Hi Mal and Bruce good to hear things are going well Bruce hopefully it wont be long before you are home again You both hve such a positive outlook on things I am sure it will help you get through the rough bits . Mal I hope you try and get some rest too its often much harder watching someone you love going through tough times and even just…[Read more]

Hi David
Yes it does touch your heart,I could take you some were in this country, very much the same,my grandson goes to a school in Valance school in Westerham in West Kent.A school for profoundly special needs children the only one in Kent

When you go in there are a mass of wheelchairs with smiling children in them,some can operate a switch…[Read more]

Dear Scott
I know,I put weight on all the meals Slim asked for and could not eat,don,t like waste so the dog and I got fat,and Slim got thinner and shorter,
As for drinking, YES guilty,but realised from old,it does not help so try my best to moderate it.( a bottle a day) LOL:-P only kidding but i do understand.:-S
When I was . 30 I had a life…[Read more]

Same here Eve

Dear Eve (and Slim!) and Helen

I'm sure you have both found reservoirs of strength this year that you didn't know you had. Hang in there and enjoy the good times. I remind myself often that "this is the day"!

May there be many more years and may they be good ones.

Mavis

Hi Everyone
Sometimes you just do not believe what can happen in such a short space of time,I do not know which is worse,1 year or 15 years,It,s never ever going to go away.I suppose we have to draw strength from any remissions and as you say sue,there are good times,
It has made me appreciate Slim more,as for bringing us close,we got married…[Read more]

Hi Everybody
Nice to hear everyone getting out and about:-)
Jean the pneumonia jab is good ,once in a lifetime but will not protect you from every type:-(
Glad to hear your enjoying Spain,and Ted enjoy your holiday to Cornwall.
Love Eve

Hi Sue good to hear your day wasnt too bad even if it was tiring( it always is!) Interesting news about the new trials I will keep my eyes and ears open too Incidentally my consultant feels that not being able to measure paraproteins should not prevent us from taking part in trialsas I had been told before , they can only measure any activity…[Read more]

Hi Craig
How did you manage to get sod through the senses ,you cannot say h-e-l-l with out getting your hand slapped on here:-P lol
good for you ,about getting help,don,t forget some people never ever draw there pension on here,work for a life time,and never get to collect.So take everything you can,I got messed up by pension people who lost…[Read more]

Hi Min
So glad you are looking forward to the holiday,There is lots to do there,the only thing I found was just keeping myself covered up,except in pool or in hotel,need light clothes,taxi,s can be a bit of a rip off,negotiate before you get in.Good place to buy gold.Have a wonderful time.
Do not forget to tell us all about it when you get back.:-) eve

Hi Mari
How are things going for Steve and yourself ,its all a bit of wait and see,not a nice position to be in,but it just might be a blip
Hope Steve is keeping fit on the bike,long rides might take his mind off things.As Deb say,s retail therapy is a good thing shops are full of lovely things,might be worth your while to take your mind off…[Read more]

Good Morning Every One
Susannah thank you for information and yes i will be interested on your husbands progress,it,s a good thing for us to know about new trials,and it has to be helpful to you to be able to talk about it openly so I am looking forward to see how things are going,about the Dex on MYeloma X1 trial the dose was reduced on Slim to…[Read more]

Hi Min and Mavis thankyou both .To be honest I am quite relieved I dont have to wait any longer to begin treatment , the doctor I saw today said he was just going to go ahead rather than waiting for funding approval , good man ! Iwill have to be very vigilant about getting myself to the hospital if I get an infection sooner rather than later ,…[Read more]

Hi Craig its great to hear things are looking up for Etta now , especially when those pesky numbers drop really low!! Eve has already given you good advice about getting some helpand I cant add to that except to say make sure you insist on help , you are more than entitled to it!! If you can keep working I am sure it will help you both in all sort…[Read more]

Hi Only me!

Can't offer any suggestions but just wanted to send your Mum my love – she is a very brave lady.

Mavis x

Hi!

Love to all of you on these Trials. Do hope doses continue to be tweecked so thzt side effects are minimised.

And Bridget,

So glad they have finally agreed to the treatment. All best wishes for this next stager. Let's hope it is as successful as the RT.

Much love.

Mavis x

Hi Craig
Just read your post do not know if you have looked at the financial side of things,but i found this a great help,just to have someone come in and do some heavy stuff,worth looking into,Slim gets attendance allowance as over 65,but Etta at 54 should qualify for independent living allowance plus carers allowance.It means you can go to…[Read more]

Hi Eve and Sue well got it sorted today I will be starting on Bendamustine, Thalimode and Prednisalone ( just the same as Dex but reccommended with these two drugs) in a weeks time So although I am not on a trial , my consultant believed one of the trials has been stopped due to blood counts not recovering , not sure which trial ) I will be on…[Read more]

EXERCISE FOR PEOPLE OVER 6O

I,ve tried this and it really works !

Begin by standing on a comfortable surface with plenty of room either side.

With a 5 lb potato bag in each hand extend your arms straight out from your sides hold them there as long as you can.Try to reach a full minute,and then relax

Each day you,ll find that you can…[Read more]