Hi Chris

Well am pleased you are getting the posts 🙂

After reading your nutro pp and stuff am none the wiser Lol shamed to say I have left all that stuff to My Dr's so far and it works for me 🙂

Keep on keeping strong and its grewat that the Family Nag you when you do too much.

Catcha Lata

Tom "Onwards and Upwards"

Hi Chris
Just thought I would pop on and see how you are doing? Hope these are not going into your "Trash Can" Oh ? if they are you wont be able to read this one then will (am a silly billy)

Tom 🙂

Hi Mari I am glad you had a good christmas. Dex is such a strange drug and it amazes me how differently we all react to it . I did get lots of bloating and water retention too and now always take ferusimide The other unfortunate side-effect for me is excessive wind , very embarassing ! I think the lethargy is something you are stuck with due to…[Read more]

Dear Mari
Glad to hear your Christmas was good,Slim slept through most of Christmas,but it was still better than last year,wish I could get back into reading,to be able to stop thinking about this myeloma.

No Slim did not have sub cut,when I asked about it,was told it was effecting some people,also has not come to our hospital yet!!!!!
Its…[Read more]

Hi David

Hope you have had a great holiday. Thank you for all your positive messages posted this year.

Wishing a continues remission in 2012.

Love to you and yours.

Mavis x

Hi Dai

Thanks for your greetings and a belated birthday wish from me too!

Sorry things are still tough for you. Do hope the PN subsides soon. I can imagine how difficult it must be for you having had some nerve damage in my legs some years ago. It is still difficult to get comfortable at night. Do you take any medication for the PN? I…[Read more]

Dear Michelle

However you may feel you are doing, you are very brave to have got your head round things enough to plan your husband's funeral, but we will all be hoping and praying that this is not the time you need it. Sometimes preparing for the worst is a neccesary part of being able to cope with all the distress and uncertainty.

Love in…[Read more]

Dear Ed

Welcome to this site – know other carers will give you the support you need, but hope you can find some nearer home too.

I am now in the "wait and see" plus Zometa phase and take comfort with every consutation where this continues. I take heart that there are lots of folks out there for whom this phase lasts for years. I remember…[Read more]

Hi Lyn

Just caught up with your posting. Sorry you and Pete have had such a difficult time and then eventually getting the mind blowing diagnosis of MM. It is such a lot to take in. After just over a year into all this I am just beginning to appreciate just how hard it was for Gordon when I was first admitted to Hospital, had emergency…[Read more]

Hi everyone!

Yes, all the news that comes out, including latest stuff from ASH (See Myeloma Beacon Web Site) is so encouraging. Let's hope and pray we are all in this FOR THE LONG HAUL!!!

Lots of love to everyone for 2012 and many more years to follow.

Mavis xxx

Hi Shirls

Glad you had a good Christmas and that people spoiled you. As others have said – yopu deserve it.

We had a good Christmas. I drove to and from London, from Yorkshire, and was so grateful there was no snow this year as this was the first Christmas Day we have spent with the grandchildren aged 4 and 20 months. We were all so…[Read more]

Hi Jean and Frank

What a lovely day you obviously had. A good excuse to forget the dreaded MM and the bad time Frank has had the past few months. A lovely picture to bring back wonderful memories in the future. I still enjoy looking at my daughter's wedding photo and it was ten years ago. One of the best days of my life!

All best wishes…[Read more]

Hi Helen

Sorry about the infection and the alergy to the wig! What luck. Still, at least your hair is growing – another couple of months and this hard period will almost be behind you.

Amazed that you had energy to cook for so many.

Have a really good year in 2012. May it feel like a new beginning.

Mavis x

Hi Chris

Sorry you have had to join us! I feel for you as you come to terms with this life changing diagnosis. I find, now it is over a year since mine that I have come to an easier accomodation with MM. Fortunately, so far, apart from surgery on my back and radiotherepy, and now monthly zometa, for my bones, I haven't had to have any other…[Read more]

Dear Ed

I am so sorry that you have had to join our exclusive club but you are very welcome. You will meet terrific people here who are a mind of information. My hubby has MM he was diagnosed Sept 2006 and like your wife they are monitoring him. the only treatment that he has had is Someta. he has good days and bad days – and I will be honest…[Read more]

Dear Michelle

So So Sorry that the Bloody MM has fought off everything and left you and your Husband in Limbo.

Its a Bugger that you are both waiting for a trial to start? lord knows why they dont start one for you NOW ? am sure it wont harm but it may help.

Keep strong the team will be having talks about the what next treatment at the…[Read more]

Hi Dai sorry I missed your birthday post but good to hear you enjoyed yourself , I wouldnt expect any less of you! Sorry cant help with the pn problem although mine did go away after a few months of stopping Velcade and I remember thinking it was taking forever too I really enjoyed christmas and having 2 daughters ,grandson and dog to stay but…[Read more]

Dear Michelle I can only imagine the pain you are going through as Min said this bl–dy awful illness! Dont give up yet I was on Velcade and Revlimid neither one worked but my doctors have put me on Bendamustine and Thalidomide I am not on a trial but apparently these drugs can be applied for under special circumstances Ask your husbands doctors…[Read more]

Hi Chris welcome Although it has been 5 years since I was diagnosed I can remember feeling very confused , angry , sad and at other times flippant and off- hand about it, I imagine a lot of people would also recognise your description too so you are not alone. Believe it or not things will get easier as you get your head around the treatment and…[Read more]