Hi Sarah and Henry
Well done to both of you,Henry is doing very well it only seems like the other day you joined the site,and there you are SCT over thinking of going back to work and doing the race for life.

Well done keep the good work up,Eve

Hi Helen

A beautiful place and its nearly winter there,I enjoyed the peace you do not have the flight paths or the motorways.

Slim and I next year,hoping to do Christmas but will have to see.
Have a lovely time. love Eve

Hey Scott

Agree it was a good day. But you missed one event – rugby. Broken hearted that Ulster didn't win but there again they were terrible. Dont think they could have played netball!! Frank fell asleep towards the end of the Chelsea match and would not believe me when I told him that Chelsea had won. United loosing!!! We have a split…[Read more]

Hi Graham

Sorry you are not getting on well with your Dr 🙁 but i think that MM might scare them (i know tel me about it lol)

But I am blessed with a Consultant that told me I dont need to go to the Dr for MM if I feel I have a problem I just have to phone the Ward up for advice or help, and that is what I have done.

Good Luck on your…[Read more]

Hello Antionette

Its ok to cry your life has been turned upside down Why me! I am still asking that I still cry sometimes, mostly at night that seems to be the darkest times
you are still young and there are now so many new treatment being discoved my consultant is hopeful that in the not to distant future MM will become a chronic illness that…[Read more]

Hi Roz
So glad to see you are moving on with your life,it is hard when there is so many things around you,but it,s true what they say life goes on,children seem to bounce back,they have there own friends they can talk to about it and it is hard for anyone to take on anyone,s grieve .

Although i am here to help with my daughters grieve,we do…[Read more]

Hi Antoinette

I am really sorry that I have to welcome you to this site – but a very sympathetic hello anyway.

I understand that you are absolutely shocked to your core but you have found here a very good site where you will find lots of the information, help and support your going to need.

If it helps, I was diagnosed with this rotten…[Read more]

Hi Tina

Glad to hear your news.

At the end of round 2 my PP were 5, but I obviously don't feel as good as you. The shingles haven't helped, but do seem to be subsiding. As I lost a week of chemo I am now on day 4 of round 3. I don't seem to be getting the mood swings with CDT, but did have a very low few days, which was obviously the…[Read more]

Dear Jill

I'm also devastated with the news about Stephen when he has fought such a brave fight against this dreaded MM. I guess he now does need to work out his own way to assimilate this news and work his own way through these next difficult months. I can understand his wish to go to France and be damned! I hope he manages to pull it…[Read more]

Dear Michelle

May I add my sympathies to you and all the family. You have been able to support your Mum through this very difficult journey and it is good that you were able to with her at the end.

This week will be a very difficult one, but may all the good memories you have of your life together sustain you as well as the thought that…[Read more]

Hi Jo

So glad you manged your holiday in Greece and have another planned for IoW later. It is a case of making the most of the chances. I'm so glad your PP levels are keeping stable. You are a real encouragement to me.

Much love.

Mavis xxx

Hi Keith

Like everyone else I hope your readings are just a blip.

Come what may I can't see why you shouldn't get your holiday.

Bdst wishes.

Mavis

Hi Sarah and Henry

Well done on doing the race for life, I remember my young Bride (Elaine)doing it the year after she had her op for breast cancer and the year i was told I had MM it was a very emotional time seeing the Number on her back with the words "I race for My Husband and Myself" gosh i can feel tears as I write this bugger…[Read more]

Hi Antoinette

Hey am Sorry you are teary 🙁 go my way girl (it works for me) cry in shower you dont notice so much and more important I felt that if I have this MM it wont take me so I told my Consultant I dont want to wait (he did say we could pospone treatment) and i want to throw whatever he could while I was still young and fit (ish lol)…[Read more]

Hi Sarah

Brilliant photos and the ORANGE really stood out. Well done you. Hope Henry gets rash sorted soon.

Take care
Love Jean x

Hi Ali
Sorry for late post as I have just spent a week in hospital.
Before anyone goes for a Stem cell transplant the medical team need to check that the persons heart,lungs are in working order,so various function tests are carried out and results sent to the consultant.
Cyclo priming lasts for 12hrs and you have various bags of chemo…[Read more]

Hi Antoinette

A Warm welcome to your site :-D.
Sorry you have got MM I was told in 2009 had 5 courses of CTD then stem cell transplant December 2009 am now in remission and doing well, am a iccle bit older than you am 56 soon to be 57 😎

The Harvest and return of my Stem cells was all done through my Femoral line, and to be honest all…[Read more]

Hi Antoinette

Welcome to this site,we will help you all we can,there are lots of people on here who have been through the same thing as you,or who are carers to those people,it is very scary all the information you have to take in,medical jargon and worry.
Try not to look to far ahead and take one day at a time,forget SCT for now just try to…[Read more]

Hi Jean and Frank

I can Copy what Deb's has said its the start to remission, and with that I wish you Luck it will happen but along they way you will feel a bit? rough, fingers crossed that you go through it as well as I did 😀 uphill but with a smile 🙂

Love and Hugs

Tom "Onwards and Upwards" xx

Debs I sent you an email early today. I have 2 email addresses so I sent it to both. You must not have gotten it. I think what you went through – Frank will go through as well. My memory is non existent. I wanted to know again your experience. I read your blogg but as I said memory gone out the window. Frank treatment is Radio therapy, CDT and…[Read more]