Hi Min glad you made it before the white stuff!! We have a smattering of snow now my grandson managed to make small snowball. I will try not to moan for Dais sake but brrr!!! Stay warm love Bridget x

Hi James
Welcome to the site.
It,s my husband with Myeloma,he is in remission after ctd then vcd,and going to Kings this month to see if sct is possible,because he is on Myeloma X1 trials,he will be randomised either for treatment or no treatment.

At the moment we do not think SCT will be the solution,as his lungs were damaged with pneumonia…[Read more]

Hi James sorry sct is stem cell transplant too lazy to write the whole thing!! I chose not to have maintenance – Thalidomide, because I felt I needed a break from all the drugs I was diagnosed in August 06, before I could have any chemo I had to have surgical reconstruction on my spine as 3 vertebrae had been destroyed before Iwas diagnosed By…[Read more]

Hi Min safe journey put your foot down so that you beat the snow!! Apparently this evening it will creep into this part of the world and carry on all night Brrrr! love Bridget x

Hi James welcome to the ste I am sure you will get lots of replies Sorry I cant help much with the maintenance issue as I chose not to have any after my sct 4 years ago . Bridget

Hi Jet so sorry to hear you didnt get any time from your sct Hang in there good luck with the allo love Bridget

Hi Jet
you must be feeling pretty low at the moment its so hard for you that the transplant didnt work,have you got a brother or sister that could give you a good match. I am ok at the moment thats all any one can say I never had an SCT because my kidneys were so damaged. fingers crossed for a good match for you
Love and (((HUGS)))
jO X

Hi Bridget

Well it is the 4th and snow warnings are out,very cold with wind,but no snow,it would not surprise me,if this little corner misses it. Eve

HI jet
You have hit the 3 F???,see if you can work it out with out my help????

before you hit 50 the 3 F was something different.

Eve

Thank you all for replying

Slim has finished Velcade,but the complaint went in before we new he had remission,but that does not matter I am concerned for people who come after us.I wish I could put the hospitals reply on here,but I cannot not,but reading between the lines,it does not pay to go on trials,you will spend more time in the…[Read more]

Hi Wendy

This may be completely unrelated but after my hysterectomy my eyes became very itchy too. I know that Deb Gascoyne and Jet Black both mentioned post SCT menopause so possibly it could be that. Absolutely no help whatsoever I know. Wish I had an answer for you.

Lorna

Hi Eve

The first couple of cycles Mike would go up to the day unit for his appointment time, be sent down to get his bloods taken and then wait 4-5 hours for the results and Velcade to be made up in pharmacy. It was only when he started the 3rd cycle that he decided to go in at 9 to have his bloods taken and then come home. Even so, sometimes…[Read more]

Hi Eve I was on Velcade a couple of years ago whilst on the Myeloma X Trial The first treatment of each cycle took the longest , questionaires etc then blood test and a wait of about an hour and a half or two hours for drugs to be made up From the second treatment onwards they used the previous blood results to make the infusion although there…[Read more]

Dear Roisin I am so sad to hear your father-in-law has died My condolences to you and yoyr family love Bridget x

Dear Roisin

I am so sorry for your loss, its a bugger of an ilness this MM.

I send My Condolences to you all at this sad time.

Love and Hugs Tom xxxxx

Hi Bridget

Hope you are well. As I was reading your post I looked out the window and it was just starting to snow – very fine. Hope it stops as don't want to be snowed in like last year!,

Love Jean xx

Hi Graham

Just to let you know I was diagnosed in Jan 09, that was after I went to see my GP in December 08 with what can only be described as I felt that I had a rolled up towel under my lower eib (left side) I felt no pain or any distress apart from the feeling that I had a "Fat" Lower rib :-S

To cut a long story shorter (I hope) after…[Read more]

Hi Marion

The reason I mentioned cc club,is lots of there places have lodges now,so no roughing it.We have a motor home and there sites are good.Follow you own needs,do not worry about your drugs,I am sure any place will help you.

Have a good holiday Eve.