read more]

Vikki and Colin

Great news and tomorrow there will be loads more of the little blighters 🙂 good luck for tomorrow will cross everything

Love Jean x

Hi Mary,

My dad had been on CTD for 6 months and had blood clots in both his legs quite early on which they said was caused by the Thalidomide. He now has fragmin injections in his tummy every night, then a couple of weeks ago he had chest pains too and we took him to hospital to get checked. The ECG showed an abnormally fast heart beat called…[Read more]

Hey you all hope you dont mind me tagging in here to wish you all the best for the SCT xxxx

hi mary .
I think that is a step in the right direction but understand your frustration.
mike

Hi Vicky and Colin,

Dad has a chest infection and been prescribed strong antibiotics. He's not been too well all week so I'm hoping they will kick in quickly and make him feel better. We saw the consultant today and he has been pleased with his progress but could see how much he is suffering. They wanted to give him another couple of months on…[Read more]

Vikki sending you loads and loads of positive vibes for tomorrow. Thoughts and prayers for Colin. 🙂

Take care
Locke jean xx

Hi Kerry try this
http://www.myeloma.org.uk/patient-services/ask-the-nurse/

this should open up a page on here so you can ask the Nurse.

Hope it works

Love Tom xxx