Hi Mike

Sorry to read about another one that has run out of optians on the drug front.

Tom

Hi Etta

A warm welcome to the site, and you will soon settle in (its like a old pair of slippers to me warm and cosy)

Now what to say? well I was on CDT as a first response to My MM in Feb 2009, yep loads and loads of pills:-( as for the reaction I was very very tired during the CDT that I had to go on the sick:-/ I was on the sick for…[Read more]

Hi All
I love all this glorious weather we are having,it is a real bonus,it makes so much difference to our days,people walking round with a smile on there faces , i just wish it would not end.8-)
I love that Slim has decided he wants to go out as a family for his birthday,one daughter will be missing in NZ.to me it means he is feeling…[Read more]

Hi All
Nice simply one
STICK

ICK next love Eve

Hi Min
I can just see Daisy telling everyone about you wetting yourself,LOL,You made my day,
The dogs will get you out of the bed in the mornings,just take it a day at a time.Love Eve

Hi Clare
You must be worried after 6 courses of CTD then a rise in light chains,best to ring hospital tell them your worries,you will be able to see your dads consultant early.

Slim had 6 cycles of CTD seems to be on path for remission,when they took bone marrow found MM had gone up,but light chains were down:-S,left us shocked,spoke to nurse…[Read more]

Just thought I'd give you a quick update after my appt with the pain clinic. It is quite a frustrating story!!
I went in, and after listening to him talk over me constantly, he decided to put me onto pregablin as I had been on it by mistake pre-transplant (along with tramadol and morphine – not meant to be given together!)and it had worked then.…[Read more]

Hi Keith,
I would check with your hospital, but when I had a rash around my neck and collarbone post SCT, my consultant said it was GvHD and that it was a good sign that the transplant had done its job.
Mine has just about stopped now….I am 2.5 months post transplant.
Hope it calms down soon so the swearing can stop 🙂
Take care
Debsx

Hi Wendy,
I hope you're doing ok post transplant….it's hard in those early weeks so bear with it and don't rush to getting back to normal. It's really important you listen to your body!!
As to the mini Allo, you could post on the Under 50 site as Ian has recently had one of those….in June I think it was. He is doing well so far.
That must…[Read more]

Hi Terry,

Just to say that velcade definitely isn't a last resort. I was diagnosed in 2009 and started treatment in 2010. I started on revlimid but that stopped working quite quickly and I was put onto velcade.
It worked really well for me and brought my pp down from 28 to 4 at which point I had an SCT. The only thing I would say is please…[Read more]

Hi Etta,
Welcome to the site….sorry you've had to join us.
I reacted to zometa the first time I had it – felt very flu like with bone ache all over, hot and cold etc. But it only lasted about 24 hours and since then, I've never had it.
But the tiredness etc is probably due to the CTD….my best bit of advice is to listen to your body. If it…[Read more]

Hi Jo
Well come on tell us,did he wine and dine you!!:-)
As much as i love Slim he cannot even remember my birthday with out my daughters telling him,so not holding much hope for first wedding aniversery.

Saying that he did buy me a bunch of flowers twice in thirty years not bad,and not from a garage forecourt,sainsbury,s more up market…[Read more]

Hi Terry
Well you are a seasoned professional compared to me as I have only just been diagnosed din August! with MM.I to have tumor upper back/lower neck which caused spinal compression.Taken straight in to Hospital with concerns about losing mobility and bed rest.Had radiotherapy and tumor area which seems to have removed most of the…[Read more]

Well said Mavis I agree,Eve

Hi Roz
Sorry if i got it wrong,I know how hard it can be to live alone,specially at weekends,the door shuts on friday and thats it till Monday .
I am not very good at explaining myself,I myself have my own isolation,because I am deaf,I am suppose to were hearing aids,but I hate them,so it,s not so much physical as mental isolation that I was…[Read more]

Hi
I am on my second cycle now(I was diagnosed in August with MM at 39 years old) but on the RCD pathway and also take the zometa(Bisphosphate) injection once a month when visiting my consultant.I dont seem to get the same side effect as you on that..but do feel lethargic and tired on occasions.My legs can feel a little "leggy"as I call…[Read more]

Good morning Min thank you so much for starting my day with a giggle The image of you emptying the water out of your wellies like that is priceless , I bet the dogs thought you had lost it Watch out though as I bet Daisy will be bursting to tell the world how her nan wet herself!! Tee-hee Shame about the racy sportscar , dont suppose it would be…[Read more]

Hi Dai what rotten luck to pick up an infectionnits so maddening isnt it ! Heres hoping the anti -biotics do the trick sooner rather than later so you can get on with your next velcade. LAots of love Dai feel better soon Bridget x

Hi Etta welcome No wonder you are in a spin , at first it all seems so hard to take in but it will get easier in a short time as you get used to the routines of taking all those meds You have already been given good advice as to anti-sickness tablets and I agree that Zometa can affect you but it tends to be temporary The main thing is to let the…[Read more]

HI Etta
Mind blowing,but do not worry you are not alone,Slim my husband did 6 cycles of ctd and there are lots more people on this site just like you.
Love Eve