Dear Sara,
I am glad things are looking good from the point of excluding a plasma cell disorder .When i joined a hep c patients group they taught me about the many manifestations/presentations of chronic hcv hint hint!!
You should now be candidate for treatment ;contact the Hep c trust they will know and guide you
Best wishes
Mike

Hi David

Long may the Guinness taste good!!

Keep strong.

Mavis

Don’t know about bites, Carol, but enjoy Croatia!

Although I didn’t have SCT I still am more open to infections. I have had cellulitis of the legs several times.

All good wishes for lots of good days.

Mavis

Hi Sarah

I had six lots of CDT starting in March 2012. Following this I have continued in complete remission. If I remember correctly my PP levels went steadily down from about treatment number three.

Main side effects for me were thinning hair, metal taste that made food less appetising (I developed a craving for Salt and Vinegar Monster…[Read more]

Hi Maj

Just caught up with this post. I do hope your husband’s SCT went according to plan and that his after effects haven’t been too dramatic.

Best wishes to you both.

Mavis

Hi Gill

Thanks for this. It is good to have confirmation of something I vaguely remembered, that you could revisit CDT. Certainly if/when I relapse, I will ask about it. Not without its problems, horrible taste, thinning hair and shingles, but six lots brought me into complete remission the first time.

I do hope your Mum does well on it. I…[Read more]

Hi Victoria

Just caught up with this post. Has your better half checked this out yet?
As Helen says, better safe than sorry!

Hope all goes well.

Mavis

Hi Graeme

This is interesting because infections are the real bug bear of MM. I always feel so grateful to all of you who take part in a trials. It hasn’t been relevant to me, but I feel I’m conducting my own – MM without SCT!

Best wishes.

Mavis

Hi Graeme

So glad you have had no complications with the chickenpox. Don’t think I have caught on what TEAMM Trial is, but hope you are on the “real thing” and that it works well for you.

Keep smiling!

Mavis

Hi Vicki

Yes, you are right I didn’t have an SCT. I had CDT and six lots got me in complete remission and so far I have done 21 months and counting. I’m still having hing four weekly Zometa infusions. I’m now nearly 4years post diagnosis so feel grateful. Not an easy ride, bit I’m still hear to tell the tale!

So, there is lots of hope for…[Read more]

Hi Graeme

Glad you got to the bottom of the itch. Wonder if it will make you vulnerable to Shingles while on treatment? Watch if you have any aching or rash round your middle once chicken pox has gone. I had thought chicken pox gave you immunity to shingles, but apparently not!

Take care!

Mavis

Hi Susie

I also have OA. I asked my Consultant if I could get new bone pain while in remission, as my back pain had got considerably worse. I thought he might order another X-ray. In fact, what he said was encouraging. He said, as I was in remission, there was no PP in the blood to do bone damage so it must be down to OA.

When I had the MM…[Read more]

Hi David

Fabulous news. Enjoy the treatment free days and this comes with a hope you won’t have to have any treatment for your prostate problem.

Best wishes.

Mavis

Hi Andy

So glad to hear your numbers are at last decreasing. Long may it last.

Seize every day!

Mavis

Hi Kay

I’m with you. The more knowledge the better! It sounds like someone should edit the
“professional’s material” in a form that is suitable for the lay person who wants to be as clued up as possible. It strikes me some new sort of flow chart is needed.

Like every other resource, only those who want to need access it.

Hope things go well…[Read more]

Hi Vicky

I’m also very sorry to hear about Colin’s latest scare. I do hope the figures settle down so he doesn’t have to rush for more treatment.

Glad you got your holiday in. Time to plan the next one and one in the eye for MM!

Very best wishes.

Mavis

That is brilliant news Keith, long may it continue 🙂

Megan

Hi Vicki

Sorry to hear you think it’s coming back,it is a bit of a blow and takes time to get your head round it,but you have to pick yourself up and get on with it.

If I was you I would try to fit a few more holidays in,because you just might go on watch and wait until treatment is needed,so make the most of your time now.

Worrying about…[Read more]

Hi Princess Fiona

Yes lucky to live in a lovely place,we usually take the dog for a walk along the sea front,on a clear day France can be seen.
Hope the children have a lovely time when they come and this beautiful weather holds for the rest of summer.

The hospital visit was not great,4pm appointment got platelets just after 6pm,I think some one…[Read more]