Hi Helen

I know,its just he has been here before and it took a lot out of him then,I was told then,he may never get back to the man he was,and they were right then,but give Slim his due he is a fighter,so fingers crossed.
I think it,s just me feeling sorry for myself,have given myself a kick up the bum:-P and Tom cheered me up 🙂

Going to…[Read more]

Hi David
I would agree, it just makes me wish I had put a high value on are years together 30 years together and 1 year married,I ask myself why we need such a wake up call as Myeloma to value what we are loosing.
I am feeling sorry for myself better give myself a kick up the bum.Love Eve

Do you know Eve if i could blush I would Lol

Well am pleased they didn't Chuck HIM out, yes I was under Castle Hill in Hull for my SCT and went every week to have bloods and check up then on my 10th day (or near as danm it) I had another BMB But hey Ho still in Remission since 2009 😀 and after all I went through it was well worth it 8-)…[Read more]

thanks Tom

It just what I need at this moment,a lovely man cheering me up and making me smile:-) 🙂 🙂

No they did not chuck him out,i think they have done all they can for him,because of this 100 day rule we are officially under Kings which is 86 miles away,they will keep looking at his bloods to see how he responds!!!!

I bought…[Read more]

Hi again Jeant

I was just looking through the post and thought I sounded very harsh I did not mean too, and must apologies to you.you are very worried and did not need me to tell you there is no answer.
The CRD has had good results its just about finding something that does the job,all the chemo,s have side effects and because people are…[Read more]

Grumpy old man Bless him Lol

Its a good job it was only a discharge note he made the mistake on the next patiant might be having his left leg removed just think of the mistake in that one? :-0
I do hope they didn't throw Slim out because the needed his Bed?

I know you will take care of Slim and wont let him do too much yet and dont forget…[Read more]

Hi Jo And Liz

Well my grumpy old man rang me at 8am yesterday to tell me he had been discharged so off I went to collect him,but when i got there,the doctor had made a mistake on paper work,so he had to be re discharged again by 11 he was loosing the plot,so all for a mistake in the paper work,Slim discharged himself,they were desperate for his…[Read more]

Hi Jean

Once when I was in the car with Slim,he was getting very jumpy and very annoying about my driving,he use to drive most of the time,i just came in handy when he had a drink and could not drive,but on this occasion we were on are way to hospital and he was so annoying i stopped the car.

He told me not to go any further as the car was…[Read more]

Hi Everyone

Helen it is a world wide Trial but it is not in all area,s of uk. I know in the South East Dr Pocop fought to get these trials allocated here.If they were not here Slim would not be on them as the nearest place that had them was Kings in London.86 miles away and sick patients would not be able to manage it.But you have the same…[Read more]

Hi All

Dai after reading your post I realised that I was angry as well. Frank had gone to bed but I went up and told him he was going to listen to me. I told him about all of the posts and of the information that I had gotten. And he LISTENED and asked questions. One of the questions was how long have you lived with PN? Helen I asked him if he…[Read more]

Thanks Jo, Eva and Helen

I really appreciate your replies and have taken on board all that has been said. I really don't know how to describe Frank and his attitude to this bloody disease. When first diagnosed he told the family that he wanted no research done on this disease and any info that he needed to know his doctor would tell him. He…[Read more]

Hi
Oncologist this is a blood cancer were is the heamotologist ??????

Hi Jeant
My name is Eve,My husband has had CTD plus Velcade them SCT,I do not know any back ground,so it is very hard to make any comments.
The question you should be asking yourself is how much do I want to know,???

The experts have to answer your questions
So you must decide what you are going to ask.
If they are treating your husband…[Read more]

Hi Karen,
I care for my hubby kev, when he was first diagnosed aug: 16th 2010 he too was seen and on treatment in two weeks!
Unfortunately kev as relapsed and again seen within two weeks so if it was me I would ring your GP chase up your referral!

Good luck! I'll be thinking about you, keep us posted.

Love liz& kev xx

Hello eve,

Sorry to read about the stupidity of the nurse who should have not been working in her condition in the first place!
It makes me rage when as a carer you do everything to keep germs away and there's posters everywhere you turn,
But it just takes one to undo all the good work!

Hope you soon get your grumpy man home soonwhere…[Read more]

Hello Scott,

Glad you enjoyed Spain, think that'll be last holiday for a while, kev sees prof Russell at Nottingham city hospital not heard of prof schey? Is he based in nottm? Kevs not doing too well at the moment (velcade/dex) lot of stomach cramps and now it's hit week off all meds before seeing prof on the 18th.

Long may you continue…[Read more]

Hi Keith

Sorry to here your news, just hope you have a good holiday before you start your treatment.

Thinking of you liz & kev xx

hello Jean
sorry frank is having a bit of PN its not very nice I was im afraid like Dia the mantra is WHAT EVER IT TAKES I will do it I was determined about it I know you will find it difficult to convince Frank but Ihope you can
Lots Of love Jo x

Dear Tom, Dia and Eve

Thanks for support and tips. Really don't want him to come off Thalidomide so I will keep in mind Dai what you said. Will have to wait until Monday to see what they come up with.

Thanks again

Jean xx

Hi Eve
sorry to hear slim has had a bad time of it that nurse should be sacked no other words for it hygiene should be upmost in every case but especially for people with poor immune systems really glad you can get him home he will be better of there
Lots of love Jo x