Hi Tina
Fluid is a must,I have the same problem getting water down Slim,I bought 2 plastic jugs with lids,and fill them up with week juice,and put in fridge,Slim found it easier to have a small glass,so kept it filled up constantly,he went through a stage of fizzy drinks,my attitude was anything that goes down,you will find your taste alter all…[Read more]

Hi Sue

Am so sorry to read that Michael is not able to fit the criteria to help him? how bad do we have to be to fit the bloody criteria :-S because for all intent an purpose we are all dying this Bloomim MM is at the moment a Terminal Illness so we should fit the criteria or am I just too thick to understand it all:-S

I dont know what…[Read more]

Hi All

Well I love the Irish they are great people but I cant stand that black stuff they Make 🙁 but that said it might be better in dublin? who knows I just might try a trip to dublin and try a half?, hope you all are enjoying your 3 ltr of fluid ? lord knows how much vodka I had last nit lol

Love Tom "Onwards and Upwards" xxx

Hi Sue
So many years of fighting for drugs,again like Bridget it seems so unfair,I am amazed at these criteria they have,MM patients lay them selves out to become guinea pigs ,and they get choosy who they take,are MM patients part of the grand scheme or just a by product to be disposed off if you do not meet the criteria.
Sorry I sound so angry…[Read more]

Hi Jo and Tom and all

Frank says to tell you to add guinness to the list!!!

Love jean xx

hi Tina

I was told 2/3 ltrs a day the more the better and yes it can include tea squash not much coffee for me as i have damaged kidneys also the odd glass of wine is ok if you have some water along side kidney specialist told me this I prefer red myself!!:-) 😀
Good luck Jo x

Hi Bridget

I have just read your post and I just don't know what to say. Others have said Bridget but you are an inspiration to us all – your courage, compassion and your love of life. I will pray that they come up with something you can try. My love and prayers are with you.

God bless
Love Jean xx

Dear Jo I am sorry your dad lost his fight against this horrible illness No wonder you are all in shock but stay strong and together you will get through it Remember all the good times , your dad will always be with in your memories Bridget

Hi Joe

I am sory to read about the sad loss of your Dad, I send my condolances to you and your family.

Stay Strong and know that your Dad is no longer in pain, remeber the good times and put the bad days to the back of your mind.

Keep in touch and hope all goes well for the funeral.

Regards Tom x

And a lovely Photo it is 🙂

Tom "Onwards and Upwards" xx

Hi Tina

Yes it is hard to do but i was told 3 ltr a day :-0 and that can include tea, coffee and or fruit juice I myself have also added to that list "Vodka,red wine and of course beer" ha ha.

Good Luck and Happy Drinking 😎

Love Tom "Onwards and Upwards" xxx

Thank you all for your lovely wishes and kind words Its at times like this that we appreciate good friends who understand, I am so thankful that I found this site way back when !! I am less shell shocked now and I keep thinking of random things which leave poor Jeff rather puzzled But on the whole I am being a bit of an ostrich and burying my…[Read more]

Hi Amelie

There is alays a chance for a long remission with the 2 SCT yes I know that some dont last that long but we all differ in the way that the treatment works, I honestley cant answer the reason why some work and some dont :-S Lord I wish I could.

Please take care and I wish with all my heart that John has a long and trouble free…[Read more]

Hello Terry and welcome
glad you found us its good to hear what goes on over the pond I read Dr James Berensons reports you seem much further ahead with treament than us
you are so lucky to have been diagnosed before much damage has been done my kidneys have been badly damaged good luck with holding of the progression of MM
Kind regards Jox

Hi Amelie

Sorry to read that his SCT only lasted for a short time, and hope that his 2nd one gives him far far longer, please give him my regards

Tom "Onwards and Upwards" xx

And a warm welcome from Me Terry.

I just wanted to wish you a good journey with your MM and am sure you can keep us all up to date with new treatment .

Keep strong

Tom "Onwards and Upwards"

Aww Bridget

I have read and re-read your last post I have sat her thinking what I can say, and the only thing that keeps popping into my head is (and forgive me ladies and gents) "Bastard MM", sorry bout the cuss word on your post Bridget :-S

But I am with the rest that have already posted and those that will follow my post is to say You…[Read more]

Hi Bridget
Just catching up on posts since my discharge from MM hospital issues,Gorden Bennett you are going through the mill.Since i came on this site you have been a tower of strength and always give out good sound advice.I know you will keep possitive and your advice of just listen to your body is so true.
lots love Paul

Hi Bridget

Just reading you news,and wondering what to say,sorry does not seem fitting, it is strange the way,over time with this MM it becomes another hurdle to get over,and now you are being told there are no more hurdles,well Bridget if you are prepared to jump the hurdles,they should at least be prepared to find some.
I like most people on…[Read more]

Well I had clinic today and it wasnt a pleasant experience to say the least Basically I have had all the myeloma treatments over the last five years and none has worked for any significant time The team at UCH have been looking for a trial but that is no longer an option due to the fact I am a non- secretor Its possible they may retry…[Read more]