Hi Tina
Well that is good news,it means by Christmas you will be home and recovering,have to get your christmas presents before you go in.

Slim was sorry he did not take a mug for tea in with him,so if you have a favourite,I would take it in.It will be over in no time,ask any questions you want about the SCT more advice you get helps you to…[Read more]

Hi Tina

That is brilliant news. I'm sure you will look great in your wig. Best of luck
Love Jean x

Im used to preducative text lol!!

Thanks for your email address, its always good to be able to talk to people in the same situation. Dads email is mbba15721@blueyonder.co.uk if you wish to ask anything about Frank too. Dad is checking his emails but wont be able to type much of a reply but his "secretary" (me) will be able to answer on his…[Read more]

Hi Mary

Well everyone is saying the same you will get over this hurdle,as for felting the garden shedddddddddddd,he is going to have to slow down a bit.:-P

Mary I never take pills,but at one stage I found my self tearing a piece of a complete stranger,so that little white pill keeps my emotions under control,nothing worst than crying or…[Read more]

Hello Ann,

Dad is on his 6th cycle of CTD and has really painful fingers and toes which I think is related to the Thalidomide. His ankles and feet were also swollen but since being given water tablets are so much better. He did have a chest xray but that was all clear but reading the side effects of the steroids I think they may play a part in…[Read more]

Hi Mary i'm so sorry that Charlie is having such a terrible time and wish him a a quick recovery. I used to say "the light at the end of the tunnel is another blo**y train coming. But it's not its a light. Come on rant, rave and scream if you want , most of us have been there. As Vicki says take care if yourself

My best to you both
Love Jean…

Hi David
IF you can get a PET scan out of them,it will show any form of Cancer outside of the bones,but they cost a lot of money.
I do not know how they will decide if Slims is coming back as they have told us only way is BMB.
Have another holiday ,then you might forget about the 3 months again.Eve.
Dai is very quiet anybody know if he is OK?????

Hi Mary

Sorry to hear about Stan,Slim was about 4 cycles on CDT,when he was rushed into hospital with septic pneumonia ,9days ITU 22 all together in hospital a weeks rest then back to next cycle tough but doable.Lot of damage to lungs holes and mass blood clots,only to be told at end of 6 cycle it had not worked and his condition was worse,then…[Read more]

hello Ann

I had swollen ankles and got really numb toes while havig CDT I think it goes with the territory toes are better now but still a bit numb on the two outer toes on each foot hope all goes well for his SCT
love Jo

good news David

heres to the next three months my Para have been 8 since last sept all other bloods ok so no panic yet
Keep well
Love Jo

Hi Mavis,

I'm sure your body is still recovering from all those nasty drugs and it will take a while for you to get your muscle tone back. Dad has lost loads of muscle in his legs where he is so weak most of the time and I'm sure that will take a good few months to start building that up again. I don't think dad is having a sct but this…[Read more]

Hi "Ramos"

Welcome to the forum – I do hope you find it the support we all do.

I'm glad to hear that you are not having any treatment at present, but was surprised that, as your problem started in your back, that you are not having pills or infusions for bone strengthening. Has this been mentioned to you? In the nearly 18 months I wasn't…[Read more]

Hi Nicola

Just caught up with your thread about your Dad. My greetings to him. I finished CDT about two months ago and still feel very tired although all my readings are now down. I have been disappointed that I wasn't immediately feeling bouncing about once the treatment finished. In fact I have felt worse. However I went to see my new…[Read more]

Nicola Sorry about that txt – this predictive text can be a curse. After I re read it I wondered how you could understand it!!! Frank at last is feeling good. He even made breakfast this morning. Takes the chemo on Monday and he feels bad for about 18 hours. He was taking them in the morning but changed to take them at night so he could sleep…[Read more]

Hi Jean,

I read your post to dad yesterday and he was quite relieved that how your husband described the effects of the steroids is exactly how he feels. He said he can feel them taking over his body, he agreed with the alien lol!! He had quite a good day yesterday but is on steroids this weekend and knows what's coming this week. It has to be…[Read more]

Thanks Vicky. I wish dad could get on here and chat to people who are going through the same as he is, we all sit on the side line knowing he's feeling bad but can't do anything to help. He has quite shaky hands at the moment which is made worse by the steroids and typing wasn't really his strong point before!!! I've been reading these replies to…[Read more]

Hi Ann

Re swollen ankles yep I got those, numb toes well let me tell you I have in the past the most sensative toes ever, that bad i could not cut my onwn toe nails so my young bride used to cut them and had to sit on my legs so i didn't pull away Lol, but during CTD toes went numbe (still are) to me it feels like my socks have slipped down and…[Read more]

Hi Cathy
Nice to know Ivan is on the mend,time for you to take a rest before the hard work begins at home.
It is hard for them to eat and drink,there taste buds are non exsistance,takes a long time for the gut and bowels to regain any order even months after Slim is occasionally sick and bowels controlled with powders,its so easy to get blocked…[Read more]

Hi Ann
swollen ankles and numbness are some of the symptoms,both will go with time.
You can buy socks that have more give at the top to make it easier to get them on,he needs to keep his feet elevated when sitting,i use to use coco butter milk from boots and massage Slims feet it does help with the feet being swollen.Helps circulation .
Eve