tom replied to the topic Relapse after 5 years in the forum Newcomers 14 years, 3 months ago
Hi Janet
Its a Bugger but I have had a cough and (forgive me) a lot of flem (uck) since i found out I had MM :-/ so it might be one of the symptom's when I think about it? anyways with my cough Elaine (the young bride) knows where I am in the shop lol.
Hope your soon better
Love and cough treatment
Tom "Onwards and Upwards" xxx
tom replied to the topic Has anybody heard from MIn? in the forum End of Life and Grief 14 years, 3 months ago
Hi Dai
Janet sounds a very lovely Lady and that am not surprised nor shocked as am sure you are a true gentelman and would only marry a Lovely Lady 😀
We know how you and Janet feel about Kids (gran or own) and you know how Elaine (the young bride) and I feel about ours what with all the photo's i have posted on F/B 😀
Our three…[Read more]
tom replied to the topic New bird(ish) in the forum General 14 years, 3 months ago
Hi Kirsty
Like the others a warm welcome to this great site?
Sorry you had to join us but as away now you have opened the doors 🙂
As for your first one the advice i can give so far is take it slowly and one day at a time, lots of members here going and gone through what you are about to do.
I cant advice YOU what to do but I can…[Read more]
tom replied to the topic Will there be anything else? in the forum Treatment 14 years, 3 months ago
Lol Dai as am sure you know I am (or was) a hairy ass docker so am now up to speed on that Lol.
And same goes for you Dai if you feel with the help of your brother that you could do the trip then I for one (and you for two) would say go on lad get on with it, you will enjoy it, it might be better to hire a Cmper van as you could stop and sleep…[Read more]
BADGER replied to the topic Will there be anything else? in the forum Treatment 14 years, 3 months ago
Wonderful news Gill:-P
I hope you have a marvellous holiday:-)
Love JO
OutdoorsPaul replied to the topic FUEL BILLS in the forum Off topic 14 years, 3 months ago
Thanks for the info Bridget,I will give that a shot.Hope you enjoying the lovely sunshine.Just for your info on the Benefits issues i managed to claim Employment support allowance so i have entered the system!!!thanks for the support.
Love outdoors Paul
PS Rachel and I off to Scotland next week to small Island called Cumbrae for 4…[Read more]
brocho replied to the topic Board activity in the forum Off topic 14 years, 3 months ago
Hi Dai funnily enough I have been thinking the same thing lately I really miss the chatty lighthearted moments on here This board is brilliant for finding out facts re mm and even more so for support but its so nice to be amongst like minded people and relax too. I probably have been a bit quiet lately si I will get back to normal I think love Bridget x
tom replied to the topic Has anybody heard from MIn? in the forum End of Life and Grief 14 years, 3 months ago
Ditto to that Dai, and it looks like she is very active and keeping herslf busy.
tom replied to the topic Will there be anything else? in the forum Treatment 14 years, 3 months ago
Well A well done you lot, and a well deserved trip to france I must say 🙂
Now I can uncross my fingers Have a great time and just give us a little thought when you are away 😎
Love and Hugs
Tom "Onwards and Upwards" xxxx
Ps Am not sure what Dai Means??:-P
OutdoorsPaul replied to the topic Moving at last in the forum General 14 years, 3 months ago
Hi Eve
Unsure if I have read your e-mail right but here goes.I have received my letter for SCT.The process explained to me is as follows.
I had tests for heart,lungs and CT and MRI and only one still to do is a dental check.That should be fine as i go often.
My cyclo priming is on 14th May with harvest due 23rd/24th/25th May at St James…[Read more]
tom replied to the topic Moving at last in the forum General 14 years, 3 months ago
Well Eve you certainly aint any of the above 😀
As I said in Last post I had mine all done prior to SCT some at the start of treatment some nearer my SCT , but am not sure anyone can say whats Normal with our Consultants (as good as the are) they all work in a different way.
Good Luck and hope you and Slim dont have anymore Hiccups…[Read more]
tom replied to the topic Rev & Dex – Cycle 2 & Holding in the forum Treatment 14 years, 3 months ago
A Well done that Dai and his new Friends. Its looking good dai and am sure your (The next comment will be copied and pasted :-0 ) Red Blood Cells (HGB) have dropped a full point from 10.7 to 9.8 and my Neutros are down a bit from 4.0 to 2.6 since my interim bloods a fortnight ago but my White Blood Cells (WBC's) at 5.0 and my Platelets at 147 are…[Read more]
eve replied to the topic New Need to talk in the forum Carers 14 years, 3 months ago
Hi Teresa
It never ceases to amaze me how many carers cope for years,on there own,not just people who are away from their family,people who just seem to manage on there own.
I am not one of them,I found this forum last year and must admit if I have any doubt or do not feel things are going the way they should,I tend to come on here and gets…[Read more]
eve replied to the topic Moving at last in the forum General 14 years, 3 months ago
Hi Everyone
Well Tom it,s good to know I am not a deaf grey haired old lady and Slims not got a Complete chemo ,brain.my daughter came for the first meeting for a SCT and she confirmed to me its not panning out as explained.
Explained to us as 2 consecutive day of test,then decisions ,then cyclo and injections then harvest then SCT.
After the…[Read more]
CarolBradley1 replied to the topic another newcomer! in the forum Newcomers 14 years, 3 months ago
Hi Caz1
Sorry to have to meet you here but did just want to say Welcome!
Boy, you really are having a rotten time of it all at once and must be having quite a lot of pain.
Hope the chemo goes well and your leg mends quickly too.
Thinking of you
Love Carol xxx
CarolBradley1 replied to the topic Relapse after 5 years in the forum Newcomers 14 years, 3 months ago
Hi Janet
So sorry to hear your news – we all dread it and wonder how we will react when it comes.
Things have changed so much in five years and perhaps you could try lenalidomide or velcade – there are quite a lot of new things now.
Anyway, you try and look after yourself and make an appointment to ask your ever growing list of questions . I…[Read more]
tom replied to the topic My beautiful brother in the forum End of Life and Grief 14 years, 3 months ago
Dear Jean
I am so sorry to read about your Brother has been taken.
May I send you and His Family and Friends My Condolences and Prayers.
Love and Hugs to you all at this Sad Time.
Tom xxx
tom replied to the topic finished my sct early, what now? in the forum General 14 years, 3 months ago
Hi Terry
Well they wanted rid of you or your counts shot up 13 days thats great going (I was 16) now then as for feeling crap, I still feel like that some days.
As for the feeling cold? since my SCT I have felt the cold more than ever before and I had mine done in 2009 :-/ I was always one to be out and about in a T Shirt but now av got a big…[Read more]
tom replied to the topic Will there be anything else? in the forum Treatment 14 years, 3 months ago
Hi Gill and Stephen
Like the ones afore me and the ones behind me I also cross fingers and anything els that can be.
Am sure you are correct it will be "Bugger" all (check spelling?)
Now here we are on the "Man" Thing he he Honest I dont know what to say apart from yep Ladie's you are correct we are Buffoons, Neanderthals the lot why??…[Read more]
brocho replied to the topic FUEL BILLS in the forum Off topic 14 years, 3 months ago
Hi Eve the media furore is what prompted me to be concerned I find it very disturbing that people can be misled by a few emotive headlines without looking at the facts Hopefully common sense will prevail before things get any worse love to you and Slim Bridget x