Hi Min
It all comes down to lack of knowledge and when you get conflicting answers from the professionals, it does make you question everything around you.
I know what your saying Min as when he was first admitted they took bone marrow,full body xrays and MRI and result confirmed and talking about Myeloma trials within days.

I do not have the…[Read more]

Sorry Sarah,
Got that totally wrong!
It is http://debsjourneywithmyeloma.wordpress.com/

Hope that works for you!
Debs x

Hi Sarah,
Yes you are normally able to get a blue badge….answer the questions thinking about his WORST days…..it has been a godsend for me, especially when I was on velcade and post SCT when every few steps makes a difference. It also saves you quite a lot on parking as it is free in a lot of places – makes up for all the petrol spent on…[Read more]

Hi Min

When Frank had the Bmb we were told to go and have some lunch and come back to the Unit. This we did and the results were ready. Maybe 2 hours. Does it differ from lab to lab?

good luck Dai. You are very eloquent a d will get the points over.

Love Jean. x

Hi Jo
How are you doing,thought you might post to let us know about info day.Did it go well. Love Eve

Hi Tom
I believe what ever works for you as an individual:-)that,s what is most important you are the person living with it,and it seem to work very well for you,all ways cheerful,never worry unless the doctor is not smiling,were would we be if we did not have people like you Tom on this forum.
So consider yourself an asset. Love Eve

Aww bless and Hugs ((())) Roz, I dont knnow how you feel I can only offer a cyber hug and an ear to listen.

I haven't looked at Holidays for disabled people so to be fair not sure how they work.
I can send you Cyber hugs and My prayers to help you through your difficult time ((())).

Take Care Roz
Love and Hugs ((()))

Tom xxxx

Hi Dai and everyone else

Many Thanks dai for taking this difficlt job on, as you know me I have said that am Happy if the Dr is happy and am realy trying to change that Veiw:-S

As Eve says we are in 3 catagries and I am "The ones who go in to treatment with doctors know best." type of guy its worked for me but I know what you all say I…[Read more]

Hi Dai
I will see what I can do,I know boffins deal with the fact side of the treatment,understandable so ,but first and foremost I am a carer to some one who is very ill and is going to pass away,either from Myeloma or a related illness,so as such I tend to be emotional about it.So you Dai are going to have to bear with me.I do write as I…[Read more]

Hi Shirls

sorry you are under the weather at the moments I hope you pick up soon
Love and (((hugs))) Jo;-)

Hi Mal and Bruce

so glad you got home at last lets hope things settle down soon then its back to cider and guitars:-) 🙂 🙂
Love Jo x

Hello Dai

I am reaslly glad you are representing us you are so good with words and seem to say just the right things good luck 🙂
Love Jo

Hi Dai,
I don't seem to be having any side effects from the revlimid so far – maybe because it is without the dex and cyclo? It is supposedly proven to prolong life and extend remission though, so as long as it doesn't deteriorate my quality of life, I'm happy to go with it and see what happens?!
Hmmm, Pen-y-Ghent…maybe not (did the Yorkshire…[Read more]

Hi Tina,
Glad to hear you had a lovely time, even if it was hard at times. But good on you for taking up a new sport…next time try not to break a toe hey?!
See you soon
Debs x

Hi Tina
Well done on that Windsurf, and always next time for the Scuba diving, am sure Patrick was Looking over you when you were Winsurfing and gung hoing over your new found hobby, take care of the toe and welcome home.

Hugs ((()))

Tom xxx

Here here Roz

GEONITICS

ICS next

Love Jean

Hi Only me
Funny name to have LOL.:-)
Just to say sorry your mums having a bad time of it,cannot help you,but my best wishers go to you and your mum,Eve

Hi Onlyme sorry your mum had such a rocky start to her treatment , hopefully things will go more smoothly now . I had similiar problems in harvesting enough stemcells for a second harvest My local health authority refused to fund the Plerixafor injections and I was able to produce the bare minimum but enough to do the job . I was told that if…[Read more]

Hi Sarah
Bridget has just given you some very sound advice,so my advice to you is listen to what has been said.Apart from that welcome to your journey as a carer,ask away about anything you are not sure about,even if we cannot help you,you will have the support of everyone on this site.
Hi Bridget good to see you are posting again. Eve