Hi Paul

Thanks so much for taking the time to reply when I know your feeling under the weather.

Sorry your feeling tired and missing some hair but one thing ALL my team said in St James´s was that they were always quite pleased to see these side effects and the more severe the better (especially the hair) as they found it happened when the…[Read more]

Hi Dee

I also am 56 (57 July) I was diagnosed with MM in jan 2009, I have had CDT as front line treatment then onto SCT in December 09, Now back at work (light dutie's) and doing great 😀 It aint a walk in the park this MM trip but would I do the same treatment again ? well I have to answer a big YES as at the moment it has given me over two…[Read more]

So sad to hear this! She made me such a lovely hat, and put a smile on my face 🙂

Bella

Hi Carol / Helen
I am coming to the end of my first cycle of DT pace with no real side effects other than feeling tired late evening/early mornings and my hair is disappearing rather quickly.I am due back into hospital next Monday for 4 days chemo and Dex.We have booked a cottage in Alnmouth Northumberland in early July which will…[Read more]

Hi Dee

WE live in Deal kent,it is my husband who has Kappa Light Chain Myeloma,
He is treated at Canterbury,He was diagnosed after many months of pain,and weight loss,that was August 2010,finally diagnosed February 2011 18 months on Myeloma Trials X1 which might be available to your Dad ,he finished Chemo, he has just had a Stem Cell…[Read more]

Hi Dee
I know all this is worrying,and you will continue to worry,but take some deep breaths,and think I can do this,and the calmer you stay,the more help you will be to your Dad.

Right now your Dad has a lot of the symptoms,which are not very nice,the first thing they will do is control the symptoms,stop Dad being sick,and help him regain…[Read more]

Hi Paul

Just hoping that things are going a little better and that your not feeling too rotten.

Thinking of you lots with fingers crossed for you both.

Best wishes

Love Carol xxx

Glad to hear mum is feeling better,

When Slim was first taken in to hospital it was with AKF and hypo-calcuimia(spelling) ,within 48 hrs the difference was amazing,
The Kidneys should clear but it,s sensible to make sure your mums fluids is high to help clear any chemo.

As for sunshine its no fun for Slim long sleeves hat and factor 50:-(…[Read more]

Hi Mari Sarah and Min

My Problem Mari is I am deaf so phones are a no no,I hate them,miss a lot of the conversation!!!, so prefer to do face to face,If Slim goes on the phone by the time he has come off,he cannot remember what was said,lol
Would be interested to know how you get on Sarah,I know a few people who actually do counselling,may be…[Read more]

Dear Siobhan
Thank you so much for making such a brave effort to come and tell us about your Mum. To say she will be greatly missed is such an understatement as you, better than anyone else will know.

I think you must be very much like your lovely Mum and I know for sure that she is very proud of you. Keep listening as I know she will keep…[Read more]

Hi Tim Jo and Sue

Went to hospital today,and Slim had more platelets,the sister said it is normal,and she thinks Slim looks very good after SCT,but he now weighs 62k so all skin and bones.

Going for bloods on Friday instead of tomorrow so will be able to see how far they drop,today before platelets they were 10 and neuts 1.0,he says he knows…[Read more]

Hi Rachael

Lots and lots of fluid,any thing that goes down,Jo use to take the tablets in yoghurt to get them down,the whole illness is a roller coaster ride,with highs and lows,
My advice is get your mum on here and she will see how quickly people respond,and it will help her,because this whole thing can make you very depressed.I hope they…[Read more]

Hi Eve
I hope slim is ok apart from the platelets I dont know about them but you could phone ellen I am sure she will know the answer
Regards to Slim
Love Jo xx

Hi Rachael

Am pleased your Mum Janice is home now (but keep an eye on her temp).

Am sure it will be the meds your Mum is having that is making her loss her appetite, I was same after my SCT and it was hard to face a plate full so my Young Bride (Elaine) gave me a smaller plate with smaller portions so as not to over face me with…[Read more]

Hi Eve and Slim

Yes I understand your concern I was worried with every ache and pain cough or sneeze but the Dr's and Nurses said all will be fine and it was and is 😎 I had to have more blood once and platlets twice after i got out within my 100 days 🙁 but it picked me up a little bit each time they threw it in 😎 I was told "Tom you are…[Read more]

Hi Ozzy

A well done to you for making the decision to pack in work, as for me I still aint made my mind up yet (i know i dither) but mine is down to the financial side of it :-S, we had some put to one side for a rainy day but am sure you all know its Pi55ed it down since 2008 when My Young Bride (Elaine) fell ill then I in 2009 but hey Ho…[Read more]

Thank you Helen and Ozzy
For your replies,
When Slim was in hospital at Kings he had 5 units of platelets,Then when he was taken in to Canterbury hospital he was given 3 units of blood and 1 unit of Platelets,He has been out 10 days and had 2 more units of platelets,and we go in this afternoon for another unit.
I asked the consultant in…[Read more]

Hi Ozzy
Getting Myeloma does make you question,how you manage the rest of your life,I think in that respect it is not a bad thing as you value things more.

Ozzy if I am correct everyone has a certain amount of these cells in the bone marrow its when it goes above 5 it becomes an issue might be worth ringing Ellen,to confirm.!!!!

Have a good…[Read more]

Hi Sarah
Sorry I cannot help you with the rash,Henry does sound if he is over doing it a bit,but that,s what men do,the desire to be back to normal is strong,Slim is the same.I do not know if this is any help to you,but Slim has used a product called POLYTAR from boots,its for people who have trouble with skin,I also rub him down with coco butter…[Read more]