brocho replied to the topic PROGRESS SO FAR in the forum Treatment 14 years, 7 months ago
Hi Helen and Sue thankyou for asking. I am still struggling with the tiredness which I assume is Thalidomide Sometimes its scary , the other night I dozed off on the sofa woke and went to get a drink in the kitchen when I looked at the clock I realised I had fallen asleep standing up for an hour in the middle of the kitchen!! Friday and Saturday…[Read more]
brocho replied to the topic CHRISTMAS in the forum Off topic 14 years, 7 months ago
Hi Tom he is sooooo gorgeous!! a real cutie and I like the idea of grandads cuddling chair love Bridget x
eve replied to the topic CHRISTMAS in the forum Off topic 14 years, 7 months ago
Tom
What a lovely photo,that,s what it,s all about kids,must admit I enjoy it more with the grand children,I think when it,s your own children you so busy running yourself ragged,you get tired before Christmas comes.
Have started shopping for Christmas so getting in the mood the sun is still shining on our little part of Kent8-)Love Eve
eve replied to the topic Mum has passed away 🙁 in the forum End of Life and Grief 14 years, 7 months ago
Dear Gina and Sister
So sorry,even when it comes and you have prepared yourself for the worst it still comes as a blow,you have a lot of good memories to treasure,and i am so glad you got your mum home to die,that in it,s self must be a great comfort to you both.All my love Eve
eve replied to the topic another newcomer! in the forum Newcomers 14 years, 7 months ago
So pleased for you Carol it must be like father christmas delivering a present early,:-)
Take it easy and look after yourself and enjoy this moment love Eve
brocho replied to the topic another newcomer! in the forum Newcomers 14 years, 7 months ago
Hi Carol thats wonderful news!! No wonder you are walking around with a big grin and how nice of your consultant to phone you with good news Your sons question about Dex day really made me smile, it just shows how much impact Dex has on our families as well I am crossing fingers and toes that next weeks results will be more good news for you…[Read more]
jmsmyth replied to the topic About As Off Topic As You Can Get 4 in the forum Off topic 14 years, 7 months ago
Roz not SIMPLE to count calories at this time of year.
PLE next
Jean x
jmsmyth replied to the topic Is this a disaster? in the forum General 14 years, 7 months ago
Hi Amelie
Frank was diagnosed September 2006. I asked when he would start treatment and consultant said not yet and she has being saying that every two months since. She explained about the other tests and how they were stable and that MRI showed no abnormalities. I'm the one who asks the questions as Frank doesn't want to know. I now take a…[Read more]
CAZ1 replied to the topic another newcomer! in the forum Newcomers 14 years, 7 months ago
Hey guys
I've had some good news today-my consultant so pleased he sent me the results. My Kappa free-light chains have dropped from 190 to 12 with just one cycle of CTD , lower than they have been for 18 months or more. I've always been just above the normal level of 3-19 and they started shooting up st the time that I broke my leg 6 months…[Read more]
eve replied to the topic Treatment failed in the forum General 14 years, 7 months ago
Hi Chrissie
I stand by what I said last time involve your daughter-in law,she just might turn out to be the daughter you never had,you will not know unless you give it a try,no one can manage on there own,take my word for it,I am very much an independent b—-r,but my son-in-laws came up trumps.
Get SKYPE I talk to my daughter in nz all the…[Read more]
tom replied to the topic Support group xmas dinner x x in the forum General 14 years, 7 months ago
Hi Shirley
Am please you are more positive now as am sure a good mind is a great healer 😀 but dont do too much
Love and Hugs Iccle ole me xxxx
Debs replied to the topic Revlimid and fluey aches in the forum Side-effects 14 years, 7 months ago
Thanks everyone. Had a terrible night and morning. My poor 5 & 7 year olds had to get up, dressed and make their own breakfast! They then played until their dad phoned from conference at midday, found out I was ill and came home to look after us all. Thank god we brought them up to be independent and thank god I married nick!! Felt like such a bad…[Read more]
brocho replied to the topic Revlimid and fluey aches in the forum Side-effects 14 years, 7 months ago
Hi Debs if I remember right there were a few occasions when I felt achey on Rev, this was early in treatment and didnt last.As for colds I didnt have constant colds but I was constantly full of snot !! Classy! It actually drove me nutsand as there was nothing to be done about it I just got used to it Hope your aches dont last long love Bridget x
brocho replied to the topic SCT – Tips and tricks! in the forum Treatment 14 years, 7 months ago
Hi Vicki be prepared for your dads appetite being changeable as most people find their taste buds are affected. So lots of little snacks that are easy to eat , individual pots of jelly , small portions of cheese small tins of fruit with a ring pull Your dad will be able to tell you what he fancies! Also some soothing wipes to use instead of…[Read more]
brocho replied to the topic Mum has passed away 🙁 in the forum End of Life and Grief 14 years, 7 months ago
Dear Gina I am so sorry to hear your mum has passed away but you must be relieved to know she wasnt in pain Your mum must have felt so loved surrounded by her lovely family , there is no greater gift Take care of yourselves and hold on to all the wonderful memories you have love Bridget x
jmsmyth replied to the topic Mum has passed away 🙁 in the forum End of Life and Grief 14 years, 7 months ago
Dear Gina
I am so sorry to hear of the passing of your mum. My sincere condoloncencws to all your family. It is a blessing that she passed peasefully and got to see you get married I willl be thinking of you and send my love and prayers.
Love Jeanx.
jmsmyth replied to the topic CHRISTMAS in the forum Off topic 14 years, 7 months ago
Hi Tom
He's georgous – just like his grand dad (sorry young bride)!!!
Jean 😛
tom replied to the topic CHRISTMAS in the forum Off topic 14 years, 7 months ago
Hi Eve
Well we are on our second dishwasher 😀 so it works for My young bride and I 😎 it even leaves me more time to spend with my grandsons please see attached photo of our youngest Grandson on the "Granddad Cuddle Chair" Little Max is 8 Months old 😀
Ps Done it in Black and White for those that are Colour blind lol
tom replied to the topic Treatment failed in the forum General 14 years, 7 months ago
Hi Chrissie
Am so sorry to read you are in a dark place I am sending you Hugs and Prayers to you Both at this difficult time.
Stay strong and use the help offered for you to have a bit of a rest also am sure it takes it out of the "Carers" as much as it does us MM Patience.
Tom (((hugs))) xxx
BADGER replied to the topic CHRISTMAS in the forum Off topic 14 years, 7 months ago
Hello Jean
my funny present was when we were newly weds and he was very informed!!! he bought me a nighty my granny would have loved pink flannelette never again!! what was he thinking of:-)
Love Jo x