BADGER replied to the topic newly diagnosed. in the forum Newcomers 14 years, 4 months ago
Hi Geri
we all try to be brave on the surface but inside I dont always feel it, we have to fight this thing all the way never give in. I have had MM for three yearss went into hospital with pnuemonia and renal failure and as it turned out MM what a shock!! my kidneys are still only 20/25% so I chose not to have a Stem cell as it could of killed…[Read more]
brocho replied to the topic Same old same old (ish)… in the forum Treatment 14 years, 4 months ago
Hi Dai sorry I havent got round to answering you yet Revlimid , Velcade and Bendamustine failed to make any impact over periods of more than 3 months Each time a new tumour developed the latest is not the most painfulbut seems to have become very large in a short space of time so a bit scary especially the risk of paralysis I will certainly enjoy…[Read more]
brocho replied to the topic Same old same old (ish)… in the forum Treatment 14 years, 4 months ago
Hi Dai it is such a nuisance when you cant get the results when you need them! Like you I used to be very responsive to blood tests until after my first relapse , since then I have become a non-secretor This is likely to excludeme from some trials as they will be unable to measure performance It is so frustrating so I know how you feel although…[Read more]
mhnevill replied to the topic My GP asked if I'd heard of myeloma in the forum Newcomers 14 years, 4 months ago
Graham, All the best for Thursday.
Mavis
And Hi Tom
Thanks for that info. very interesting.
Keep battling on!
Best wishes Mavis
brocho replied to the topic Worth watching and reading in the forum Off topic 14 years, 4 months ago
Hi Jean I got a bad fit of the giggles reading your post I could just picture it!! The other thing that struck me is how innocent people were in the fifties, so different from now Roll on Sunday evening ! love Bridget x
jmsmyth replied to the topic Worth watching and reading in the forum Off topic 14 years, 4 months ago
I agree totally Bridget – brilliant. The first episode – wasn't sure – but as it progressed- brought back memories. The mid wife that my mum had was called Madge and she was a huge lady. My mum was in labour and the baby was breech – Madge needed a rest (!!!!) and plonked herself on the bed, the bed collapsed, my poor mum, told us later that she…[Read more]
jmsmyth replied to the topic HERE WE GO AGAIN !! in the forum Treatment 14 years, 4 months ago
Oh Bridget I am so sorry to hear your news. You are such an inspiration to many on this forum and if anyone can get over this hurdle you can!! I wish you well and my prayers are with you.
Love Jean xx
CAZ1 replied to the topic Coming off CDT in the forum Side-effects 14 years, 4 months ago
Hi Peter and Welcome,
I too came off CDT 2 weeks ago and initially felt great, although I had an extra weeks' additional antibiotics to go due to an infection in a healing broken leg between cycle 3 and 4. However I am now feeling much slower,things are becoming a bit of an effort,I'm having difficulty sleeping (I found that I got a decent nights…[Read more]
brocho started the topic Worth watching and reading. in the forum Off topic 14 years, 4 months ago
Hi everyone I have been watching Call the Midwife on BBC1, Sunday evenings and its brilliant mainly because it brought back so many childhood memories. I am amazed how much the way we live has changed in such a relatively short time , its set in 1957. I bought the books which are memoirs written by Jennifer Worth who was a nurse for over 20 years…[Read more]
brocho replied to the topic HERE WE GO AGAIN !! in the forum Treatment 14 years, 4 months ago
Thankyou John, David and Min how good it is to have friends who care I am as calm as can be really Had to tell the kids in a very matter of fact way so that they dont panic which helps me get a grip As you say Min tomorrow is another day and there is no choice but to get on with it! Mind you there might be a bit of whinging after 4 days of the…[Read more]
brocho replied to the topic LUMBAR KYPHOPLASTY in the forum General 14 years, 4 months ago
Hi Glenn great news about your tumour Heres hoping you get your sct very soon and have a very lng remission love Bridget x
brocho started the topic HERE WE GO AGAIN !!. in the forum Treatment 14 years, 4 months ago
Hi everyone hope you are having a good day. I thought I would give you an up date of my myeloma saga. I had an mri on Saturday , which was very painful lying flat is not kind to my back Today I had a call from one of my doctors, who informed me they had reviewed my mri in their mdt meeting this morning To cut a long story short Bendamustine…[Read more]
BADGER replied to the topic LUMBAR KYPHOPLASTY in the forum General 14 years, 4 months ago
Hi Glenn
great news your tumour has gone what a relief you can now look forward to your SCT good luck with that I hope all goes well with your op Love Jo x 🙂
brocho replied to the topic Stem cell transplant with kidney failure underway. in the forum Treatment 14 years, 4 months ago
Hi Mal and Bruce good luck for tomorrow hope all goes well love Bridget x
BADGER replied to the topic newly diagnosed. in the forum Newcomers 14 years, 4 months ago
hi Tina and Geraldine
welcome to this site so sorry you have to join but this is the best place ever for help and support and a shoulder to cry on if you need one
Love Jo x
tom replied to the topic LUMBAR KYPHOPLASTY in the forum General 14 years, 4 months ago
Hi Glenn
And a Well Done on getting rid of the Tumour
I will leave the info for your other op to some one else as i dont know anything about it? but good luck Anyways.
Tom "Onwards and Upwards"
tom replied to the topic For Tom – not for the sensitive! in the forum Off topic 14 years, 4 months ago
Am Back, and the photo's look awesome you are doing a great Job David, and i wouldn't be adverse to that being my final restbox
Tina I aint made a choice yet? but am thinking of "Burning Ring Of Fire" as they close the curtain's lol but we will see.
Helen am sat here listening to Stairway to Heaven 😎 fairly loud as no one is in next door…[Read more]
tom replied to the topic For Tom – not for the sensitive! in the forum Off topic 14 years, 4 months ago
Hi David I nearly missed this one I am going to download them all put them in a Folder and take a look al be back 🙂
Tom
tom replied to the topic newly diagnosed. in the forum Newcomers 14 years, 4 months ago
Hi Geri
You just fire those Q away girl but let me tell you before you start need owt techie then i aint ur man need a lugh need ur spirits lifting then look no further cos am that man 😀 and trust me Geri I always get upset at Tesco's Give me Morrisons ar Asda 😎 a lot of us are on F/B if you use that???
Good Luck Geri
Love Tom…[Read more]
brocho replied to the topic newly diagnosed. in the forum Newcomers 14 years, 4 months ago
Hi Tina and Geraldine welcome to the best support site there is!! Its good to hear you have faith in your doctors it makes such a difference Although you are probably feeling overwhemed at the thought of chemo and stem cell transplant at the moment it will gradually all make sense and become less scary Lots of people on here have had a stem cell…[Read more]