tom replied to the topic Not Looking Good in the forum End of Life and Grief 13 years, 10 months ago
Hi Gill and Stephen
You know i am so sorry to hear that Stephen is still having problems,I hope the Top man can work some magic and cure the pain that Stephen is suffering.
I love the way you go out and eat at a "Not Posh" one £7 is a lot of money these days Lol and am pleased you can still get out.
I bet you love that Wee room where you…[Read more]
tom replied to the topic My Mums SCT in the forum Treatment 13 years, 10 months ago
Happy Birthday Ali hope the sun shines for you all Today
Love Tom and Elaine xxxx
jmsmyth replied to the topic And the GOOD news is in the forum Off topic 13 years, 10 months ago
Dear David
I'm so sorry to hear your news but if anyone can kick it into touch, you can. Hope treatment does the trick. VASBYTE
Much love
jean xx
OutdoorsPaul replied to the topic Dad's SCT in the forum Treatment 13 years, 10 months ago
Hi Chloe
My consultant began the process of looking for a match once we knew that this was the route i was to travel.I dont know how long it took really but it did not seem that long,sorry could not be more exact.
take care Paul
Dizzyliz replied to the topic And the GOOD news is in the forum Off topic 13 years, 10 months ago
Hello David,
So sorry to hear your news, hope the new treatment does the trick and zaps it good and proper!
Will be thinking of you, fingers crossed!!
Love liz & kev xx
Dizzyliz replied to the topic Not Looking Good in the forum End of Life and Grief 13 years, 10 months ago
Hi Gill,
Don't really look on this post too much but every now and then and I've just seen your post! I am sorry to hear Stephens not doing too well and I hope this treatment will soon kick in and start to relieve his pain.
Always thinking of you both much love
Liz & kev xx
BADGER replied to the topic And the GOOD news is in the forum Off topic 13 years, 10 months ago
Dear David
so sorry to hear your news you sound a strong person so i am sure you will come out the other side
love jo x
BADGER replied to the topic Bendamustine next in the forum Treatment 13 years, 10 months ago
HI Scott
so sorry to hear you have relapsed already that a bit of a blow I have been reading about bendamustine i think you are lucky to be on a trial they have had really good results in America so it all sounds hopeful fingers crossed for you dont let it interupt your golf try and keep well
love jo x
BADGER replied to the topic New member in the forum Newcomers 13 years, 10 months ago
Hi Ali
welcome to the site sorry you have had to join it must have been a terrible blow to you both this site is wonderful for help and advice and as for the DEX we have invented a new word here for it DEXITUDE I think most people find this drug hard to deal with but at least it usually has the desired effect on the beast called Myeloma good…[Read more]
tom replied to the topic And the GOOD news is in the forum Off topic 13 years, 10 months ago
Hi David
Well you just had to go one better 🙁 am sorry you have got "Advanced" Prostate Cancer I do hope the NEW Drug regime goes well My Friend, you will am afraid have to Vasbyte that little bit harder. all crossed for you David Keep strong.
Tom "Onwards and Upwards"
Ps I had a work mate (still got him but he has retired) who had…[Read more]
jmsmyth replied to the topic Not Looking Good in the forum End of Life and Grief 13 years, 10 months ago
Dear Gill
I am so sorry to read your post. You both have been in my thoughts and prayers. Stephen is having a terrible time and it must be so difficult for to watch him in so much pain. I hope that the Wizards magic kicks in soon and Stephen gets relieved of his pain soon. I am not good with words Gill, but please know that you both are in my…[Read more]
tom replied to the topic SCT… update in the forum Treatment 13 years, 10 months ago
Yes Anti Sick Pills as often as you can have them make sure you always have them Etta, and forgot "Mouthwash" use it everytime you go to the bathroom and when you fell "Just fed up" take a walk to the bathroom and use the mouth wash when its empty they will give you some more 😎
[u][b]Mouthwash and Anti sick Pills[/b][/u] at all time…[Read more]
tom replied to the topic SCT… update in the forum Treatment 13 years, 10 months ago
Hi Craig and Etta
And Etta will sleep loads later on and as for the sweet corn I could taste it everytime the bag that was put on got into my system that will pass in a few days.
Give Etta My love and a little hug and tell her that whatever happens and how rough it gets she wil get better.
Hope its a smooth one.
Tom "Onwards and…[Read more]
OutdoorsPaul replied to the topic Dad's SCT in the forum Treatment 13 years, 10 months ago
Hi Chloe
By meaning "mini SCT" and looking for a match I presume your dad is having what is called an Allo graph transplant.I am going forward for my allo graph within the next 6 months and an excellent match has been found for me.You should get an apt with the consultant heading the team to discuss the procedure and answer questions.My…[Read more]
jmsmyth replied to the topic New member in the forum Newcomers 13 years, 10 months ago
Hi Ali
We are just coming to the end of the third month and don't get me wrong it is tough but as others say (I hope) it will be worth it. Frank takes the Chemo tablets every Monday. He was told to take the in the morning but they made him feel anxious and 'funny' for about 18 hours. So on Monday week ago he decided to take them late on…[Read more]
tom replied to the topic Nearing the End? in the forum End of Life and Grief 13 years, 10 months ago
Hi Mavis am saying nowt re Men as I think nay know we are all great 😀 😛 :-S and spend on whatever you young ladie's feel you need Much Love Tom he he xxxxx 😎
tom replied to the topic New member in the forum Newcomers 13 years, 10 months ago
Hi Ali
Sorry you and Hubby had to join us motley lot 🙁 but you will find us warm/welcoming and more importantly friendly and informative 😎 (cept me am thick lol)
The Dex is a great drug for most of us and for all of us its the little devil as a small pill.
Hope you all go through this MM journey with as little problems as can…[Read more]
jmsmyth replied to the topic New member in the forum Newcomers 13 years, 10 months ago
Hi Ali
Sorry you have had to join us but this is the best place for support, to rant and for friendship. My husband is just starting his 4th cycle of CDT and the withdrawal of the Dex is by far the worse. His consultant tried to wean him off it, but for Frank, it just prolonged the withdrawal, so back to cold turkey. His first month was the…[Read more]
mhnevill replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 10 months ago
Dear Vicki and Colin
All best wishes as Plan B looms.
Mavis x
mhnevill replied to the topic Bendamustine next in the forum Treatment 13 years, 10 months ago
Dear Scott
All the best as you go down this new route. I always feel grateful to those of you who are trialing new pathways before the rest of us.
All best wishes for all those trips to hospital!
Mavis