KerryDowell

  • tom replied to the topic update on henry in the forum Newcomers 14 years, 7 months ago

    Hi Sarah and Henry

    Looking good that Henry is doing well on his 5th cycle 😀

    And Sarah Honest it aint no good holding things back, as I tell my Youmg Bride Elaine I might have MM but I aint gonna break so if it needs saying say it 😀 and she now does (should realy tell her i dint mean her to be this loud lol)

    Hope all goes well with…[Read more]

  • brocho replied to the topic PROGRESS SO FAR in the forum Treatment 14 years, 7 months ago

    Hi Mavis sorry to hear you are feeling a bit down , I think its inevitable we all do from time to time . Hopefully the visit from your daughter and grandchildren tomorrow will put the sunshine back in the world. I treasure my time with my grandchildren especially George who is the eldest ( I so we are very close.was there when he was born) , he…[Read more]

  • mhnevill replied to the topic PROGRESS SO FAR in the forum Treatment 14 years, 7 months ago

    Hi Bridget

    Good to hear how things are going. Sorry about the sickness, but you seem to be managing things with your usual determination and courage.

    I was feeling a bit sorry for myself this evening as my general lack of mobility and tiredness were making it very hard to get ready for a vist from my daughter and two grandchildrenou (4 and…[Read more]

  • Thanks for the info Helen.

    Hope whichever arm of the Trial you are put on it works for you. As you know I have every admiration for those of you willing to take part in the Trials.

    Here's to a "good hair day" soon!

    Mavis

  • mhnevill replied to the topic Fingers Crossed in the forum General 14 years, 7 months ago

    Hi eve and Slim

    What a hard road you have both travelled to get to this point. What a relief, at last, to hear some good news that makes all the difficulties of the Velcade treatment worthwhile.

    Here's to the next two rounds really knocking this dreaded MM on the head.

    All best wishes to you both.

    Mavis

  • Dear Abi

    Like the others I wanted to say welcome to the site and to assure you that things are moving fast with the treatment of MM, and as Dai says, many in a similar position to your Dad have responded very well to treatment. It isn't a walk in the park, but neither is diagnosis the end of all hope.

    All best wishes for Monday. I do hope…[Read more]

  • Hi Penny welcome your wonderfully positive attitude to mm will get you through it !! Being young and fit will also be a big help Just be careful to rest when your body demands it as treatment takes it out of you But I have no doubt you will be running, cycling and mountain walking again before very long Good luck and if you need support there…[Read more]

  • Hi Abi

    I am sorry that you have to join our merry band but a heartful welcome. You will get support, information and even fun (although you wont feel like that now) from the people on this site. I agree with David about the recorder. My husband has MM and Elizabeth (on the forum) mentioned about the recorder. I bought one from Gizoo.co.uk.…[Read more]

  • jmsmyth replied to the topic Fingers Crossed in the forum General 14 years, 7 months ago

    Eve so happy for you both. I know the relief that you are feeling. Long may it continue. As Tom says "upwards and onwards".
    Love Jean x

  • Hi Belles it must be awful seeing your mum suffer but at least you know its par for the course Hopefully it wont last long and then she will start to feel better Hang in there it will be worth it in the end when she gets a very long remission and you can both get back to normal life love to you both Bridget x

  • brocho replied to the topic Fingers Crossed in the forum General 14 years, 7 months ago

    Hi Eve great news it was a long wait but bet it feels worth it now!! Hope you and Slim have got your mojo back today and go and celebrate and RELAX a bit love Bridget x

  • eve started the topic Fingers Crossed. in the forum General 14 years, 7 months ago

    Hi Everyone
    Am I happy YES,
    Saw Slims consultant yesterday after 14 week,not knowing if the 80 % of Myeloma Cells were being reduced by the Velcade because Slim has become Non Secretor,well as you can guess they have been reduced to 10% in marrow,still along way to go,at least 2 more cycles possible 4.After 10 months of treatment with no break…[Read more]

  • Welcome back Min. New photo? Or am I not very observant? Very nice. YAPPING – what my Westie is doing at the moment. ING

    Jean x

  • tom replied to the topic another newcomer! in the forum Newcomers 14 years, 7 months ago

    Way to go Caz

    And I wish I kept some form of notes 🙁 cos i would love to see how I reacted with all my Tabs 😀

    Keep it going strong.

    Love
    Tom "Onwards and Upwards" xxx

  • BADGER replied to the topic PROGRESS SO FAR in the forum Treatment 14 years, 7 months ago

    Hi Bridget

    so glad you are manageing the treatment what sort of dose are you on for the thalidomide I found when on that and dex it was the only way to get a good sleep I say my prayers for you that this works and gives a you a long relief you certainly deserve it

    Lots of love Jo x 🙂

  • jmsmyth replied to the topic Hangers On in the forum Side-effects 14 years, 7 months ago

    Hi Eve

    Hope things go great for Slim today. Will cross everything.

    Jean xx

  • eve replied to the topic Hangers On in the forum Side-effects 14 years, 7 months ago

    Well Dia
    Are you doing as you should and listening to your body!!!:-P

    Bridget what is it with kids,that its always mums fault,I could write a book about all the things I am responsible for,even to them marrying men over 6ft!!.It seems because I married a small man,they have hated not being taller so I am to blame, LOL.:-S
    Any way it,s…[Read more]

  • eve replied to the topic PROGRESS SO FAR in the forum Treatment 14 years, 7 months ago

    Hi Bridget
    Good to see you posting,and glad to hear not many side effects from Bendamustine.Sue,s husband who is on it,is not bringing PP down,but again not going up.
    As for the apology about inhalers I do not expect one,this is what this site is about information and discussion and we women can talk talk and talk.Eve

  • brocho started the topic PROGRESS SO FAR. in the forum Treatment 14 years, 7 months ago

    Hi everyone just a little update on my Bendamustine treatment , it may be useful for someone ! Tomorrow I will have my third dose of Bendamustine it hasnt been too bad so far The worst thing is feeling terrible the day after, I have been sick and had an awful headache on both weeks despite taking Domperidone for the sickness. Once Saturday is out…[Read more]

  • If you did swallow a dictionary you might need AROMATHERAPY to help with indigestion!! Leaving APY love Bridget x

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