Belated Birthday Greating Jo I hope you had a great time

Love iccle ole Tom xxx8-)

Hi Ian

Well you for one have made a fat Bald man very happy Lol, ye the skipping was trying to teach Grandson Liam how to skip 🙂 Hope his Mum and Dad keep it up so he wins the Race at skool 😎

Eve I have been told its alo for the young at heart and am sure we all fit into that one Lol xx

Jo Am sure it will be from lifting the beer and…[Read more]

Well i have to say Stephen,they sounded if they did a good job on you,Slims was very different.

We travelled 86 mile went to chemo out patients were he was given his chemo to help generate BMC out into blood and sent home with a five day course of injections.Travelling 86 mile back. Total 172 mile round trip to Kings London from the south…[Read more]

Hi Jennah

Am sure it will go well, send my regards to your Dad and wish him luck, let us know how you BOTH got on as am sure its not easy sat waiting.

Tom "Onwards and upwards" xx

Hi Onlyme

Sorry to read about your Mom its a bugger this MM and you know am gonna say it but I cant add or help on this one just wanted to wish your Mum a good journey on the road to remission.

Tom "Onwards and Upwards" xx

Hi Gill

It must be a very hard time for you at this moment I do hope they find something that will help Stephen,I do know some myeloma,s are more aggressive than others,i do not know if you remember Sharon who use to post,she had a more aggressive type.

I found it difficult to get Min on facebook,so i went through Tom or Dai they e mailed my…[Read more]

Hi Jennah

Haven't experienced Chemo in hospital with Frank (on tablet form) but when my brother was having it his wife used to txt me to tell me he was snoring his head off!!

Take care and best wishes to your dad 😀

Jean x

Hello Dear Tom
what have you been doing I hope the pain in your shoulder has been caused by lifting all those pints or kids you take care and let me know how you get on
Big big hug
Jo

Hello Ian

I am sorry your allo didnt work glad they are letting you go back on velcade as it worked well before good luck with the new treatmenr
lOve Jo x

Hi Jane

Welcome to the site I am doing catch up,I loose track of what is going on,that,s why I am late welcoming you.

You sound if you have been through the mill a bit,i take it that you did not have a SCT because of age,and treatment that you have already had.

It takes awhile for energy levels to return after CDT,my husband had it then…[Read more]

Hi Onlyme

So sorry to hear your news,cannot help with your questions as Slim is behind you on this journey,lets hope the Rev works it does seem to buy that extra time,which in its own way helps you to adapt.

Sorry I cannot be much help,but if kind thoughts help,there is plenty coming your way.Eve

Hi Ian

You must be feeling a bit down,all that treatment and mm taking hold once again.i hope the velcade does the trick again and would be interested in the result as Velcade worked well for my hubby first time round,and its good to know what is round the corner.

Some times I wish I could swear on this site,and i am too old for the under…[Read more]

Hi Mari

I had just been saying to Frank a few minutes ago that I was going to phone Jackie our myeloma nurse tomorrow to clarify things but he said he would rather I didn't. He intends to speak to consultant when we see her next Thursday. Just hope Frank has no problem with reduced Thalidomide.

Thanks Mari
Love Jean xx

Hi Ian

Well you have done well out in 48 hrs 😎

Gosh how weak our bloomin bones are? I have been today to see my Doc bloods are good but I tild him about a pain in right upper arm/shoulder so he sent me for X ray so have to wait till next thusrday for results. am sure he will say its just old age 😀

Keep fit

Tom"Onwards and…[Read more]

Hi Jo

Happy birthday. Hope you have a lovely day – 21!!!! You had sunshine – lucky you – we are blowing up for a storm. Hope you had a nice drive

The consultant said that the myeloma cells are changing and the predominant myeloma cell is not producing protein says that it is a sign that the myeloma is progressing. Told us the count had…[Read more]

hello Jean
sounds to me that Frank is doing ok if it is the para protien coming down my consultant would say thats marvellous perhaps you were talking at cross perposes better go over your tape again. I t was my birthday today so we had a drive to the coast sunshine all the way for a change
Lots of love Jo x

Hey Vicki that's great news about Colin. Hope he goes from strength to strength. I thought that about the protein but I taped the conversation so I will listen to it and then ask her next Thursday.

All the very best
Jean x

Thanks Keith

It is the para protein. She was always please when it came down. But the decline has been dramatic and she said there was something going on. I emailed Ellen to ask her. So will see what she says.

Thanks
Jean

Hi Sue

Welcome to the site
Glad to see you managed to get some help with your questions,you should find on here if people cannot answer your questions they will point you in the right direction.

Let us know how things go with hubby remember there are people who are here to help you.Eve