tom replied to the topic Keeping up appearances in the forum General 14 years, 8 months ago
Hi Helen and Andy
Well me just being a mere male Helen I dont know what to say about "Hair Loss" as I have been losing it for some years now (I know bless me)
I think the itchy thing and rash is your Body hair regrowing? (just my thoughts) and its also strange that mine grew back Blacker for a short ime then it realized who's head it was on…[Read more]
tom replied to the topic 9th November for Dai in the forum General 14 years, 8 months ago
Sorry to hear (well I cant realy hear it Lol) your hacking has got no better Dai 🙁
Dunt matter about the 9th as your health is more important at this time, always next year Dai
Hope your Soom Better 😎
Tom "Onwards and Upwards"
jmsmyth replied to the topic 9th November for Dai in the forum General 14 years, 8 months ago
Dai sorry to read that you are not feeling well. Please take care of yourself, that's most important. Get well soon.
Love Jean xx
CarolBradley1 replied to the topic New and need advice on Myeloma XI in the forum Newcomers 14 years, 8 months ago
Hi
I have been away so please accept my apologies for the delay. Welcome to the site, although so sorry you have had this awful shock.
I have been on the Myeloma trial since last July although I was diagnosed in 2005 and managed without treatment until then.
I have had a range of treatments including Revlimid and the stem cell transplant and…[Read more]
brocho replied to the topic New Kitchen in the forum Off topic 14 years, 8 months ago
Hi Tom the kitchen looks great you and Elaine must be chuffed to bits! Ibet the family will be queing up to come round for dinner now ! Mind you dont let that wine rack get empty love Bridget x
eve replied to the topic New and need advice on Myeloma XI in the forum Newcomers 14 years, 8 months ago
Hi Jim
Nice to hear from you,It is all a bit mind blowing to begin with,but it does get easier.My husband got CTD side of trials.
You just might sail through treatment and be on your feet in know time,every body is going to tell you listen to your body,it is important.
Jim watch out for Dex it does change your moods,make sure the person closest…[Read more]
eve replied to the topic 9th November for Dai in the forum General 14 years, 8 months ago
Hi Min
Thank you for your reply,I must admit thought the DPA applied to paper work work as well as computer information.
What I was trying to emphasise was every one has the ability to know more about Slims illness than himself.
(As for to much information is not good or accurate) Well I would have to disagree,I think if information was more…[Read more]
jmsmyth replied to the topic New Kitchen in the forum Off topic 14 years, 8 months ago
I got the two photos. Kitchen really lovely and a gorgeous bag!! (I have a weakness for bag and shoes)
Jean x
jmsmyth replied to the topic Joining you all at last in the forum Newcomers 14 years, 8 months ago
Gill that is a great idea and I definitely "third it" it. It's so uplifting reading positive good happy news . How about it MM team
??
Jean x
Debs replied to the topic Itchy Scalp/face/neck in the forum Side-effects 14 years, 8 months ago
Hi Wendy
I had my last dose of velcade in June and whilst I'd already got the PN at the time (the reason why I stopped) I have to say that it got much worse afterwards…..it seems a long time after for it to develop but I don't know whether or not that is possible. I know how horrid it is to have it…it feels v dehabilitating but if it makes…[Read more]
tom replied to the topic New Kitchen in the forum Off topic 14 years, 8 months ago
Well Its all done and am sure Elaine (the young bride) is happy with it? so if you dont mind i will try? and post some photo's (wish me luck lol)
Tom xxx
tom replied to the topic Susannah – how is Michael? in the forum General 14 years, 8 months ago
Dear Sue
Sorry to read Michael is not too good at the moment, I like all others hope its not too long before Michael turns the corner and onto a smoother road, Hugs for you Both ((())))
Tom xxx
tom replied to the topic TABLETOP SALE & COFFEE MORNING FOR MMUK in the forum General 14 years, 8 months ago
Well Done Debs and her Gang 😀 it was a great amount 😎 and now is the time for a rest as you Family say.
Love
Tom "Onwards and Upwards" xxx
BADGER replied to the topic Susannah – how is Michael? in the forum General 14 years, 8 months ago
Dear Sue
sorry Michael isnt responding at the moment but you never know it suddenly could so fingers crossed for him we are all thinking about him and hoping for good news soon
Love Jo x
Debs replied to the topic Itchy Scalp/face/neck in the forum Side-effects 14 years, 8 months ago
Hi Keith,
No mine was an auto too, but Gareth Morgan was the one who said he thought it was GVHD….apparently you can get it a bit with auto's too?
Debs x
Debs replied to the topic TABLETOP SALE & COFFEE MORNING FOR MMUK in the forum General 14 years, 8 months ago
Hi everyone
I just wanted to say thank you to those of you who supported this event. I met a couple of you at the sale which was really lovely! The day was heaving which was amazing.
Anyway, I wanted to let you know that we have made at least £1700 from the event – it made all the hard work well worth it…..now I am under strict…[Read more]
Debs replied to the topic Joining you all at last in the forum Newcomers 14 years, 8 months ago
Hi David and Welcome
Great to have you on here…I always think it is really good when we have the 'good news' stories on the site….I did ask for a discussion category for this but it hasn't happened sadly.
Glad to hear that you are doing well post SCT and I hope that your remission is long lasting
Take care
Debs x
brocho replied to the topic NO BLUE PETER BADGE !! in the forum General 14 years, 8 months ago
Hi Sarah that would be special Sarah You have given me an idea perhaps we should design a badge for members of this site The MM Club! I have no idea how to get badges made up but I will have a look on the net Watch this space! How are you Sarah ? I read about your lost ram that must be soul destroying to lose a valuable animal I was sitting…[Read more]
eve replied to the topic 9th November for Dai in the forum General 14 years, 8 months ago
Hi David
Can you just visualise the file that belongs to you.
The consultant reads it
His secretary can read it because all your results go through her
clerks can also read it,
every department that deals with individual parts of it can read that individual part.
when you go into hospital any nurse,o/t physio,doctor has access to your file…[Read more]
eve replied to the topic 9th November for Dai in the forum General 14 years, 8 months ago
Hi Sue
Had to look up fish genetic testing,I actually thought this was being done in this country,as part of trials but not individually ,would be interested to know more about it,do you have much info on it? Eve