Dear Gill

What can I say???

Reading between the lines I have been waiting for you to post,as you say in denial,but it keeps you going,if it did not everyone would give up at the beginning,and at the end of the day Stephen and you are fighters,but some times enough is enough,it's being able to see it and accept it.

What matters now is…[Read more]

Dai what is it with you and week ends? Bless it always happens at w/ends.
Hope it soon settles before the 5pm mark? and that aint long now??
Good Luck Dai

Tom "Onwards and upwards" x

Hi Ali,

Glad to hear your mums sct went well, she sounds like a very strong lady and a good sign that she is managing some food.
When kev had his he didn't eat until he got home and then it was little and often, but the one thing he took was the anti sickness tablets / mouthwash which did the job but he did sleep for Britain! The staff on…[Read more]

Hi Judy
I am sorry about you husband,you do not say much in your posting and have seemed to carry this burden with your family,but your husband was one of the Myeloma victims as well,so my thoughts on what you have endured go out to you.

I replied on Teresa,s thread because,you did not put your own,thread on,and I can only guess that you are…[Read more]

Hi Chris

Its sad we do not have something like the Myeloma Beacon Survive,s Site,
then we would know how many people are doing well after so many years the longest I heard about before you was 18 years,lots of 10 to 12 years and still going strong.

When I am feeling a bit down,and I am only the carer,I go to the American site,and it makes…[Read more]

Hi Teresa

How are things going,I should imagine the last few days have been very busy,I do hope you have had time to look in here and realise how many people have you in there thoughts.

Take that walk down the garden,I hope it will bring you some comfort,look forward to the grandchild Peter would want you to find that strength,Love Eve

Hi Ali

Your mum knows her own body best,but I would impress on her about taking anti sickness pill 15 min before she eats,mainly because once you have been sick with a certain food,it puts you off it for a long time,so a food you enjoyed becomes a food that made you sick:-( Love Eve

Hi Nicola

Good Luck for your Charity Event am not sure if I am Local as I dont know where it is going to happen??

Love
Tom xxx

Hi Carol

Am Pleased that on both things 1) you are doing great after your SCT and 2) you know that you cant do as much as you used to, and i think that is the hardest thing "the not being able to"?.

And Happy New Hair Brush 😎

Stay fit and well Carol.

Love
Tom"Onwards and Upwards" xxx

Hi Eve and Slim

Am pleased to read Slim is getting better, and trust me you never stop the worry when you have been told you have MM Eve its something that we all have to cope with these days.
Slim will be better when the line is removed less to get infected so thats good 😎

Hope Slim is up to going on the train to London as it will make…[Read more]

Hi Everyone

Well Slims getting there,as he improves I worry less,will be happy once he has BMB and results as we have been told this is now the only way to tell how the myeloma is in the bones:-P so it will always be a bit of a worry.

He has his line out on Monday and Wednesday it,s up to London never ending'

We thought once the 2 days…[Read more]

Hi to you all and to Charlie(welcome to this lovely support group) for starting the discussion.
Haven't been on for a while as am in the phase of recovering from stem cell transplant 14 weeks ago. It is an interesting journey but have learnt to take it slow, especially as the SCT slowed down the recovery I was making from a fractured leg last…[Read more]

Good luck ANdy….really hope you get some answers and a good plan for you.

Will keep an eye out on fb for how it goes!

x

Chris, that is amazing news and like the others say, thank you so much for sharing your great story.
I don't think any of us find it easy to think that we have 20 years ahead of us….I try to be positive, but at the back of my mind is that it is very unlikely. But stories like yours are so important for us to hear so that we start to REALLY…[Read more]

Hi Dai
You sound like my grand daughter,her exercise is keeping her eyes open to watch the Olympics.:-)Eve

Hi All

Penny watch out for the Dex as it can hide infections,its no fun if it gets serious.As for AA there has been a big discussion in the new comers section,might be worth a read.

John I am amazed you are working at all,with that combination of drugs,but if need must you always find away,when you are self employed you cannot afford to be…[Read more]

Hi Ali
Well this is it,no going back now,your mum went into this being very strong,so you keep your chin up and keep her spirits up.

If your mum keeps being sick,and cannot keep tablets down they will use a driver,her throat is the first thing to get sore and as Tom said mouth washers as much as possible,saying that Slim could not do even…[Read more]

Hi Wendy
Bit of a Bummer after such a nice holiday and to come home and have your kappa light chains going up.

As to having to wait a couple of months to find out what is going on,to me is all wrong,but saying that Slim is in the same boat,for a long time now the bloods and kappa light chain test have yielded results that have nothing to do…[Read more]

Hi All

Wish I had known about that med for hiccups ,had Slim doing it in his sleep,drove me mad,now it is just every now and then usually when we are out,and things are very quiet,and out of the blue one loud hiccup and the whole world turns round.:-P Eve