Hi May I am glad you got up courage to post I am sure you will find it easier to cope with support on here. As I am sure you have realised myeloma is a very individual illness and we all react differently to the treatments so its hard to compare one person with another . Try not to get too down that the treatments your mum has had so far havent…[Read more]

oH Bridget

you are being so brave I hope this works for you I am keeping everything crosssed that it works you deserve a really long break from it all I hope the back ache is just a muscle problem and nothing else after all you have been lying around too much:-D and taking it easy ''What just two loads of washing'' is that all

Love and big…[Read more]

Thanks Everyone
For all your support,It is such good news,which has taken a long time to get to this point,but it is lovely to be here,sound a bit stupid,but at times just could not see the light at the end of the tunnel,so its good,good and even better.;-) 😎 🙂

I cannot help thinking about some people who are not posting like Sharon who…[Read more]

Hi Glenn
I originally am a scoucer,so I know that Clatterbridge from the start has all ways been a designated Cancer hospital,so you are in good hands.

Slims on the Velcade with Dex and Cyclophosphanide. VDC for short,as you progress with Zometa you will find you can do more things,iam all ways nagging Slim about doing to much,his answer is I…[Read more]

Hi Bridget

I too have my fingers crossed for you. I pray that the treatment works and the beast is well and truely hammered!!
My very best
Love Jean xx

Hi Eve

So glad to hear that Slim had been told this marvellous news. Do hope you manage to plan a cruise soon.

All best wishes.

Mavis x

Hi Nicola

I am so sorry that your Dad is having such a difficult time. It must be so hard for you too. I would urge you, while not giving up hope, to take seriously what he is saying. Maybe he has had enough. If things don'ty taker a turn for the better maybe you should be speaking to his medical team about paliative pain control and care…[Read more]

Great news eve
lets hope it lasts a real long time so yuou both can get on with your lives and enjoy your travelling again:-)
Love Jo

hello Glenn
I dont think we ever really get over the shock ''why me '' I am a bit older than you I retired early one day ok next day in hospital with renal failure double pnuemonia and MYELOMA that was three years ago I managed with the thalidmide and have been in remmission for nearly three years I didnt have an SCT( my choice )as my kidneys…[Read more]

Hi Glenn

As for pain? well I have a bit of pain but am sure it isn't down to the myeloma :-S might be just old age as all my bloods (well thats what the tell me) are Ok, only effects I had with the Zometa was a flu like symptom for a few days after getting it infused :-/

I also have a very supportive Family three grown up sons and soon to…[Read more]

Hi Nicola

I do hope your Dad is soon sorted I for one could not poo for some time when having treatment and its one of the worse things that hit me while under treatment, I hope its soon sorted.

Love and Hugs

Tom xxx

Hi Glen

I wish you well in this journey I was told in jan 09 I had MM went on 5 courses of CDT (done ok ish with it) and had to pack in work due to being tired and weak had SCT in December 09 went back to work on light dutie's and all the treatment i am having now is Zometa infusions every four weeks 😀 and when that stops (soon I hope) then…[Read more]

Hi Heather

For me staying employed and being on Sick was for me a Goal I had, to get better and back to work to show myself I can and will do it (am a stuborn cuss lol) it warked and I went back after a year off on Light dutie's still doing those "Light Dutie's" and to be honest am getting ready for giving work up 🙁 dont get me wrong the…[Read more]

Way To Go, way to go, wayyy to Goooo, that Slim and Eve, wayy to Goooo And a great BIG WELL DONE from me and the Young Bride (Elaine)

I know for you both its been an Uphill Strugle 🙁 but as I always say "Onwards and Upwards" and you two have proved it can be done 😀 well done to you and your Team 😎

As for the SCT Eve I had mine in…[Read more]

Hi Everyone
Thanks for your wishers,I know it,s just the start,but to us its a light at the end of a very long tunnel.
We will go to kings,and see what they offer on SCT but we know how the consultant feels,but as he said Kings do hundreds and they are the experts.

We are still piled up with appointments so no travelling yet,hope to be able…[Read more]

Hi Bridget

I think you would be good as our resident expert on financial matters on this site,at our hospital there is no information except a notice board note telling you to get in touch with macmillan office.I tried this when Slim was in hospital,never received a reply,made me so angry it put me off trying.
later applied for,some…[Read more]

Great news Eve you must both be on cloud nine!! Poor Slim has been through so much it must such a relief Get travelling and enjoy all the things you have been dreaming of love Bridget x

Hi Eve

Hope all your news is good. Well done you both. Frank and I l ove cruising we go when we can. Our favourite is Royal caribbean. Whatever you do – enjoy – I am delighted and so happy for you both. It has been a long road – but you and Slim show that there is a definate light at the end of the tunnel.
My love and best wishes to you…[Read more]