Oh Eve you made me (and still am) Laugh out loud aww poor Slim he he, I remeber My Transplant and that made mine fall out and one of the Nurses cut it short:-0 short:-S but it was still "Moth eaten" so when I got home the first thing I did was take the shaver to it and took it down to Raw Wood yep a male Sinead :-S only hair I had was Eye…[Read more]

Hi Sarah
I live about 40 min from you,and Deal is frost free,on are way to Canterbury this morning you could see frost in the small villages low down of the road,but otherwise this little corner of England tends to have French weather.

I am glad you are going to have all the family,its so important the first year,if your worried about the out…[Read more]

Hi Only me
Just to try and give you a little bit of support,i cannot help you as Slim has not had SCT,but am posting to say people who have been in your mums position,say it,s worth it in the end so hang in there,this post should take it back to top and more people might see it and reply to you.
Good Luck Eve

Hi Everyone
Well last night I did it, could not look at the moth eaten man any longer,so decided to get my scissors out,he moaned all the way through it,told him he was lucky I did not get the dog clippers out:-P
Have cut Slims hair very short to give it more body,he tells me,when he was a marine he never had it so short,think he is telling…[Read more]

Hi Carol
That,s wonderful news about your family,very hard on your daughter to make that trip,but she is so far away and the worry must be awful.:-S
My daughter could not get over how Slim looked so ill!!! but saying that has now put on 1st 8lb and looks so much better has his bad days when he tries to do to much,:-( but is OKish.
When Slim had…[Read more]

It's been a few weeks since I have posted on here.The days seem to run into one another! I am on week 5 now with the Thalidomide dose doubled when I saw my Consultant. Having said it was OK two weeks ago, I'm now finding that my body responses to the steroid 'dump day's are becoming more challenging and lasting longer, possibly as a result of…[Read more]

Hi Eve

Yes really looking forward to having everyone here. After all my moaning we had a beautiful sunny day today – a bit cold but nice to see the sun.

Enjoy your shopping!!!!!!! Will be thinking of Slim and saying a wee prayer for him. Hope all goes well.

Love Jean x

Hi Jean
It sounds if you are going to have a wonderful long Christmas,make the most of it,as the family get bigger they start to scatter,so make sure you have a wonderful Christmas.

The weather here is beautiful,as long as the sun is shining ,we go for at least 2 walks a day having the dog,and for the end of November it is wonderful.

I have…[Read more]

Hi Gina

Just wanted to ask how things are? I know it will be a busy time for you all, but this is just to let you know I am thinking of you all.

Love Tom xx

Hi Shirley

Sorry to hear about your Lungs re GVHD BUT am pleased you had a great time at the groups Xmas Dinner and the moral of this one is Get out Often and eat good food with good people it always helps 😀

Love

Tom "Onwards and Upwrds" xxx

Morning Eve

I love Christmas and I have most of my shopping done!! It's not that I am that well organised, it is because we are having 22 for Christmas lunch and then a lot more people that night. The reason is our baby Steven (28)is getting Married on 27 December and God willing all of the family will be together – the first in a long…[Read more]

Hi Helen and the rest of you young Ladies am sure its an awful thing to happen to a lady during and after treatment 🙁 as for me when I lost ALL my hair (cept eyelashes) it was the only time i looked poorly and that I didn't like as I dont class myself as being poorly I class it as My Today Challenge He he, and that works for me am honestly…[Read more]

Hi Jo

I too am delighted at your news. I am roooting for much more than 3 years partial remission for you.

Love

Mavis x

Hi only me

Sorry, can't answer the question about SCT, but wanted to send my best wishes to your Mum – she is having a rough time. From what I hear from others, the end to these horrible reactions do come to an end.

Hang in there – good job your Mum has you fighting for her.

Love to you both.

Mavis

Hi Helen

It's strange isn't it! Because of the various side effects of treatment, in your case hair loss, we wish the months away – it's hard isn't it. I do hope the Revlimid maintenance works for you and the side effects diminish. I guess if not you can ask for a lower dose. You have already put up with so much.

Hairs to the…[Read more]

Hi All

ALTERNATIVE leaving IVE for next

Jean

Hi Helen last year I was so grey it was like looking at a stranger in the mirror till I had it dyed !! What a differencee instantly felt brighter and more lively so boo to growing old gracefully !! You should wait 3 months after chemo before dying , I booked my appointment for 3 months and 1 day !! Happy hair days love Bridget x

Hi Everyone
Plasmacytoma is treated with chemo unless it causing damage to spinal cord,Slim has tumour on spine plus lesions on shoulder blades and skull,when I asked about how long he had,had it,and what stage it was at,I was told,the do not do stages any more and they considered when it became painful was the start of it!!!!!

I can see why…[Read more]

Hi Everyone

DETRIMENTAL leaving TAL

Eve