Hi Vicky and Colin

A warm welcome to the site 😀

I am the one with the MM and My Young Bride (Elaine) is the watcher (dont like the word carer) and I also have been a "Wathcer" as well as a MM'er as Elaine had Breast Cancer i 2008 and as you now know I got MM near as one year to the day Jan 2009 so we have both been patient and watcher's…[Read more]

Hi Helen

Thanks for the encouragement.

Mavis x

Hi All!

Yes, it is good to get some good news of these continued remissions post SCTs. Shame you have to meet these three month hurdles, but I guess your bodies must be giving you some indication that all is still OK.

I hope for all of you that the news continues to be good.

Very best wishes.

Mavis x

Hi Craig and Etta

What a difficult year you have had. So glad that, at last, you can see light at the end of the tunnel.

Do keep us informed about the SCT. Do hope it goes smoothly, something must, surely! Here's to a long, long remission.

Very best wishes to you both.

Mavis

Hi Vicki

Sorry to have to welcome you and Colin to the Site, but I am sure you will find the support, and information you gain from being part of it, the best thing you have found. It has made such a difference to me.

It is good that Colin is able to maintain a reasonably normal way of life for the time being and that he is keeping…[Read more]

Hi Helen

Thank you for your helpful comments. Glad to say that I have felt better today and have made a more determined effort to do a bit more getting around. Well, if you can count walking round the room with my zimmer half a dozen times, doing more!!!

I know I have to focus on the good outcome I am looking for at the end of the CDT.…[Read more]

Hi Andy

Strange how this MM takes everyone differently. At least if your bloods are OK the PP levels aren't having an adverse affect on your system which is the main thing. Hope the drugs soon kick the levels into touch. How are you coping with reactions to the regime?

Yes, do keep in touch.

Best wishes.

Mavis

Hi Eve

Will be thinking of you all this week and especially Slim as at last he has his transplant.

Not an easy time for you, but at least you have good times to look forward to once the SCT is behind you. Do keep us up todate with Slim's progress.

Lots of love.

Mavis xx

Dear Gail

Sorry we have had to welcome you to the site. I do hope you find it helpful to be able to share just how you feel. I am 67 yrs and I am the one with MM. I do feel for my husband as he just has had it all dumped on him. Same as with all the caregivers. We are so fortunate to have loved ones who do care. It is a hard journey for…[Read more]

Hi Gail

Reading your post,it could me writing it,only the year would change to January 2011.So you are not alone,you have joined many other people on this journey,because the carer has no choice,and some times is forgotten,because everyone worries about the person who is ill.

I use to worry about my husband,being very confused,plus lots of…[Read more]

Hi Jerry

Your English is just fine, you will get help/advice and comfort on here.

As for your Father's treatment? well with Myeloma all Patient's are not on same treatment, what works for one may not work for another.

Regards

Tom "Onwards and Upwards"

Hi Susan
Thank you for posting about Sharon,i have been trying to find out how Sharon was as she was on Velcade the same as Slim,and i was wondering was it working for her,she helped me a lot with information.
Thanks again for posting,I wish her husband and young family all the best,Eve

Hi Pete

Am pleased you got it sorted out 😀

Tom

Hi Eve and Slim

I will be thinking of you all on the 8th May. Am sure it will be a good Celebration of Matt's Life I dont need to say "Think of the good times" as am sure you will be.

Love and ((hugs)) to you all.

Tom xx

Hi Tina

I'm glad I'm not the only one who has had a couple of low days! I had my worst day yesterday. Day 18 or my second round of chemo. I had a hard job breathing and lots of back pain. I felt very low. Unusual for me. First time I'd asked myself what's it all for. Very sensible words from you Dai. Thank you. I guess this is the Dex…[Read more]

Hi Ann

I have been trying to attach a copy of my drug regime so as you could look at it but it wont let me?? but as has been said phone hospital up it should be open 24/7 as they need to dispense Meds all the time 🙂

Good Luck

Hi Andy
Well done on the Bloods M8, and am sure the rev/dex will soon sort it out.

Keep strong and fit

Tom "Onwards and Upwards"

Hi Jerry

Sorry to hear your Father is poorly, I wish him well on his road to recovery.

Where Is your Father getting his treatment ?

Tom "Onwards and Upwards"

Hi Ron And Christine

I am pleased to read Christine continues to improve 😀 and as i am in remission I now only go to see the Dr every four months 😎

This Myeloma is a strange oneas I went through Zometa for 24 months post SCT. But as we all differ in treatmentr/side effects I should not be too surprised.

Keep strong

Love…[Read more]