Hi Sarah

The Thanks goes to the Young Dai Crowther 😎 as he started the Original thread on the old site, am sure you could sit still for two seconds while some one took your photo? me if I see a flash or hear a Camera shutter I turn my head to it with a great big smile Lol love the camera 🙂

Love
~
Tom "Onwards and Upwards" xxx

Hi Roisin

A Warm welcome to the site.
I am so sorry to read about your Father in Law's problem I hope things can move along Fast so that you all get and use the help you all deserve.

Having four children can a rota system be put in place so as Dad is not left too long on his own? and take a bit of pressure of you for a little bit?

You…[Read more]

Hi Everyone

Well this one is kicking in nicely and for that I/we have Dai to thank for kicking it off on the othersite (the one i miss)

Roz four weeks where has the time gone Hugs sent ((((()))

Elizabeth now do you want to retire? am sure am not ready yet but come winter I will want to pack it all in your Stained Glass sounds great…[Read more]

Hello
I Like the idea of this developing thread of where we all are.My name is Paul(outdoors Paul) and i turn 40 in December(so propping up the younger end).I live on the Yorkshire/Lancashire Border and am receiving treatment in Halifax and St James Hospital Leeds (SCT).Currently on the RCD pathway and being lined up for SCT in Feb.…[Read more]

DETERMINED up next NED

Jean x

Hi Mari I know what you mean about not feeling old! In my head I am much younger than in reality so I have to avoid all mirrors!! Happy birthday for tomorrow I hope you have a lovely day and are spoiled rotten love from one teenager to another Bridget x

Hello Tom

I live in Hatfield Herfordshire I attend Lister hospital and uch London
I am 64 will you still love me!!! no tune like an old tune

Love Jo x

Hi everyone I too was born in 1955, a very good year Tom!! I live in Houghton Regis Bedfordshire, a few miles from Luton airport My hospital is University College Hospital in London The haemotogoly team is led by Dr Kwee Yong who is well known in myeloma circles , they are brilliant I had to retire when I was diagnosed but I used to work for…[Read more]

Hi Sarah
Did not know you lived so close,Slim and I live in Deal in Kent.
I am a young 63 years going on 21 and a bit,Came from Liverpool to Kent 40 years ago.Love the south but miss the northern sense of humour. Eve

Roz I am sorry that you are having such a terrible time. Rachael has to see a counsellor because SHE wants to. She can't be forced to go. It takes courage but I had got to the end of tether. At one of our sesions, Declan ( consellor) started a discussion on a certain subject and I kept thinking to myself "Why is he talking about that, it has…[Read more]

Hi Roz

Well Donny aint that far and Born in 1960 well ur just a young un Lol.

Hope your doing well.

Love Tom xx

Hi Chrissie so sorry Davids mm has gone up , no wonder you feel devastated Hopefully they will come up with the right combination to bring it down very soon All fingers and toes crossed for you.The trouble with all these anti-cancer drugs is they are so toxic we risk damaging our kidneys all the time I always worry that mine will just pack up one…[Read more]

Hi Chrissie and David

Sorry to hear its gone up but am sure once they find something that works for David it will soon level out, its a B u g g er when what you need to make you better makes you worse:-( .

Lord help them get something sorted that cures it or at the least puts it in remission with no side effects am sure thats not too much to…[Read more]

Hi Roz

Is Rachael having counselling? At least she knows what the problem is and can get help. My sister had a similar problem when our mum died. She got it sorted.

Don't be scared of going to the counsellor. I think the most important thing is that you like your counsellor. First time I went I didn't like her and they changed me to…[Read more]

Hi guys
Just a note to say I was prescribed pregablin or lyrica but my GP wouldn't prescribe it as our local PCT has blacklisted it!! We are in the process of appealing it but as you can imagine it is a long process. I'm doing fairly well on gapapentin and nortriptylin and even trying to get rid of the oromorph which I've become dependent on. But…[Read more]

Roz I'm so glad that you have at last got an appointment. First appointment feels a bit weird but it does get better. I hope at long last you get sorted.

Keep strong
Love jean xx

What about GRINNED leaving NED

Love Billy No Mates x

Hi Chrissie so sorry , I didnt think about using the abbreviations and there is nothing worse when you are just getting used to the jargon. The induction chemo is the chemo used to lower the paraprotein levels to as low as possible before a stem cell transplant High dose steroids are usually given as well . The bmb is bone marrow biopsy , used…[Read more]

Hi Gina congratulations on your wedding I am glad it went well and you enjoyed Although your mum wasnt well enough to be there she must have been so proud of you. You look so beautiful in the photos and the children are gorgeous too, thank you for showing us . I am sure your mum loves looking at your photos . In looking after your mum at home…[Read more]

Wow Beautiful Photo's Gina I am so pleased to have seen these of your wedding, Now I have to say "If you are as happy as Elaine and I should have been you will love it.

Have a Great Life and Hugs to you all xxxxx (((()))))

Tom