Hi All

I think once you understand what’s going on it’s easier to take control of,keep yourself busy,telling the cat off is a good one,it cannot answer back,as a carer the one thing that use to annoy me,was my hubby could not see it was the Dex that made him so stubborn and argumentative as time goes on it does get easier. I use to keep a bit of…[Read more]

sorry jeff, I’ve been on computer far too long tonight (tired eyes) so fingers crossed you will tolerate the new regime come monday! take care, liz x

hi tom,

glad to see your still doing ok on the new treatment, thought id look in and catch up on everyone, can’t believe the clocks are going forward this coming weekend, makes for feeling upbeat and looking forward to the months ahead, keep well tom & elaine.

love liz & kev xx

hi carol,

kev had his hair shaved off by one of the nurses as it was falling out all over the pillow, we will never know weather it would’ve all fallen out but 3 months after sct it was growing to my relieve although he’s always had it quite short, I’m thinking some good old ozzy sunshine will do the trick! bet you can’t wait, you’ve done really…[Read more]

hello jeff,

glad to hear you are doing well on the new treatment, kev is now on cycle 14 of rev/dex and his reading has been stable at 10 for a while, i think he is coping well with the treatment and getting very few side affects and settled, the dex is another thing though (highs & lows)not nice! were even thinking of booking a little holiday…[Read more]

Hi Jeff

Glad to see you are feeling better,and being positive all helps your condition.

CDR is very like the CDT treatment you had,as you are slightly older,once they are able to control your PP,they tend to use it as a maintenance drug until it stops working,some people have been on it for a long time,as you know everyone reacts different to…[Read more]

Hi Molly

There are a lot of people in the position as your husband,it does depend on how his heart is affected by it. The Royal Free Hospital in London is the only hospital who deals with it,but they liaison with local hospital,it is rare 600 cases a year.

I cannot pretend it not serious and tell you not to worry!!,but please get in touch with…[Read more]

Hi Jo

You must feel that the Damascus Sword is dropping!!,all these new treatments effecting people in different ways!!,I think even the experts are on a big learning curve with us.

Sorry Mandy about taking your post but Jo does not post much for herself,you have to drag the news of her condition out of her,said in a nice way Jo!!!,please post…[Read more]

Hi Dick

You take your chances!!! Slim was unfortunate ,as I have said before Slim is one of the 15 percent who is high risk,good results,but it comes back quickly,you seem to be in the same predicament as Andy,!! Cannot get your PP down!!!. Hindsight would be wonderful??

You have a lot going for you Dick, young,fit family plus time,so I think…[Read more]

Hi Eve

my kidney score creatinine 500 I was fine all the time I was on velcade as soon as I stopped the kidneys got worse they cannot explain it so they have put in a fistula dialysis access this has gone wrong and narrowed so they put balloons up the vein yesterday venoplasty full of bruises now
Regards to Slim
love Jo

Hi Dick

I am sorry to hear your SCT did not work, Helen R and you have both slipped it into someone else,s post!!!!!,I did the same when it happened to Slim,why do we do that??????

I think it,s because we do not want a lot of post saying ( I am sorry ) it’s bad enough going through SCT with nothing to show oft it !!!!,Slim looked on it as 6…[Read more]

Hello John

Just popping in to say hello!!,I hope your are doing ok,or at least as well as can be expected,as you had a rough deal,and no time to adjust.Eve

Hi Jean

That’s all good news,Slim came out in a wheelchair ,I bought a light weight one in the end,which is easier to fold,took months to get him completely on his feet,but he did it, it was the best buy I made as it has been used on and off for the last couple of years.

If you can afford to retire I would go for it,you might miss work but you…[Read more]

Hi Maureen

This time last year,I bet you thought you would never get,were you are now????

How is the Velcade going??? Keep his feet warm,and give his legs and feet a good massage,there legs get very stiff and you can actually feel the tension relaxing in the calfs,so worth it.

Glad you had a nice break in the lakes and also met Andy and Steph,Love Eve

Hi Jo

Slim,s not to bad in the circumstances . He finishes his second Cycle of Velcade on Thursday this week,hid bloods are taking a battering,has had to have platelets every week,but not blood yet,he has managed to fight off an infection,so that has not helped, three years of Myeloma is the best lesson you can have to become an expert on your…[Read more]

hi David

great news news your journey has been the same as mine I believe we joined this forum 5 years ago at the same time as you say never give up keep well
Love Jo

Hi Mandy

you have had a time of it lets hope now you can get better treatment at the new centre you are lucky to have a good one near
keep well love Jo
Hi eve how are you and slim is slim keeping ok my kidneys are rotten they have now fitted a fistula just in cse not what I wanted but hey ho
Love Jo x

Hi Mandy

When you go through all you have and survive it,it should give you a boost knowing that you can fight it,let’s hope the kidneys regenerate and slowly get you back on track.the whole thing is so emotional,once you realise how close things were.
I would not bother trying to remember about ITU,locally they will do a dairy if we asked,but I…[Read more]

Hi Jean

I know it’s a worrying time for you!!! But if Michael has the will to fight it he will,it’s when they put him out and on a Ventilator,the chances diminish,it will take a lot of time to get over this,and they will make decision of his Chemo treatment secondary. But he will get there.

Slim had his Stint in ITU for nine days then the ward…[Read more]

Near half of my post missing ??? HELP lol x