Hi Jennifer

Welcome to the club no one wants to join. My husband has SMM for 6 years. MM diaganosed while looking for something else. Frank was monitored every 3 months and his PP rose to 34 ( I think). Lesions were found in his ribs but radio therapist decided radiotherapy not necessary but consultant decided that treatment was necessary so in…[Read more]

Hi Andy

Sorry your journey is proving a long one, but at least you are bashing those PPs down.

Keep up the good fight. We are all rooting with you.

Best wishes.

Mavis

Congratulations Wendy!

May this be the first of MANY MM free years! Thanky you for being ready to share your experiences.

Love Mavis x

Wendy,

Happy Anniversary 🙂

It is lovely to read good news on the site. It helps people like me who are at the start of our MM journey, my husband Phil was diagnosed in May 2012, to stay positive.

Megan

Hi Gill,

My husband Phil was diagnosed in May 2012 and he started receiving Zometa injections every three weeks after he had a dental survey. He is on the PADIMAC trial at St. Bart's but I don't believe we have been told how long he will receive the Zometa injections, I assumed that it would only be as long as he was receiving chemo, I will…[Read more]

Hi All

Frank is due (all things going well) for SCTin the new year. I went to a meeting last week on SCT and to be truthful at the time I was sorry that I went. I felt i got more info from the forum and in a more encouraging way. The one thing I did get out of it was, there was a man who had a SCT 3 years ago and told us what it was like – it…[Read more]

Hi Andy
Stick with it mate because it has taken me 3 different sorts of treatment in 12 months to get me to and through the SCT.They will get you to a point where you are ready for SCT.
Enjoy the lakes and maybe a Guinness or two?
cheers paul

Hello Amanda and Bob
welcome sorry you have had to join must be a big shock for you both you will get all the help and information you need on this site with many friends to support you keep in touch
Love Jo x

Hi Eve & Slim
Fantastic news! I bet a large weight has been lifted from both your shoulders.I hope you both have a fantastic holiday:-) 🙂
cheers Paul

Hi Amanda and Bob

Welcome, I hope you get out of this site what I have over the years 😎
Let us know where Bob is being treated as am sure we will have some in here that are have been treated their and can give you more advice.

Ask away and hope your road through the MM is a smoth one.

Tom "Onwards and Upwards" xx

Hi Bill

Just been catching up on site and noticed your posting.

I do not know about infections with Revlamid but I do in general once you start chemo,you do have more chance of infection as your body is at low ebb so more prone to infections.

My husband contacted Septic Pneumonia,that put him in hospital for 22 days 9 in ITU ans left him…[Read more]

Hi Ali

Thank you for your lovely message. It's good there are so many people here to share experiences.

love
Andea xx

Hi Amanda and Bob

I am sure you don't want to be here but your are both very welcome. Feel free to rant (it's great to get things off your chest) but you will get great support, help and advice. They are a great bunch of people here who you will meet over time. Take care and best wishes to you both
Jean

Hi Jo
I was so fed up with not having a break,and waiting on the results,I thought good or bad we will do something.So we went to France in the Motor Home only down to Le Treport,came home Thursday,saw consultant Friday,had booked a last minute cruise last week to the Fjords in Norway,leaves Dover Sunday just 7 days,So happy days.:-D 8-)…[Read more]

Hi Amanda
Welcome to the site,this site can help in lots of ways,at the moment both of you must be in shock and information coming out of your ears.
As your husband starts this journey,my husband has just finished the first part after having a SCT and is in full remission.which we hope to enjoy for as long as possible.8-)

My husband is on…[Read more]

Hi Andy

keep up the good fight I am sure you will get there in the end I hope you enjoy your holiday in the lakes i hope you can relax for a time it will do you good
Love Jo x

Hi Eve and Slim

what wonderful news its just what we all want to hear so there is light at the end of the tunnel Have a wonderful holiday where are you criuseing
to somewhere warm I hope we have booked a holiday in Majorca going for 10 days. I hope you will keep in touch and not be a stranger to us
Keep well both of you
love Jo x

Hi Mari
I have not been on for a while and you soon loose touch with present day situations,so I did not know how things were going.its a pitty it was not done during the school term as this would have been far better for you,but who gives a s–t about the patients not the men in the grey suits,they do not even give a s–t about there staff,It…[Read more]

Dear Gill

My thoughts and prayers are with you and Stephen at this time. Gill, Dai, Eve and Tom have said it eloquently, I am not good at words, but I just wanted you to know that I am thinking about you. I have followed your and Stephns journey with this awful disease and you have been there for me and many others and we are here for you. You…[Read more]

Hi Andy
I would love you to come on here and say my pp are down I can look forward to SCT,and I can understand your frustration,Slim has taken a long time to get were he is now.We have the added problem,that month by month we could not tell if it was working,only the BMB were giving us a true reading,with the experts telling us this is very…[Read more]