Hi Eve Thanks for that 🙂 Lose me cos am fit not on your nelly am here to cheer you all up and wait for more to come round to my First class condition (your words not Elaines btw ha ha) as for Face book who else is on your contact list as I aint found you? do you have a photo on it?? here is a link to mine I think lol…[Read more]

Good Luck with your P Dai and hope you soon get told you can have what you want and need. Keep up the good work Dai and dont spill ur P

Tom "Onwards and Upwards" x

Hi Jean

I would take a run up to A/E and get it checked out best be safe than sorry
I did with my arm told them am not sure what I have done but I have MM and would like it Xrayed they were brill done me first in and out in an hour 🙂
Good Luck and hope its soon sorted

Love Tom "Onwards and Upwards" xxx

Hi Gill and Stephen

Sorry to read bout the chicken pox, we have just had two grandsons down with it it aint good but worse in the nether regions (double bless)

Hope all better soon xxx

Hi Dave a warm welcome to the site, pleased you found us, only had one SCT and just a mere Baby at 56 😀

Good Luck with whatever you get 🙂

Tom "Onwards and Upwards"

Hi Gill

Sorry that Stephen is having such a rough time. Hope the medication works soon. It sounds really bad. Our surgery is useless. The nurses guards the doctors like VIP's. Frank saw doctor and the said that He doesn't think it is shingles – the spots he had are gone. And not like you describe, they looked a bit like the Rosa rash that…[Read more]

Hi Jean

This MM is a bu**er! My hubby has MM diagnosed Set 2006. Only treatment he has had is Zometa. About last 9 months has had pain in side. Consultant thought it was ribs. Sent him for a skeletal X-came back no change. His protein is at 30. But as other tests are stable they don't seem to be concerned. He still has bad pain in side but…[Read more]

Hi Dai

Maybe things will work out for you for once. When you have the screenings you might be accepted on the Trial without the "p" results!!!!!

Sending lots of positive vibes for Monday.

Mavis

Dear, dear Bridget.

Will pray that this one dose of radiotherepy does have a good effect on the pain, also that they will agree to another MRI. So sorry you need one as I know you find them so painful, but at least it will be able to give you peace of mind. I'm glad that NHS money is being spent on you – it couldn't go to a better…[Read more]

Hi Tina

I can see that thinking about the Trial is daunting, but at least you know that you will be monitored very, very closely and doses will be adjusted if side effects are too bad.

All best wishes.

Mavis x

Hi Tom

Like everyone else I am delighted at your news. Fancy, nothing at all! I think once monthly zometa is good, but nothing, that's amazing! Couldn't happen to a nicer person!

Also hope we still hear from you from time to time.

Very best wishes for a long, long, phase of nothing.

Mavis x

Hi Tom,
I am so pleased for you.I hope we are not going to loose you,now your fighting fit and officially stamped to be first class condition.:-(

We need more people like you on this site,to tell us the good side,it gives a lot of people hope,so don,t think about loosing us,still cannot find you or your breakfast on FB,or Mins.

Love Eve

Hi Tina
My husband was on the myeloma X1 trials had 6 cycles of CDT with a few hiccups in between,It is a 3 week cycle of tablets which you will take home with you nurses will go over all the tablets with you,there will be extra tablets to stop you feeling sick plus others.You need to write out a chart or get a dairy from Ellen its a must for…[Read more]

Thanks Jean yes I am well we are over the moon to be Drug and bleach free Lol And Long may it continue as you say xxx

Hi Bridget, Am sure you are correct we all need Good news as we travel along the MM route to remission.

And Jo Many Thanks for the BIG Hug ((hug)) and you know am sending one Back (((((((HUG))))))

And Dai am real pleased I…[Read more]

Yippee Tom

just the news we need to cheer us up keep going onwards and upwards
Big ((((hug)));-)
Jo x

Whooppee!! Thats the sort of news that cheers us all up Tom !! Enjoy yourself love Bridgetx

Well done Tom, you must be over the moon. Long may it continue!

Love Jea xx

Hi Tina

Cant offer advice as I have never been on a "Trial" but wish you Luck, I have had SCT in 2009 and will say it has been worth it 🙂

Love Tom "Onwards and upwards" xxx

Hi Kerry
Sounds like like you guys are are really strong, stick with it as people have said the medical team will have treatment options so just ask them thats really important.The more you ask the better informed you are.
take care:-D
Paul