eve replied to the topic Bristol SCT in the forum Treatment 13 years, 12 months ago
Hi Stephen
Like you style,how about staying alive by the Bee |Gees for you next bit of music.
Its good to see that staff are quick on the ball to relieve any side effects, sweet corn last a few days,must admit its not the nicest of smells.
Carry on with the music.Eve
jmsmyth started the topic Myeloma changed. in the forum General 13 years, 12 months ago
Hi
After consultation with registrar yesterday and conflicting responses to Franks protein dropping by itself (registrar saying it was good and consultant saying it was bad)I took the advice of Helen and phoned our Myeloma nurse. The long and short of it is that after 6 years, although very rare the myeloma has changed from secretory to…[Read more]
eve replied to the topic PLATELETS in the forum Treatment 13 years, 12 months ago
Well its the early hours of Friday morning,and Slim is wide awake,so I am up,with a nice cup of tea.:-)
NO Platelets this week8-)Monday bloods,Thursday a hospital visit we did not expect,Slim could hardly walk,had to be checked out for DVT,went through GP who sent us to a different hospital.All was ok,
Today it,s bloods nice and early so with a…[Read more]
Dizzyliz replied to the topic Plasma cell leukeamia in the forum General 13 years, 12 months ago
So sorry to hear the sad loss of your dear mum, condolences to you Angie and your family.
Thinking of you all love & hugs liz & kev xx
tom replied to the topic The Rash in the forum Side-effects 13 years, 12 months ago
Thats great to hear, and it sounds like Henry is doing great.
Keep it up and keep well
Love
Tom "Onwards and upwards" xx
tom replied to the topic Of Carfilzomib… in the forum General 13 years, 12 months ago
((((hugs)) Jo I hope your Ok xxxx
tom replied to the topic Good News X Two in the forum General 13 years, 12 months ago
Thank you Eliz, and its great news. I aksed Elaine's Consultant if the pill she has to take for 5 years ( next year will be the 5th) and got a letter today from another cosultant for July to ask about treatment after the 5th all clear.
Aways feel better if the Young Bride is checked out at least yearly 🙂
Love Tom and Elaine "Onwards and…[Read more]
tom replied to the topic Channel 4 documentary in the forum Side-effects 13 years, 12 months ago
Lol with Dai and Eve lol unlike Eve am pleased I went to the loo before reading this post ha ha.
And Peter its story's like yours we need more often, keep going and beat that 12 years your Friends have got to so far 🙂
Tom "Onwards and Upwards"
tom replied to the topic Plasma cell leukeamia in the forum General 13 years, 12 months ago
Sorry to hear about your Mum passing away, and also pleased that this site gave you all some extra strenth.
condolences sent to you and your Family and Mums Friends.
Take care and take one day at a time
Love Tom xxxx
eve replied to the topic Plasma cell leukeamia in the forum General 13 years, 12 months ago
Hi Its only me,
What can I say,You new it was coming and I hope you were ready to let go.
It still comes with lots of emotions,relief you mum is no longer suffering but you have lost you mum,who was an important person in your life.
My condolences to your Dad sister and yourself,I wish you all well on the next stage of your journey,Love Eve
eve replied to the topic Seriously concerned in the forum Carers 13 years, 12 months ago
Hi Sarah
It is a different ball game when its your choice,if chemo is refused then palliative care is next step,then it comes to hospice which has a certain policy concerning care.
IT sounds if Howard has chosen his path.
It must be awful for Gail,I can look at both sides and see merit in both.Eve
BADGER replied to the topic Of Carfilzomib… in the forum General 13 years, 12 months ago
HeIlo Dia
I am not doing to badly but have a consultant app on monday so we will see I didnt really want to post after hearing about Bridget because her death upset me so much I had been in touch with her on E mail these last couple of years and felt I knew her quite well but she would not want us to give up so I will carry one:-(
Love Jo x
jmsmyth started the topic Right hand-left hand??. in the forum General 13 years, 12 months ago
Hi All
The mind boggles. I'm beginning to wonder if the right hand has any idea what the left hand is doing. At hospital this morning and saw registrar. He said there was good news the protein had dropped to 9. I told him that according to the consultant this was not good news as the protein had been steadily dropping over months before CDT…[Read more]
eve replied to the topic Channel 4 documentary in the forum Side-effects 13 years, 12 months ago
Dia LOL still laughing,oops got to go the loo.Eve
eve replied to the topic Tiredness /Fatigue in the forum Treatment 13 years, 12 months ago
Hi All
Can i put my two pence worth in!!!
I can not comment on the treatment because Slim has not had it, but and its a big whopping but.Slim had an anti sickness tablet that caused constipation.So much so .I ended up walking out of the hospital with the biggest carry bag of bowel stuff i have ever seen.
Movicol twice a day Lactulose three 5ml…[Read more]
tom replied to the topic The Rash in the forum Side-effects 13 years, 12 months ago
Hi Sarah and Henry
Hope the rash is soon sorted.
And well done that Henry back at work and going to the gym 😎
Keep up the good work Henry
Love
Tom "Onwards and Upwards" xx
tom replied to the topic Channel 4 documentary in the forum Side-effects 13 years, 12 months ago
Hey Folks
I also am pleased this post has been removed and am sure we all coped with the insensitive way the Poster put it but am sure we have strong folk on here that can and would say to them where to stick the Camera and the MIC Lol.
Tom "Onwards and Upwards" xxxx
tom replied to the topic Bridget… 10:30am today and beyond in the forum End of Life and Grief 13 years, 12 months ago
Hey you tear maker's Yep I have tears a big strong Docker with tears and am proud of them Like I am with Bridget to have known her (online) has been a blessing for me.
Her strenth her wisdom and her unselfish manner in the way she helped not only I but many many others, and am sure that those quality's that Bridget had in abundance has been…[Read more]
BADGER replied to the topic Of Carfilzomib… in the forum General 13 years, 12 months ago
Hello Dia
This is good news for me if this drug is in the velcade family it will be prccessed through the liver which is good for me as my kidneys will not take all kinds of other drugs:-)
Hope you are feeling well;-)
Love Jo
eve replied to the topic Question time in the forum General 13 years, 12 months ago
Hi Andy
Well good luck for Friday,either way I think it will be a great relief.You will know what you are fighting so you should be able to take part,and do some research towards that treatment,you have jumped so far ahead with different treatments in so little time.
All treatments need time to work Velcade they say 6 cycles and like to know…[Read more]