eve replied to the topic New Need to talk in the forum Carers 13 years, 11 months ago
Hi Teresa
I know this is a hard time for you and your family,I hope you have a palliative care team,coming in to help you.
I can only send you my best wishes,and hope you achieve those small goals,that you talked about.Peter has a goal with the grandchild on the way.
Love Eve
eve replied to the topic Proper fed up… in the forum Side-effects 13 years, 11 months ago
Hi Dai
Well in truth you have been here before,and you know the routine,but you know you will get over this little hurdle,you both sound if you need a bit of a break and some pampering!!!!,can you do anything about that, I know as a carer how much it takes out of me,some times I just want me time.years ago i use to cook for England,I realised…[Read more]
eve replied to the topic Tickets for Wimblendom in the forum Off topic 13 years, 11 months ago
She did Dai
They had excellent seats and said it was well worth going.
She phoned tonight to tell me she has won a holiday for 2 for I week to the Bahamas,adults only with a choice of 3 islands,Her husband did not believe her,thought she was joking as she never thought to tell him she had entered .
Someone up there is looking after her.
jmsmyth replied to the topic Smouldering myeloma in the forum Newcomers 13 years, 11 months ago
Hi Beverley
Welcome to the forum. I'm sure you don't want to be here but they are a great bunch of peeople on here, you will get support, info and friendship. My hubby was diagnosed with smouldering myeloma 6 years ago and just started treatment last month. Come here and ask any questions, they are a very knowledgeable lot.
Regards Jean
BADGER replied to the topic Tickets for Wimblendom in the forum Off topic 13 years, 11 months ago
Hello Eve
nice to hear from you we are going to the IOW next week with Hazel and Adam
so get the wellies out! The next London info day is in Oct so hope to see you there regards to Slim:-)
Love Jo x
BADGER replied to the topic Proper fed up… in the forum Side-effects 13 years, 11 months ago
Hello Dia
Sorry you not been well again I am most impressed with that GP lets hope you can see him when ever you go to the surgery next hope you feel better soon:-)
Love Jo
Dizzyliz replied to the topic Update on kev's treatment in the forum Treatment 13 years, 11 months ago
Hi Tom
You make me giggle, I've passed on your wise words to kev he's half asleep but managed a smile and said " anything for a quiet life " I wasn't giving him the eye honest, you have to laugh.
Thanx Tom you always put a smile on our faces
Take care liz & kev xx ๐
tom replied to the topic Update on kev's treatment in the forum Treatment 13 years, 11 months ago
Hi Liz and Kev
Great to see the lights are getting dimmer ๐ and to be honest its the chest that has been my downfall since I started my treatment (and I stopped smoking?)
Note to Kev, "You and I know that our young Ladie's know us better than we know ourself, so I suggest you follow my lead:::and do as you are told I do lol" keep up the…[Read more]
tom replied to the topic Start stem cell in the forum Treatment 13 years, 11 months ago
Aww Etta you tight devil not even parting with your stem cells, go on girl let them have them I promise they will give them back to you soon ๐
I had a Femoral Line done for my bits (in the groin) and am sure thats the best thing to do as it seems to me to get less infections or problems.
Etta did you have a Nurse with you all the time you…[Read more]
tom replied to the topic Proper fed up… in the forum Side-effects 13 years, 11 months ago
Hi Dai
Well what a game and a half you are having ๐ but am pleased you are getting the treatment you should be having.
I know that Anti Biotics shouldn't be given out willy nilly but us MM'ers need them to be given at first click of an infection.
I also home you are "Tickety-Boo " by Wednesday and for longer.
Keep well My…[Read more]
Dizzyliz replied to the topic Proper fed up… in the forum Side-effects 13 years, 11 months ago
Hello Dai
I'm glad you got yourself sorted at the GPs the clinic toady was very very busy! I've had to go back to pick up kevs ABs over a two hour wait was not good, after being in clinic for nearly 3 hours kev had had enough, hope the ABs will do the trick Dai and you are feeling better soon!
Take care liz xx
eve replied to the topic Post SCT Sickness in the forum Side-effects 13 years, 11 months ago
Hi Gary
Slim had his SCT on 13 may and came out Ist of june
He still takes ante sickness pills used to take Ondansetron but known to make you constipated,so now on Domperidone he was given 2 months supply by Kings,he takes them 30 min before meals,but does eat in between mealtimes.
If your sister is having all this and is still being…[Read more]
Dizzyliz started the topic Update on kev's treatment. in the forum Treatment 13 years, 11 months ago
Hi all,
Just thought I'd give the latest on kevs velcade/ dex, he is on cycle 3 starting tomorrow after attending clinic this morning kevs light- chains have gone from 4,800 to 1,400 which is good news, although thie last couple of weeks he's not been well, coming down of the drugs don't help, he as a chest infection so on antibiotics, he also…[Read more]
tom replied to the topic Good News X Two in the forum General 13 years, 11 months ago
Thank You Teresa yep that girl did well ๐ and the four month stint is great especially when he said I know it a long time but you know where we are if you need us ๐
And our Grandkids are getting us fit Lol
Love
Tom and Elaine "Onwards and Upwards" xxx
tom replied to the topic Start stem cell in the forum Treatment 13 years, 11 months ago
Hi Etta
Hope they got enough in one sitting ๐ I hate seconds Lol xxx
tom replied to the topic British 10K run for myeloma in the forum General 13 years, 11 months ago
Now thats the way to run it ๐ xxx
tom replied to the topic Post SCT Sickness in the forum Side-effects 13 years, 11 months ago
Hi Gary
Am pleased your sister got through the SCT pretty well ๐ but am sorry to hear she is still being sick.
I also was same and to be honest was strill taking anti sickness pills for month months after my SCT, my consultant was also saying its a long time for you still to be wanting them :-/ but hey she gave me them and I took them…[Read more]
CarolBradley1 replied to the topic Some good news in the forum General 13 years, 11 months ago
Hi
Congratulations. Iยดm so very happy for you and itยดs great to hear such lovely positive news.
I donยดt have any experience of withdrawal but will keep my fingers crossed that you donยดt have any!
Hope all continues as well as this and better!
Best wishes
Love Carol xxx
CarolBradley1 replied to the topic Hello My Name Is Alethea in the forum Newcomers 13 years, 11 months ago
Welcome Alethea
So sorry that we have had to "meet" you like this and that you are having such a difficult time.
I do hope that things get a little bit easier for you soon. I think you will find this site very helpful and the people are very kind and understanding. Talking to other patients who understand the condition and the ups and downs…[Read more]
CarolBradley1 replied to the topic The Answers in the forum General 13 years, 11 months ago
Hi Andy
Sorry your having such a poor time of it. Letes hope that your meeting goes well with Dr Jackson.
Just a suggestions but I bought a back support belt (only the cheap 6.99 version) from ebay which has helped me a great deal. It has little magnets for the small of your back but Iยดm really not sure what they are there for. Anyway, it…[Read more]