Hi Eva and Sue

Just for info I had my transplant the day after my Melphalan.

I was told to eat as much as i could before and after the SCT as I would not want to eat after it. I also suffered a lot from the wretching wanting to be sick but wasn't sick but the anti sickness pills help a great deal. I also could not drink enough water so asked…[Read more]

Hi Dai
you can lead a horse to water but you cannot make it drink!!!!you name it I have tried it,he understands how important it is,the least mention of a drink,and I am badgering the kitchen or off to the shop.he said he feels like knocking back a pint,but cannot do it,small cold sips is his limit.
All the thing he is lacking are on drips,plus…[Read more]

Hi Eva and Sue

As you know slim is in the middle of his SCT.
He went in on a Sunday, only 50% of chemo given on Monday,the next day was a rest day,them harvest fed back.he is not recovering very quickly a bit at a time,he has had his own platelets plus some more plus injections of growth factor.His platelets stood at 7.5 last time I…[Read more]

Dear Sue I am so sorry to hear things arent going well , no wonder it has hit you hard. Please dont feel guilty , you certainly have no need. Michael can probably see how much you need a break too Try and be kinder to yourself Sue , you are Michaels strentgh and its bound to take its toll , but you do need time away frm myeloma and hospitals etc…[Read more]

Hi Dai

Its a bugger all this tem up and down but am same as you throw some more water down my neck and a few citemols and soon brings my temp back to normal 😀
Good Luck for the "Normal" before Monday 😎

Keep Kool and keep Calm

Tom "Onwards and Upwards"

Hi Eve and Slim

Oh dont do shopping lol hate it with a passion.

I was told to buy "Tight" Clothes as you dont have to Iron them Lol.
Slim will soon get better but it wont be next week I was a while before I knew I was better but stick with it and dont expect it too soon.

Love
Tom "Onwards and Upwards" xx

hello Sue

I get my husband to have me time I think its important so if i have an appointment that may take a couple of hours he drops me off he also goes fishing once a week this is important so do not feel guilty if you do he will feel guilty for taking up all your time
love jo x

Hi Tom

You have not walked down to Tesco,s and watched all these men standing there unable to decide on the washing powder to buy!!! Lol .I have a confession to make Tom I have not ironed for over thirty years and very seldom use the washing machine,Slim thinks I do not do it good enough!!!!,so that's the secret never be good at doing it.…[Read more]

Thanks Lorna I had no idea, it really should mention it in the article.

Thankfully Sam isn't on velcade but it is important for everyone else to know just in case so thanks.

Nicki xx

Hi Teresa

I cannot think of better goals to aim for than the birth of a child and as we are. Both twitchers in a small way,it's lovely to see the birds in there mating colour,s not that we have any exotic birds around us,it's just nice to watch there behaviour.

At least they are keeping the Myeloma from rampaging which will buy you time,plus…[Read more]

Hi Sue

I understand were you are coming from but it will do you good to have a bit of me time,feeling guilty about it is natural.

I am very much the same I spend a lot of time in the hospital with slim,it takes me 1hr to get there,buy the time I get back my day is finished,buti am aware I will have to pace myself as I will not be. Much good…[Read more]

Hi Nicki

Great to hear Sam is doing well, long may it continue.

It's worth pointing out that green tea is a no no when on Velcade along with grapefuit in any form. I only mention it just in case.

Lorna x

Hi Paul

Sorry its not worked out SO FAR am sure we will have more bridges added as time goes on, stick with it and stay strong
and fingers crossed 🙂

Tom "Onwards and Upwards"

aww Sue I am sure its hard for you folk that are erm on the side lines and having to leave us MM folk alone to all the treatment, its a sad thing but it has to be done anm afraid.

You Time is somthing you want to do but cant because you wory too much about Michael.

Hope all is soon sorted out

Love and Hugs to you Both

Tom "Onwards…[Read more]

Hi Eve and Slim

Am sure Eliz will cope re the washing machine as my Young Bride has coped for over 36 years with a mere Male not able to use a washing machine? I fix it when its broke (if poss) and drag it out and take to the skip if i cant fix it so all I ask is the Young Bride is able to use it lol, and to be fair am same with…[Read more]

Dear Eve

I'm so glad, that after so many hurdles, Slim has at last had his SCT. Another few weeks and he will wonder what he was worrying about as he looks forward to his "new life" and that trip to New Zealand.

You know we are all rooting for you both.

Lots of love.

Mavis xx

Hi Dai

I'm also thrilled that Rev and Dex are doing the job! Just sorry you had a tortuous wait to find out they were working, with all the lows that that inevitably caused. What is it about blood results that they can't just give us a print out as a routine thing. I only found my PP level had gone down to 4 by specially asking the nurse to…[Read more]

Hi Eliza

How an earth do you manage with a husband who cannot use a washing machine,!!!!

Teresa how are things going with you, I hope you and you husband are finding some quality of life,try to hold on to the thought the experts are not always right,some times you must have goals and dreams to hang in there.Slims goal is New Zealand,we have…[Read more]

Dear Paul

So sorry that things aren't going as well as we would have hoped. I can understand you being pxxxxx off! We must all get to the point, from time to time, when things aren't goinmg well, of thinking "is it all worth it?" Good job that at heart you are such a fighter. I know things will work for you – do hang on in there. It is…[Read more]

Hi Paul

Fingers and everything else will be crossed that treatment will work. Have a brilliant weekend – enjoy the sunshine

Jean