brocho replied to the topic CDT then PADS now DT PACE! in the forum Treatment 14 years, 3 months ago
Hi Andy good luck for Tuesday hope you dont have too many side-effects love Bridget x
tom replied to the topic We have reached the end of our battle in the forum End of Life and Grief 14 years, 3 months ago
Hi Nicola
Just wanted to send my thoughts to you, and hope you are all doing as well as you can.
Lots of Love and Hugs ((())))
Tom xxxxx
tom replied to the topic Terrified in the forum End of Life and Grief 14 years, 3 months ago
Hi Joe and Gem
I am pleased to hear you are both doing well in the circumstances.
Good Luck for Monday Gem
Love
Tom xxx
tom replied to the topic Moving at last in the forum General 14 years, 3 months ago
Hi Eve and Slim
Am pleased that things are moving along at last 😀 , Its good to have the treatment near home am sure all the travel isn't that good when you arn't feeling 100%
The train sound a good idea, and could Slim use his Blue badge to make less costly?.
Good Luck for it all and Give my regards to Slim.
Love
Tom "Onwards and…[Read more]
eve replied to the topic Moving at last in the forum General 14 years, 3 months ago
Hi Everybody
Well things are moving fast now,all dates have been moved forward.
Slim was lucky,he asked could he have anything done locally instead of travelling 85 miles to London,so they allowed him to have BMB in Canterbury.
Hoping he might be allowed to have the Cyclophosphamide 5 hr drip also in Canterbury.( fingers crossed ):-P
Off…[Read more]
brocho replied to the topic HERE WE GO AGAIN !! in the forum Treatment 14 years, 3 months ago
Hi Debs thankyou and please dont be sorry for not seeing the post I have seen your facebook posts and its great to see you are getting back in the swing of things and feeling beeter than a few months ago So I am glad that you havent got time to come on here You are doing amazingly with your ball preparations I am totally in awe as I wouldnt know…[Read more]
brocho replied to the topic Newcomer in the forum Carers 14 years, 3 months ago
Hi Zoe I am so sorry you and Dan are having to go through the nightmare that a diagnosis of myeloma brings especially as he is so young, I was 52 and still felt it was too young to have cancer It is a rollercoaster in the beginning because its all foreign even the words used sound strange but it will get easier I promise As Dans treatment gets…[Read more]
Debs replied to the topic HERE WE GO AGAIN !! in the forum Treatment 14 years, 3 months ago
Hi Bridget
I'm sorry to have read this….and sorry I haven't been on here for so long to have seen what you are going through. You are always such a strength to everyone, and such an inspiration….it is not fair that you are having to go through this.
I will keep hoping and praying that they come up with a new option for you, or like…[Read more]
Debs replied to the topic Spring is on it's Way! in the forum General 14 years, 3 months ago
Good luck Chris and Lena!
Sounds like you've got an exciting time ahead of you 🙂
Take care
Debs x
Debs replied to the topic John is due for his 2nd sct in the forum General 14 years, 3 months ago
Hi Amelie
Sorry to hear about John needing a second SCT but sure it will all be fine!
Just a thought, but what about those Callipo ice pots that are full of lots of little flavoured ice balls? Think it's callipo or calypso or something???? Might be a bit more pleasant?
Debs x
mhnevill replied to the topic We have reached the end of our battle in the forum End of Life and Grief 14 years, 3 months ago
Dear Nicola
Just caught up with your very sad post. If they have put your Dad on the pathway the end must be near. I do hope he goes gently, suurounded as he is, by those who love him.
May God bless you all. You are in my prayers too.
Much love.
Mavis xxx
mhnevill replied to the topic Newcomer hoping to help in the forum Newcomers 14 years, 3 months ago
Dear Gem
Thank you so much for taking the trou8ble to answer me in such a difficult week. I do hope your Dad's funeral was a fitting clebration of his life.
Love.
Mavis
jmsmyth replied to the topic We have reached the end of our battle in the forum End of Life and Grief 14 years, 3 months ago
Dear Nicola
I am so sorry to hear the news about your dad. I hope that you get him home. My thoughts and prayers are with you and your family at this terrible time
Love Jean xx
tom replied to the topic We have reached the end of our battle in the forum End of Life and Grief 14 years, 3 months ago
Dear Nicola
I am so sorry your Dad has got to this stage so fast, My thought's are with you and your Family at this sad Time.
Please Take Care
Love and Hugs to you all
Tom xxxx
brocho replied to the topic We have reached the end of our battle in the forum End of Life and Grief 14 years, 3 months ago
Dear Nicola I am so sorry it seems so unfair that you are going to lose him to this rotten illness after swuch a short time. I hope you can get him home but if you cant he will have the most important people in his life with him and will know how how much he is loved Your dad will never leave you , he will always be in your heart , wherever you…[Read more]
tom replied to the topic velacade not worked in the forum Treatment 14 years, 3 months ago
Hi Nicola
I am sure Micky will be soon sorted out, and I know that Hospitals aint that good for the rest and relaxing but it will be better for Micky as they can sort his problems out as they go along rather than re book another out paitants.
Give my regards to Micky and please tell him that I and others have been through it and came up…[Read more]
mhnevill replied to the topic John is due for his 2nd sct in the forum General 14 years, 3 months ago
Hi Amelie
Sorry John's remission didn't last longer, but those two good years must have set him up well for the next SCT. Here's to a very long second remission. Do keep in touch.
Love to you both.
Mavis x
mhnevill replied to the topic CDT then PADS now DT PACE! in the forum Treatment 14 years, 3 months ago
Hi Andy
Just wanted to add my best wishes for the new treatment. As they pump all these drugs into you, just imagine them kicking the pesky* MM cells into touch, and let's hope it does the trick.
* Wanted to use much stronger word, but thought it might not get past the moderator!!
Love.
Mavis
mhnevill replied to the topic Starting CDT in the forum Treatment 14 years, 3 months ago
Hi Eliz
Thank you so much for your encouraging post and your encouragement. Do hope things go well for you on your MM journey.
Love.
Mavis
brocho replied to the topic Delay in Chemo in the forum Treatment 14 years, 3 months ago
Hi Tina we are in a similiar position I also have a tumour on my spine which is very close to causing spinal compression Because I have already had radiotherapy on that site I was only able to have one dose this time . So back on Dex and hoping it keeps it at bay Hope the pain gets sorted soon, make sure they know how bad it is love Bridget x