Hello Eve
I totally agree with the the statement it a really good way to think
Love Jox

Hi Eve and Slim
sorry slim is not feeling so well I hope it is just a blip after coming off meds I felt a lot of withdrawal symptoms when I came off CDT I think the drugs have to work there way out of the system I havn't slept as well since not having Thalidomide. I am still lucky enough to be in Plateau I don't know how long for so fingers…[Read more]

Hi Mandy

Welcome to the site,it must be worrying for you being so far away.One of my own daughters is in NZ,so have some knowledge of how helpless she felt although my husband,has me and our other 2 daughters.

I do not think anyone going through Chemo treatment has a good quality of life and many of the side effects,can bring you down to a…[Read more]

Hi Chris

Thank you so much for posting,it does give us some in sight,knowing we have to make this big decision ,it is early days for us concerning SCT,just trying to get any information concerning SCT,its almost like having to take a couple of steps backward to advance, with not knowing if it will be worth the effort
(if that makes…[Read more]

Hi Bridgett and all those others kind enough to reply.

Just to let you know that we have taken the specialist at her word when she said to enjoy what time I had left (we have decided that´s 30 years in my case) and have beggered off to Spain for a holiday. Sunshine is great and it´s a real treat just to sit out and rest (although it´s ra…[Read more]

Hi Phil

Do hope the reduced dose is good for you – I asked on Mnday if they would put me back on a maintenance with a reduced dose but my specialist said that I was "passed that stage now" and says I should just enjoy what level of fitness I have now. Anyway hope all goes well with you and yes, I´m sure that the outside life is helping me…[Read more]

Hi Phil

And may I join our Jo in saying congratulations and a well done 😀

The doing Fair to Middling is a great saying but not as Good as "Onwards and Upwards" and that my friend is what you are Keep on going strong My SCT was in Dec 09 and I still get tired and fati gue'd lol so stick with it Phil we aint gonna be as fit as we…[Read more]

Hello Phil
congratulations on a good remission I really hope it lasts for years for you
Regards Jo

Hi Wendy sorry I cant help with the itchy eyes Its great to hear you got a good result and are feeling well Heres to a very long remission!! Stay well love Bridget x

Hi Dai what a bugger!! It is so frustrating when you are relying on results like that and have no control over it!! I hope you can get a result next time and get on that trial. It sounds like your consultant is on the ball and I am sure she will come up with another plan if needed Love to you and Janet Bridget x

Hi Carol good to hear from you and even better to hear you are doing well . I was only on Revlimid for a short while and the fatigue was the worst side effect for me Have a good time in the sun that will recharge your batteries love Bridget x

Hi Ray welcome from me too . As Min has said there are lots of people on here who have had a transplant so you are in the right place to find answers to any queries you may have It isnt a picnic , although some get through it relatively easily but it is well worth doing! Hopefully you will sail through and have a very long remission afterwards Do…[Read more]

Dai

You are not going to like me for saying this,but in the big picture of things,it does not matter what you would like,because at the end of the day ,Janet will continue to live,how she chooses to do it, it will be a measure of her self being!!!!!,Sorry DAi.
Find your fighting spirit , if you cannot get on trials,ask to have the drug any…[Read more]

Dai I wish I could give you some sound advice,but the only thing I can think of,is if you reduce your water intake it must have an effect on your kidneys.

It is so wrong that you have to comply to a criteria ,were does that leave people like Slim,nothing shows in bloods or urine,I just know when things are not right,luckly I now have a GP who…[Read more]

Hi Jo welcome glad you have joined us . It sounds as if your partner is coping well and I am sure your support makes that possible. We all need an outlet though and there are so many lovely people on here to offer you support Good luck and keep posting Bridget

Hi sorry you have been feeling rotten hope it doesnt last long. Have you asked for sedation when you have your bone marrow biopsy? I would definitely advise sedation no point putting up with pain when there is a choice Good luck Bridget

DIA
You are a one off yes very different a medical conumdrum indeed:-/ I really hope you can hold out for the next three weeks I am the other way round if things change it shows up in my urine almost straight away . I saw my consultant the other day and apparently I am still in plateau so fingers crossed I will soon be clear for three years I…[Read more]

Hi Jo and Partner

Welcome to the site 😀 and I know you made the correct decision to join 😎

Good Luck for the SCT I had mine in December 2009 and am doing great.

Love

Tom "Onwards and Upwards" xxx