My word is

QUESTIONABLY

Leaving BLY

To me this is what life is about at the moment:-) Eve

Hi Min
Lovely to hear you are posting again,so worried for you at one time,knowing daughter lived away and son at sea.
I have thought about starting a support group,but it would not be practical for me personally.For a start no way would Slim go!!:-P,Have been trying to get him to go to London,but no go!!!!!
He is a very self contained…[Read more]

Hello Gill & Elizabeth,

Thank you for taking time to reply everyone's been lovely were off on a break next week and can't wait!

Sorry to hear your news Gill love to you and Stephen

Tom I know what you mean about the finding a vein kevs got the same problem!

Love liz & kev xx

Hi Peter
Thanks for replying,its just interesting the different ways Velcade is given,and with different drug combinations,and how effective it is on different MM,:-S
You are the first person I have heard from who was on Velcade and 3 years on is alive and kicking,half the problem is I am 80 miles away from a support group and this is a life…[Read more]

Hi Ellen
I have been posting on here since February this year,and found some thing I believed did not exist(cyber friends),so yes I mourn their loss,it also brings it home,this is going to happen to me.:-(
I would have loved my husband to have sailed through this horribly treatment,and come out the other side,like Jet,who only wants positive…[Read more]

Dear Sarah I just wanted to say here is where you can moan , weep or rant against the unfairness of having Gordon taken from you too soon so please never apologise we are all here for you in any way we can be to help. I could not believe anyone could be so insensitive as your cousin !! I bet you felt like punching her right on the nose I know I…[Read more]

Hi David great news you have certainly got those pesky little blighters on the run!! Heres to even lower numbers and longer times between clinics so you can both forget about mm for a good long while love Bridget x

Hi Shirley its good to hear from you but I am sorry you are having problems Mind you you are such a determined person I cant see it holding you back for too long!! Hers hoping you wont need that oxygen for much longer and you can get your dancing shoes on again lots of love Bridget x

Hi Ellen thankyou for responding to us on this very sensitive subject . I do think there is a need for this category for those who have lost their partner , parent or sibling but also for those of us who after several years of treatment feel the need to look at choices for the final stage of their myeloma journey It would be heartbreaking to…[Read more]

Hi Wendy well I certainly wouldnt want to have to make that decision in a hurry!! It amazes me how very different the various approaches by hospitals and individual doctors are to our treatment In my case I was told the risks of a non-related donor transplant were much too high for me and I dont think my hospital offers mini allo transplants at…[Read more]

Hi Ellen

Thank you for kicking off this difficult subject, but here is my thoughts::::

I am the one that has MM and am helped by My Wife, three sons, three daughter in laws and five (soon to be six:-D ) Granddchildren, and yes we "My Wife and I" talk about "end of life" and yes Elaine said she would look forward to the help and advice that…[Read more]

Hi Wendy

Am sorry I cant help you with this one all I had was a SCT and nothing else talked about? but am still in remission some 21 months ago and am still doing great 😀
But am sure you will have some one nip on here and help in the answers you need.

Good Luck in your recovery from your transplant:-D

Love
Tom "Onwards and…[Read more]

Hi Shirl

Sorry to hear you are having problems with GVHD, I was given a card to tell Dr's that I could suffer GVHD but to be fair never thought (nor asked) what could happen re the GVHD thyat I carry a card for:-S (yep am a numpty)

You sound like you are doing Ok with it ?

Love and Hugs

Tom "Onwards and Upwards" xxx

Hey that nutter nettie

Way to go girl 😎 but can you have a web cam fitted so as we can hear the scream as you throw your self off the bridge (sumit wrong wi you lol) but as a RC I will be sending My Prayers8-)

Love
Tom "Onwards and Downwards" xxxx

Hi Jo

Benn thinking about you for the past few days. Hope you don't mind me asking , how did you get on on Wednesday?

Love Jean x

Hi Nettie

Just wanted to wish you good luck for tomorrow. Will be thinking of you at 10.00am. You're a better women than me Ghunga Din!!!!!!

Love Jean xx

Great news David and long may it stay that way you are doing so well at the momement;-)
Keep Well
Love Jo x

Now this must seem silly to you all:-0 but am sure I posted on this one before:-S now if i did where has it gone:-/

Aww well here it is again?

Thanks for that Carol, its great to hear stories like this one 😀 warms the cockles of my heart, when you next see your "Young Chap" please give him my regards.

Love

Tom "Onwards and…[Read more]

And a Well Done from Me David 😀 and long may it continue 😎
Would I know if mine is exotic:-/ No am sure i wont lol.

Have a great break from treatment and Doc Visits 😎

Tom "Onwards and Upwards"

Dear Gill

I have been following your posts on Stephen and was devastated to read about Stephen's appointment results. I cannot offer any advice as I know nothing about the medications that can be perscribed. I can offer my very best wishes and prayers and hope that the revlimid works.

My very best to you both.
Love Jean xx