Hi Dai
I can only comment about when Slim was on CTD,then VCD.
No outward effect at all,never even put on weight,but as you know taking large doses did disguise infection,and made him think he new best,insisting he was going home,when he was on his way to ITU!!!
Once I new how they effected him,I was able to relieve some of his side effects,by…[Read more]

Hi Dai
We are new to the Dex. Frank is starting the 3rd cycle tomorrow. He is ok while taking the Dex (touch wood -has been first 2 cycles). His problems starts when he stops. First cycle he was off the planet for about 4 days. On the second cycle consultant suggested that he was weaned off it – that did not work as he was off the planet for…[Read more]

Hi Mike

Like everyone else I am sorry you have had to join us, but take encouragement from us "oldies" that as diagnosis isn't the end of the world.

It is interesting that, at the moment, a lot of folk seem to be being diagnosed because of back problems. Do take care. I am glad your boss is being sympathetic, especially as the majority…[Read more]

Hi Dee
Just popped in to say hello,and wish you well.

I cannot help you with this there are a few people on here who have had kidney problems,I think there is a chap in the west country,who plays in a band,I know he had SCT even though he was having treatment for kidneys,if i am right he went on to have a machine at home for his kidneys.So do…[Read more]

Hello Joe
Glad to see you are getting on with your life and hope you are not working to hard at uni,that is what your mum and dad would have wanted for you,how is your mum coping,bet she misses you both.!!

I hope its your mum cheering you on at the finishing line,and remembering your Dad,Its very hard the first year,so keep your chin up and…[Read more]

Hi Mike

I remember that feeling of limbo very well. I think a lot of it was shock in my case and I used to feel sick with worry for a week before every appointment with my specialist – as things settle down though and we got to learn more and more about what was going on we got into the routine and things seems less chaotic.
Please don´t…[Read more]

Hi Dee

I am sorry to hear your dads going through a rough time with the treatment, I do hope your dad isnt giving up and am sure its hard for you all at this time.

Stay Strong not only for your Dad but yourself.

Love and Hugs to you Both

Tom "Onwards and upwards" xxx

Hi Vicki and Colin

Well thats a bugger am sorry to hear Colin didn't get any 🙁 but I know its easy for me to say but dont worry it will all come to fruitition soon, they just wont stop and it all adds up and will stay in the blood stream waiting for the rest to mobilize 😎

All the best and hope the little blighters are soon out.

Love…[Read more]

Hi Vikki
Hope Colin is home and resting,I think we all go a bit over the top when we realise,some one you care about could become seriously ill,so we do are best to keep everything clean.It is a bit of a worrying time,just do your best,and make sure food is thoroughly cooked.Love Eve

Hi Vicki your more than welcome 😀 gosh I wish I could Blush?? Lol.

I hope Colin got home today? as for the paranoia about infection and stuff I went out and about the same week I came home after my SCT and folk knew not to come near me if they were diseased ha ha.
Keep fit and rest often Vicki am sure you need it also

Love and…[Read more]

Hi Charlie

A warm welcome this site is now yours so use it when you want 😀

I know nothing of the trials I was Diagnosed in Jn 09 had 5 Sessions of CDT then straifgt into SCT and now am pleased to tell you I am still in remission 😎

Good Luck in your Road to Remission.

Great Photo BTW 😉

Tom "Onwards and Upwards" x

Hi Pilgrim!

I'm also IgA, but not Bence Jones. Though I do take the FLC test now and then and my ratio is higher than normal but not by much. Have you had a bone marrow biopsy? I got too stressed about not knowing when I was first MGUS labelled and did the BMB which showed I was smouldering.

Bella

Hi Jane!

So you also experience variability in paraproteins. I don't get joined up appointments but my consultants are very aware of the other disease and the other consultant. My hospital has fast track for new RA cases – took 2-3 weeks I think, but I know they have this as a special thing.

Bella

Hello Joe

what a brilliant thing to do i know your dad will be with you every step of the way and though your whole life he will be the angel sitting on your shoulder
Love Jo x

All the best Paul for your SCT. Good luck and good vibes are with you. Glad you were able to get away for a dew says.
Love Jean x

Hi Paul
It might seem like a long time to you,but if you look at the big picture its just a blip,I think you will sail through you are young healthy and fit,but do not forget to listen to your body.

As Debs says its not a walk in the park but it,s do,able.

The hard work will be when you get out,mind over matter,but you will do it Paul,Good…[Read more]

Hi Paul great news M8 good position near ready for transplant 😀 I had my collection in Leeds Seacroft Hospital I think it was.

Good Luck with it all

Tom "Onwards and Upwards" x

Hi Joe
Great Job M8 I hope you run it in record time. I am same as you your Dad will be with you all the way

Tom xx

Great news Paul
after all the set backs you are ready to go I wish you the very best of luck for now and the future
Love Jo

Hello Charlie

welcome so sorry you have had to join but you will find such help and support here I would not have got through many times without it I cannot tell you about treatments except CDT many are not open to me as MM caused me to have real failure it has worked quite well for me as a stem cell transplant is not an option for me. I have…[Read more]