brocho replied to the topic PROGRESS SO FAR in the forum Treatment 14 years, 7 months ago
Hi Mvis that was a great brainwave! Your idea about recording our symptoms etc would be a good one perhaps our moderators will read your post and suggest something I am getting expert at doing the injections now and most of the time it doesnt hurt at all !!The other plus factor is I dont have any bruising when I do it whereas my tummy was black…[Read more]
brocho replied to the topic Treatment failed in the forum General 14 years, 7 months ago
Hi Chrissie it did take several months before I felt the benefit , I was diagnosed in August 2006 I then had induction chemo before having a stem cell transplant in April 2007 It took most of that year to feel well again and then I had to have a hip replacement as the steroids had destroyed my hip joint! I agree with Eve one day at a time helps…[Read more]
BADGER replied to the topic WELL THE DEVIL IS BACK in the forum Treatment 14 years, 7 months ago
😎 Hi Tom
thanks for the mail address that was a (((sooper))) thought 🙂
Love Jo8-)
BADGER replied to the topic WELL THE DEVIL IS BACK in the forum Treatment 14 years, 7 months ago
Dear Mavis
they are treating my MM early because of my kidneys on failure last time I had 22% bench jones which was a major factor in the failure so although my PP's are low the bench jones is rising so they thought better early intervention would be better I am having velcade infusion at my local hospital in Hertfordshire but UCH have said if…[Read more]
eve replied to the topic Treatment failed in the forum General 14 years, 7 months ago
Hi Chrissie
My name is Eve and I have watched my husband go from a very health man to someone who lost 4 st and lost 5inches in height,and yes I thought I was going to lose him.CTD did not work,Velcade is working for him.so I do have some idea how you feel.
You have to take it one day at a time,and when the good days are there enjoy them.his…[Read more]
brocho replied to the topic Treatment failed in the forum General 14 years, 7 months ago
Hi Chrissie I know its awful when you first hear the words that tell you your loved one has myeloma At the moment I am sure everything seems very scary with all the drugs and terminology But things will get easier as he carries on with his treatment and you will see him looking and feeling better . It sounds as if his doctors are being cautious…[Read more]
tom replied to the topic New Kitchen in the forum Off topic 14 years, 7 months ago
well lets see if mins kitchen will join mine ha ha
photo attached :-/
well it aint gone ???
tom replied to the topic New Kitchen in the forum Off topic 14 years, 7 months ago
Well I aint a clue whats happening on here I cant find this thread only got on it (i hope) by going through an old email:-/ well lets see if it gets lost in Cyber Space lol
tom replied to the topic ? in the forum Off topic 14 years, 7 months ago
Well Min I have tried to post your Photos of your new Kitchen but it wont let me for some unknown reason :-S
Mind you think it might be a "New Kitchen" thing as mine has gone?:-/ but hey ho I will try and post the photo on here BFN
tom replied to the topic Min's New Kitchen in the forum Off topic 14 years, 7 months ago
well it aint on the last one :-S so lets try again 😀
tom started the topic Min's New Kitchen. in the forum Off topic 14 years, 7 months ago
Hi All
Well here I am trying all day to post Photo's of Min's new Kitchen and it wont let me ? so here I am trying again.
mhnevill replied to the topic PROGRESS SO FAR in the forum Treatment 14 years, 7 months ago
Hi Bridget
Glad to hear your rash is subsiding. Hope your energy levels rise soon. Guess your tum must feel like a pin cushion. Wonder if they will ever get it so that these drugs can be used with drivers diabetics use, which I understand aren't so painful.
Something Dai said a while ago struck a chord with me, and thinking of all you…[Read more]
mhnevill replied to the topic WELL THE DEVIL IS BACK in the forum Treatment 14 years, 7 months ago
Hi Jo
I must have missed this post last time I was on site. I am gutted that you have to start treatment again – you were doing so well and so upbeat. However, that will stand you in good stead for this next round of the battle. Your PP levels sound low so was the treatment started just because of your kidney problems? Excuse my ignorance,…[Read more]
jmsmyth replied to the topic Where's Dai? in the forum Off topic 14 years, 7 months ago
I think the one in the middle – doing the Al Jolson impressiom.:-P
Jean
eve replied to the topic bad news 🙁 in the forum General 14 years, 7 months ago
Hi Gina Sister and Mum
How are things going,have been thinking of you,did you have a good wedding???
How are you holding up,it must be hard for the family,just to let you know you are not forgotten .Love Eve:-)
tom replied to the topic New Kitchen in the forum Off topic 14 years, 7 months ago
Hi Min
Am sorry you aint been able to post ur New Kithchen Photo's:-( mbut if you want you can Email them to me and I would be pleased to post your Kitchen Photo's 😎 if you wish for me to do it for you send them to t.lappin1@ntlworld.com
Only send three at a time though Min but send as many as you like 😎
Love and Hugs (())
Tom…[Read more]
tom replied to the topic Not New to the Forum in the forum General 14 years, 7 months ago
Na then Ted
Are we going for another "Long" Thread he he am up for that lol.
I am also pleased your health is Good and long may it continue 😎
And as for catching bugs and the like "Well" here I am about three weeks post Flu/swine flu and also that 10 year one? and am B O L LOCKS.ed .com never felt so rough in my iccle short life :-S…[Read more]
tom replied to the topic WELL THE DEVIL IS BACK in the forum Treatment 14 years, 7 months ago
Hi Jo
Well am well pleased the "Cyber Rubs" worked (gosh i love this internet lol)
Am sure you are gonna crack this and all other treatment that you may need to take 😀
Jo I also would love to give you my Email addie t.lappin1@ntlworld.com and hope its ok for you.
Love and Hugs ((()))
Tom "Onwards and Upwards" xxxxx
tom replied to the topic A NEWBIE in the forum Newcomers 14 years, 7 months ago
Na then Dave
How are you doing?
And I hope the info that has been offered will help you on your travel? if you have (and am sure you will) any problems or side effects just ask and our merry band of MM'ers will try and help you through it 🙂
Stay strong Dave and if you feel you need more info or contact you can Email me at…[Read more]
jmsmyth replied to the topic Smileys in the forum Off topic 14 years, 7 months ago
Hi Jo
Great to hear from you. As I type the rain is throwing it down. That's why the song says "forty shades of green". >:-( We have been trying to get velux windows put into the roof space. Been waiting for weeks as the joiner can't do it because of the rain. We are in luck – accoding to the weather forecast on my phone we will see a little…[Read more]