Hi Stephen

Sorry for not welcoming you to the site earlier,as I have had a few problems myself,its my husband who has Myeloma.

They say myeloma is such an individual illness and everyone reacts different to the drugs involved,I can only tell you about Slim my husband.
he was on CTD had 6 cycles and looked if he was in remission,bloods and…[Read more]

Eve
I am so sorry to hear this news,my thoughts are with you and your family.
love Paul

Eve and Slim

I am so sorry for your loss, I send our condolances to Matty's Family and Friends.

Love and ((Hugs)) to you xxxx

Hi Tina

Dont worry about the sleep in the afternoon I do that and am only 56 and not on any meds these days Ha ha.

Keep strong and sleep often

Love and ((Hug))

Tom "Onwards and Upwards" xx

Hi Stephen
A Warm welcome to this forum, please take your shoes of and sit back and feel comfy.

Sorry I cant answer your Q as I have not been on that, but am sure some one will be along and be able to give you the advice you need.

Good Luck on your road to remission.

Tom "Onwa

Dear Eve and Slim

What an awful shock. I am sovery sorry to hear your terrible news. My love, thoughts and prayers are with you and your family.

Love Jwan xx

Hi Pete
Glad you now active on the web site.When first diagnosed I had a tumor in lower neck/top of back area which was treated with radiotherapy so far successfully. medical team were worried it would cause compression on spinal cord and loose mobility.As i say this has not happened and it has been treated.
MM also causes bone damage to…[Read more]

Hi Pete/Ann
I was diagnosed with Myeloma last Aug which started with back pain (which i still get).I am 40 so one of the younger end on the site.Just completed 4 cycles of PADS and getting ready for Stem cell transplant (SCT)in early June.If you have any questions about your Myeloma ask you're medical team,and of course this site…[Read more]

Hi Pete

Well you know how good we are and how good YOUR Forum is, so use it and us for advice to have a moan and or a winge as am sure that you and Ann will want to use it to the max, dont worry about saying/asking a Q you think might be silly (av done it loads and loads Lol)

Good Luck for Tues as for Full X Ray I had no bone damage? hoping…[Read more]

Hi David and Wendy
Great to hear both you're good news keep on keeping on!
cheers Paul

Hi Stuart its not a problem we can cope with it till its sorted 😀 so many thanks to you and the rest of the team on doing a great job.

Tom

Way to go that young lady Well done Wendy am well chuffed for you.

Its great to read about some one getting good results and i know its just great to be told they are good 😎
Enjoy the next three months and put this MM out of your mind 😎

Love from One "Onwards and Upwards" MM Person to another 😀

Love Tom xxxx

Hi Sally

A Warm welcome to the site 😀

Sorry to hear you are back into MM and need more treatment.

I am not on any treatment I had my SCT in dec 09 but am sure people in the group are on the same as you and will pop in and give you advice.

Keep Strong am sure you will soon kick the MM back 😎

Love
Tom "Onwards and Upwards"…

Hi Tina

Good Luck on the CDT I started my CDT in Feb 2009 and had 5 cycles then onto my SCT in December 2009 😀

Now My CDT well I was tired and week lost weight and taste buds were not working 🙁 think I had to go on sick on my end of my 3rd cycle (just too tired) so I will tell you listen to your body when you feel tired sleep and when…[Read more]

Hi Tina
hope your journy is a good one I struggled mostly with the dex and had mood swings and found I could not sleep very well I took dEX with yogurt which made it easier to swallow I managed to take 100mgs of thalidamide for a year after CDT until my feet got red hot so I had to stop good luck
And keep well:-)
Regards Jo x

Dear Sally

Welcome to this web site it must have been a big shock when you relapsed
I think its something we are all waiting for it feels like the sword of damacles hanging over me and I know I will be still shocked when it happens
because I think we just hope it will stay away I have not been on Velcade but I expect that will be my next…[Read more]

Dear Sally

Welcome to this Web Site. I am sure you will find it a great help especially as you are naturally feeling down at the moment. I'm so sorry you have had this relapse. Of course you would have hoped for a longer remission, but it is good that you are responding well to Velcade. Think, three years ago you wouldn't have automatically…[Read more]

I use safari and see big and small pictures. My picture is ok though if that is what you mean by safari users being unaffected.

Debs

Hi Ann,

Welcome to the site and I hope that it gives you (and maybe Pete!) all the support that you need. It was definitely my lifeline when I first got diagnosed and everyone here is just so welcoming.

Take care and good luck
Debs x