Dear Sarah,

I believe it is your beloved amsrk’s service today. If I have got it right, I pray you will find much comfort, not only in the words of the service that Mark had lovingly prepared, but also in the many friends who will come to support you.

You are quite right! Our faith that death is not the end, gives us courage to go on, but it…[Read more]

I would also like to express my sadness at Eva’s passing. She will be sadly missed. I send condolences to her family who will have stood alongside her and suffered too because of this awful illness.

Mavis

Hi Maureen

Good to hear Ian has a new way forward. I do hope things go very well for him.

Best wishes to you both.

Mavis

Hi Andrea

Glad you have been able to resume your CDT. I had six lots and it got me into complete remission and I have remained so for nearly 2years. For various reasons I didn’t go down the SCT route.

Hope things go really well for you.

Mavis

Hi Alison

As you have bone pain, are you on Zometa infusions? I swear mine have stopped me having any fractures from my many lesions.

Very best wishes.

Mavis

Hi Tianyl

Welcome to the Site none of us wished to qualify for! I am sure you will find it very helpful belonging. Do share your story and ask any questions.

Best wishes.

Mavis

Hi Maureen and David,

Thank you for your kind words of encouragement. I have been referred to Cardiff discuss stem cell collection and SCT. Thankfully I am coping really well with CTD at the moment.

Best wishes

Andrea xx

Hi Rebecca

Frank went through SCT in March 2013. On leaving the hospital he was told he would have to have “the baby” injections, right from the start. Within a couple of days,the consultant sent him an email with a schedule of all the vaccinations he needed – with dates etc. A copy qhad also been sent to his GP – who contacted him when they…[Read more]

Please pass on my condolences to her husband and sons.

I would like him to know that although Eva had not been posting for some time,I always had her in my thoughts,the last time I heard from her was when she was in London having treatment that would go on to her second SCT,staying at a B&B,that takes some courage to be alone in London waiting on…[Read more]

Loopyladye

Hi I do not usually reply without knowing some back ground,as this site is open,!!!

You are obviously going through a very hard time,and had to cope with a lot in a very short stretch of time,this can be very hard as it does take time to get your head in the correct frame of mind,everyone is going to tell you,you must look after…[Read more]

Hi David

Love ing it,grandfather in the nick. Lol

I could not dream of going in to my cupboard,would find I am associated with IRA Slim says I have the face and back ground lol.

Live is for living and you are making a good job of it!!!,so that’s what is important.

Best Wishers wishing Dai was around to correct everything,in a nice way!!!? Eve

Oh my that’s awful!!!

I agree my daughter in NZ sold here house 10 percent deposit,done and dusted !!

My youngest daughter has had the chain broken 4 times,moving anyway! Does need up heavily .

Sorry for taking over post Judy,you will find in time you will make cyber friends,!!!?,Eve

Hi Debi

No problem if you are going to Sutton!!!! We travelled every week by car,massive car park pay anyway even disabled!!!! If you use a wheelchair all the time tiger is a little bit of parking before barrier,after barrier there are four lanes of disabled parking,but as I said you pay,most it has cost me is £14 !!!??

I use to find it easier…[Read more]

Ho Carol

You make me laugh!!! Thought that plane to ozz was this month????
Phi Judy2 sorry cannot help you,out of touch with new trials,try going into new trials on here,might be some help!!!!!

I can say this journey is like a roller coaster so many highs and lows,you learn to ride with the flow,you will get lots of help on here and also from…[Read more]

Hi Andy,

It is such good news, Phil and I are both so happy for you. Long may it continue.

Megan

Dear Sarah,

Thinking of you xxx

Megan

Hi David,

Enjoy the dex free nights, best wishes for a speedy recovery from the op and fingers crossed for the blood results at the end of August. You had such an amazing response to the Rev that I am sure if there is a tiny blip after a month off it will soon be reversed when you start the rev again.

Do you mind me asking how your neuropathy…[Read more]

Hi Vicki,

Fingers crossed it will be a slow relapse. It is hard to stop worrying but you just have to take it a day at a time. It is a good sign that Colin is feeling well and that the blood results are good. We found out in December that Phil’s pp had been rising for five months and we were sure he would be on treatment by February. Here it…[Read more]

HiDavid

I can remember a few years ago,you getting everything ready just in case,the garden,with crocuses,and easier boarders,plus the old coffin job!!!! And look what you have done since,family tree,holidays!!!!

Just enjoy this month without treatment!! Make the most of the summer,the lump as you know can be anything!!! As for the…[Read more]