Hi Sindy

Sorry you had to join us but welcome to the site. They are. Great bunch of people here who will be there for you to help in any way. Have you a tarted treatment yet? My husband had SCT March 2013 and is in remission. Thank God. See you along the road

Jean

Ps part post missing lol.

Good luck with yours
Love Tom onwards and upwards. Xxx

Lord knows why it leaves some out ?? Think I might be using the wrong ink lol ha ha xxxx

Hi Carol

Well post SCT I done a few months taking anti virals and anti sick, and Zometa ant ye Zometa was for just two years, apart from that I was drug free

HI Vicki and Colin
thanks for your kind thoughts I seemed to have managed the MM better than the kidney issues strange but true
Keep well love Jo

Hi Vicki and Colin, thank you. I joined this forum when first diagnosed with smouldering myeloma and have had the benefit of reading all your posts and others at the various stages people are at. It is very reassuring to have this forum and the support of Myeloma UK. Best wishes Andrea xx

Aww you have my positive attitude am sending a little bit to you today,
Hope ur doing ok ?? We are off to Chester tomorrow for a few days seeing as we can’t get in a plane decided to go in a posh hotel instead ha ha.

Velcade today but think am gonna save those little Dex tabs till tomorrow do I can party all night in Chester he he

Love to you…[Read more]

Hi Polly

I read Pat,s and Arnie,s opinions as well,interesting reading??.?

I like the way you substitute fat for curvy lady,and as I am fat,I won,t be singing,!!! Lol

Seriously Mandy,start fighting,I hate the word fight!!! But your attitude,your will to live will carry you a long way
I would urge any doctor not to have a set agenda!!!,they are…[Read more]

Make sure you keep in touch!!! One day you just might see me there,never say never is my motto!! Life is on hold!!!!but Myeloma makes you realise,dreams have to be lived. Love Eve

Hi Mandy

The day you posted your sad news April 3rd I also got an email through from the Myeloma Beacon namely Pats Place a fellow sufferer stating( when the end isn’t the end ) it makes interesting reading and as far as I am conerned nothing is over until the curvey lady sings give it a read you may find it reasuring and hope you take some…[Read more]

Hi David

No surprises there then!!!

Saga was originally a family organisation,a couple of years ago the man who owned it sold it to the AA.They have since sold it on to an American company,it is now far removed from the original company.

I live 15 miles away from Folkstone which is the main head quarters ,I use to have all my insurances with…[Read more]

Hi Carol

No hair!!! Scar on chest!!!,you make me laugh some times,but in a good way,were,s your ozzy spirit.
Tell them to get this thing out,you want to look good on a Ozzy beach!!!!.Eve

Hi Mandy

Why not ask him what he would do if he was in your position,????? But still get another opinion?????,they all have different school of thoughts.

I can only tell you,Slim was basically told,no treatment,would support him so go home and die,he is now being treated by another hospital after a second opinion,and yes we realise he still…[Read more]

Hi Carol

Slim had the opposite of you,when they put it in it took over 4 hours,lot of pain,and because of this when it was removed it was day surgery,it just slipped out,after being in for a very long time!!!

If it’s painful get it removed!!!!,did they realise they left it behind????
It should be a day job surgery.

Don’t,forget to say hello to…[Read more]

Hi Vicki and Collin

Good to see you are still going strong,plus started having holidays!!!if it was me,you would not see me for dust,although I realise things are different for everyone. I suppose it was because are life was one long holiday before Myeloma,or should I say it was just a way of life????

Make the most of what you have got!!!and I…[Read more]

Hi Vicky and Colin

Your wayy too kind I just do what I feel is best, not just for me and mine but all of us Mm folks, as I have to admire to being a iccle bit selfish

Hi David
Sorry your SCT hasn’t been the success you/ we wanted but I have heard that it can get there in time ?!, good luck with the Maintansnce regime and hope your soon into remission.

Hi Keith

Well hope the throat gets no worse ??, gosh you are brave staying at home I was pleased I was in hospital during all mine and am pleased I will be…[Read more]

Hi Carol

Thank you for the advice, I will take time off when I need it. I work in a hospital and feel very safe there, I think work will help keep my mind occupied for the time being! I wish you well on your recovery, you seem to have done very well. Best wishes Andrea xx

Hi Mandy

The news is not good,but from previous post you new this was going to be that way,Mandy you had no remission so you are high risk and it’s not great for people in this situation, you have good things on your side,you are young enough to have a back to back SCT,you have a family to keep you going,this is all good.

As for lying in a…[Read more]

Hi Jo

Lovely to hear from you.

I miss the holidays as well,but it is out of the question here as well,I did think about trying to book a break in bournmouth at the hotel for cancer patients it’s something to do with the Mac Milan site,but it’s not the sought of holiday Slim wants,in his mind he thinks we can still go in are Motor Home,but with…[Read more]